Myeloma

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If you have multiple myeloma, have you had a root canal or shingles. I need both yes and no answers

If you have multiple myeloma, have you had a root canal or shingles. I need both yes and no answers

As a retired physician, I hypothesize that a cause for multiple myeloma is long term exposure to your immune system by a never changing bacteria or virus. The most likely source for such a bacteria or virus is a root canal or shingles. Bacteria can multiply and divide without exposure to plasma cells in the tubules of a dead tooth. Shingles virus hides in the spine. The never changing bacteria from the dead tooth… read more

A MyMyelomaTeam Member said:

I have had shingles twice, once about 20 years ago and once 2 years ago . also I have molars that keep breaking up when the caps fall off a molar

posted 5 days ago

What are the symptoms besides back pain?

What are the symptoms besides back pain?

I am waiting to see a specialist. I need to know what symptoms are common with MM besides the back pain and fatigue?

A MyMyelomaTeam Member said:

Fractured ribs, fevers, in my case unable to walk in a straight line due to peripheral neuropathy in my feet from Bortezomib, the first chemo I was… read more

posted 6 days ago

Hiccups

Hiccups

Has anybody had bad hiccups using rvd treatment

A MyMyelomaTeam Member said:

My husband had hiccups from dex.

posted 15 days ago

If you do a bone marrow transplant, do you still need to take Revlimid?

If you do a bone marrow transplant, do you still need to take Revlimid?

A MyMyelomaTeam Member said:

I am on Revlimid and am told for the rest of my life unless it quits working. See if you can qualify for Celgene to give you your Revlimid for like… read more

posted 13 days ago

Clinical trials

Clinical trials

I am looking for trials involving Tcell treatments in canada. Does anyone have any contact info for this? I've been through one course of chemo and stem cell recently and currently in remission. Living on the west coast of BC. thanks

A MyMyelomaTeam Member said:

Karen they do a lot of clinical trials in Edmonton . I am not sure if Tcell for myeloma is on the list. I watched a webinar last week from Vancouver. It… read more

posted 20 days ago

KU Medical Center

KU Medical Center

Are there any members of this group that are or have been treated at University of Kansas Medical Center or Saint Luke's Hospital in Kansas City? I would just like to compare experiences and connect with those nearby.

A MyMyelomaTeam Member said:

Olathe Medical does not have a good reputation.I do like Shawnee Mission Medical Center.

posted 2 days ago

Revlimid association with leukemia?

Revlimid association with leukemia?

Newly diagnosed SMM and after all test results I just had my 1st meeting with specialist. As moderate risk and no symptoms with M spike 2.3 Kappa 2.0 IgG 20-30% plasma, he prescribed Zometa for my osteoporosis. He said that Revlimid may possibly slow SMM progression. However, with my mother dying from treatment induced AML following what appeared to be successful treatment of NHL, I am not a safe candidate for Revlimid due to its association with leukemia. Is this a typical… read more

A MyMyelomaTeam Member said:

Yes it is the new way to go. I believe, could change tomorrow. They have Started treating SMM Just Recently.
Do not open revlimmed. Call the… read more

posted 22 days ago

Swallowing pills

Swallowing pills

I am about to start my first RVD cycle next week. I am 48 years old and have never been able to swallow pills. It's all in my head. Through the years I've gotten myself to be able to swallow very small pills. But anything the size of an Advil or larger is a no go. So my 25mg Revlimid came this week and it is a pretty large capsule. It has warnings all over it not to bite, chew or break it. So the question is ....

What happens if you bite, chew or break a revlimid capsule? It may be the only way… read more

A MyMyelomaTeam Member said:

From what I understand capsules have tiny pills in them that are timed to release at certain prescribed intervals, so if you break the capsule before… read more

posted 6 days ago
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