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Top 10 Search Results for "problems with staying on myeloma treatment find support"

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Life After Stem Cell Transplant?
A MyMyelomaTeam Member asked a question 💭

I’m getting ready to start the process for autologous stem cell transplant next week. I’m wondering if there will be a point in my future where I have energy and feel good again. I have suffered from terrible fatigue for a number of years now. It would be terrific if I will eventually feel like my old self, but maybe that doesn’t happen?

A MyMyelomaTeam Member

I am almost 5 years post ASCT. It took me about a year to return to my old self. I really did not have many side effects of the transplant FATIGUE.

I never had any of “the trials” mentioned here… read more

Ok, Is 1.80 Good For Lamda Free Light Chains ? In November It Was 17.7 Up From 11 In October
A MyMyelomaTeam Member asked a question 💭

And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests

A MyMyelomaTeam Member

Netta, please ask for a printout of your lab work that is ordered by your oncologist every time they do your monthly doctor's labs. Keep them together in a loose-leaf binder organized by date. This… read more

Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I do not about cart but I do know it is hard to gett

Can Multiple Myeloma Treatment Cause CMML
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

What is CCML

Smoldering Multiple Myleoma
A MyMyelomaTeam Member asked a question 💭

Question I have:
Should I be in this group if I only have SMM. Everyone else in here has MM. Just confused and concerned, but this group is very helpful in gathering information. On what I might be experiencing at a later time........

A MyMyelomaTeam Member

I started at MGUS 7 years but now at SMM just 3 months blood work

Do You Take A Statin With MM Meds (example: Lipitor, Crestor, Etc.)to Lower Cholesterol?
A MyMyelomaTeam Member asked a question 💭

If yes, have you had less severe disease and a better prognosis?
I read a study called women in connection that found 60% of people in the study that took a statin were less likely to be diagnosed with multiple myeloma. And that rose that were diagnosed with multiple myeloma were less likely to have severe disease and a better prognosis.
Just curious to hear from our team members.

A MyMyelomaTeam Member

I am on Livalo 1 mg as well. 😉💖

When Asked What Stage I Am In When First Diagnosed With MM, My Oncolncologist Said He Doesn't Go By Stage. He Goes By Their Blood Work.
A MyMyelomaTeam Member asked a question 💭
Stage 1 Multiple Myeloma: What To Expect Read Article...
A MyMyelomaTeam Member

Stage 3B is the highest stage for Multiple Myeloma. 3B means you have kidney issues

For Those Of You Who Had Car T-cell Treatment, How Long Was/is Your Remission?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

My car t lasted for a year and a half. I was very happy! Now I’m on a new drug that I’m happy with. It’s been over a year.

At What Point Does Your Doctor Recommend Stem Cell Transplant?
A MyMyelomaTeam Member asked a question 💭
Managing Peripheral Neuropathy in Myeloma Read Article...
A MyMyelomaTeam Member

Read Dana Farber's Dec 23' Determination Trial Updated Press Release -
They now admit (it's always been in the Report) that if you get a Complete Response or even a Very Good Response - Do Not Get a… read more

The Brief Concept Of A Cure
A MyMyelomaTeam Member asked a question 💭

So the idea of cure got me thinking after I recently relapsed after a SCT. I have said this before, why call it a SCT when the real action is to use high dose chemo/poison (use that word poison in front of your oncologist and watch their reaction) to eradicate ALL of your bone marrow
Now use stem cells to regrow marrow. How/why does one single cancer cell come back and eventually clone and multiply? I though the Melphalan killed it all. So maybe a few survived and hid from the maintenance… read more

A MyMyelomaTeam Member

Keep noodling around with this all you amazing self-tagged nerds. A cure is around the corner. AI will certainly help with this.

I am five months post SCT with no detectable cancer in my body. I… read more