Sometimes when I wake up, especially lately, the lower part of my ribs feels so tight, it is like someone tied a belt around my ribs and pulled it as tight as they could. It would s extremely uncomfortable and I have not found a way to relieve it, nor do I know what is causing it. Has anyone else had a similar problem, and if so, what did you do about it?
I'm pretty sure that I'm seeing a pattern of military/contractors who have been diagnosed with Multiple Myeloma after serving overseas in these countries. With the air quality and the burn pits I believe that it is possible that is where it was caught (if caught is the right word). So, is anyone else in this group in the same situation, wondering if you got it from Iraq or… read more
I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options. Just curious… read more
As I prepare to head to Moffitt to begin the SCT process, I have read up on immunotherapy and what I have seen about CAR-T sure sounds promising, even for recurring MM. I would love to hear other’# thoughts and especially if anyone has been involved with this treatment.
I have taken Velcade and Cytoxin in past.What is other's experiences with these drugs,good or bad.Thanks!!!!