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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
4060 questions

Leg Swelling

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Leg swelling can be a symptom experienced by individuals with multiple myeloma. Here are some insights from the knowledge base:

- Symptoms Shared by MyMyelomaTeam Members
- "Swelling in legs and… read more

posted 15 hours ago

Is There A Difference Between An Oncologist And A Referring Oncologist?

A MyMyelomaTeam Member asked a question 💭

I noticed something I didn't see? before.
Basically, I had the impression that my oncologist IS mostly to refer patients, according to test results; lab work, scans, bmb, etc Am I wrong?

A MyMyelomaTeam Member

I think that's great, Rick!

posted 10 hours ago

If You Were A Hematologist/Oncologist Who Specializes In MM, What Would You Do?

A MyMyelomaTeam Member asked a question 💭

Would you only offer them treatment, which in some cases helps, and others affects quality of life, but would you also have your patients talk to a Naturopath? It seems diet, supplements and exercise really make a difference.

A MyMyelomaTeam Member

Herb
I would gladly go to you as my oncologist as you sound like someone who really knows and cares what we go through
And cbd suppositories I had never heard of might be worth a try if it takes… read more

posted 7 hours ago

What Are Your Top Tips For Dealing With Myeloma In The Heat?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I try to hydrate before I’m exposed and plan outdoor activities for cooler days or times. I’ll also pace myself and take breaks more frequently. The new e-bikes are a great way to stay cool while… read more

posted 1 day ago

How To Help My Husband To Eat.

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Try feeding him! ❤️🤗😘

posted 2 days ago

How To Delete Account

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

To delete your account on MyHealthTeam, follow these steps:

1. Select the menu icon in the upper left corner
2. Go to 'Settings' then 'Account Settings'.
3. Towards the bottom, select 'Deactivate My… read more

posted 3 days ago

Is Chemo A Mosquito Repellant?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

We live in Florida, the mosquitoes are big and bite. I go outside with the kids and grandson they all get eaten alive as they say scratching and spraying. me not a single bite...

posted 4 days ago

I Have Smoldering Myeloma. I Was Told I Have A 26% Chance Of Progressing To Muliple In 2 Years. Any Advice To Help Stop The Progression?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I'm also smoldering. Some people claim that antioxidant supplements like turmeric curcumin, astaxanthin, and green tea may be beneficial. When I asked my hem-onc about supplements and foods high in… read more

posted 2 days ago (edited)

I Would Love To Hear From Someone Who Had A Autologous Stem Cell Transplant. Thank You!

A MyMyelomaTeam Member asked a question 💭

Especially if you're experiencing loss of appetite, fatigue, etc.

A MyMyelomaTeam Member

Thank you, Tricia, for sharing your experience. My husband is having a hard time with fatigue, appetite and balance. It's been almost 6 months. We're praying it will get better. Thank you again!

posted 3 days ago

Hi. I'm On Recormin For Low HB (thalassemia Related) For Over A Year Now. Does The Meds Cause High Blood Pressure?

A MyMyelomaTeam Member asked a question 💭

I have had a stem cell transplant and am presently on Linolidimide as part of my maintenance program.

A MyMyelomaTeam Member

Kyprolis, a protease inhibitor used instead of Valcade is known to cause high blood pressure. Revlimid also lists HBP as a side effect.

posted 4 days ago
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