I’m getting ready to start the process for autologous stem cell transplant next week. I’m wondering if there will be a point in my future where I have energy and feel good again. I have suffered from terrible fatigue for a number of years now. It would be terrific if I will eventually feel like my old self, but maybe that doesn’t happen?
I am almost 5 years post ASCT. It took me about a year to return to my old self. I really did not have many side effects of the transplant FATIGUE.
I never had any of “the trials” mentioned here… read more
And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests
Netta, please ask for a printout of your lab work that is ordered by your oncologist every time they do your monthly doctor's labs. Keep them together in a loose-leaf binder organized by date. This… read more
I do not about cart but I do know it is hard to gett
What is CCML
Question I have:
Should I be in this group if I only have SMM. Everyone else in here has MM. Just confused and concerned, but this group is very helpful in gathering information. On what I might be experiencing at a later time........
I started at MGUS 7 years but now at SMM just 3 months blood work
If yes, have you had less severe disease and a better prognosis?
I read a study called women in connection that found 60% of people in the study that took a statin were less likely to be diagnosed with multiple myeloma. And that rose that were diagnosed with multiple myeloma were less likely to have severe disease and a better prognosis.
Just curious to hear from our team members.
I am on Livalo 1 mg as well. 😉💖
Stage 3B is the highest stage for Multiple Myeloma. 3B means you have kidney issues
My car t lasted for a year and a half. I was very happy! Now I’m on a new drug that I’m happy with. It’s been over a year.
Read Dana Farber's Dec 23' Determination Trial Updated Press Release -
They now admit (it's always been in the Report) that if you get a Complete Response or even a Very Good Response - Do Not Get a… read more
So the idea of cure got me thinking after I recently relapsed after a SCT. I have said this before, why call it a SCT when the real action is to use high dose chemo/poison (use that word poison in front of your oncologist and watch their reaction) to eradicate ALL of your bone marrow
Now use stem cells to regrow marrow. How/why does one single cancer cell come back and eventually clone and multiply? I though the Melphalan killed it all. So maybe a few survived and hid from the maintenance… read more
Keep noodling around with this all you amazing self-tagged nerds. A cure is around the corner. AI will certainly help with this.
I am five months post SCT with no detectable cancer in my body. I… read more