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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Does A Person Decide They No Longer Require "Maintenance Drugs" Such As Revlimid?

By A MyMyelomaTeam Member 70 answers

How Do Beverages With Caffeine Affect Your Myeloma?

By A MyMyelomaTeam Member 131 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Myeloma?

By A MyMyelomaTeam Member 92 answers

What Myeloma Symptoms Keep You Up At Night?

By A MyMyelomaTeam Member 122 answers
4577 questions

What Do Take Or Found Helps Dry Mouth.

A MyMyelomaTeam Member asked a question 💭
Glendale, AZ
A MyMyelomaTeam Member

Thank you Doris for your advice. In my case during the day it’s not bad. I am usually sipping water. I try to drink between 85 to 100 ounces of water per day. At night I wake up with a dry mouth which… read more

12 hours ago

Immunoglobulin Test; What Number Shows Low Enough Immunity That I Would Get Ill Often ?

A MyMyelomaTeam Member asked a question 💭
Hollis AK

I keep claiming that when I go to town/around people, I feel ill by the next day or third day. My oncologist and GP kind of pass it off. Yesterday I was told I have a mental problem; imagining it.
What kind of numbers would make such frequent.....issues;or rather psychological issues?
I'm researching and not finding much except "frequent infections"

A MyMyelomaTeam Member

Kathryn
In the past when I would get a cold, I would think back a few days to where I was and it was usually the grocery store. Lots of germs are out there and we are all low on immunity. It’s best… read more

9 hours ago

Has Anyone Had A Flu Shot And How Did It Affect You

A MyMyelomaTeam Member asked a question 💭
Jacksonville, FL
A MyMyelomaTeam Member

Hi Gail! Welcome to the club 😉😁

1 day ago

Any One Have Constant Itching? What Can Alleviate This Issue. Any And All Suggestions Are Greatly Appreciated.

A MyMyelomaTeam Member asked a question 💭
Wheaton, IL
A MyMyelomaTeam Member

Claritin may help. Cooler showers with unscented body wash may also help

2 days ago

Cold And Bloodwork

A MyMyelomaTeam Member asked a question 💭
Baltimore, MD

I thought I saw proof posting that their FLC numbers went up if they had bloodwork during a cold/ vaccine. I’m due to have my mm bloodwork Monday and I’m finally getting over my cold. I’d there a chance my bloodwork could be off if they do it even if I’m not completely over the cold?

A MyMyelomaTeam Member

My blood draw numbers, particularly light chains do change with colds and respiratory infections . Statistically there is some variation between tests, but your oncologist should discuss any important… read more

3 days ago

I’ve Been Put On Pomalyst And Iv Emplociti Has Anyone Else Been On Either Of These

A MyMyelomaTeam Member asked a question 💭
Tallahassee, FL
A MyMyelomaTeam Member

Yes, they have cut the dose in half, but I still have problems. I might ask if I can try a different steroid like prednisone.

9 hours ago

What Are Serum Free Loft Chains?

A MyMyelomaTeam Member asked a question 💭
Holland, PA
A MyMyelomaTeam Member

It seems like there might be a typo in your question. Did you mean "Serum Free Light Chains"?

Serum free light chains are proteins produced by plasma cells. In the context of multiple myeloma… read more

5 days ago

What Can You Do About Numbnest On Bottom Of Feet?

A MyMyelomaTeam Member asked a question 💭
Chicago, IL
A MyMyelomaTeam Member

Check FMH page for kinesiology tape application and I use moisturizer lotion on my feet . Medication and vitamins did not work for me, but they may for you. Check with your healthcare team for ideas… read more

5 days ago

What Are Your Results Of Car-t?

A MyMyelomaTeam Member asked a question 💭
Houston, TX
A MyMyelomaTeam Member

My mom did CAR-T (Carvykti). The side effects were rough, particularly the temporary neurological effects. She was in patient at Moffitt for about a month. It did put her into remission for about… read more

4 days ago

I Have 2 Teeth That Have Broken Beneath The Gum LineI I've Never Heard Of Such A Thing. Has Anyone Else Had Experience With This??????????

A MyMyelomaTeam Member asked a question 💭
Utah
A MyMyelomaTeam Member

Yes, experiencing teeth breaking beneath the gum line can happen, especially for individuals with multiple myeloma. According to my knowledge base, people with multiple myeloma often face dental… read more

6 days ago
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