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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Hyperparathyroidism

Hyperparathyroidism

Does anyone on here or a loved one have this? How does it relate to our particular cancer if at all? I was diagnosed 3 or 4 years ago but got skittish about rush to get surgery. I do know that it was very important to have a surgeon very experienced in the procedure. I just thought I'd ask. I do not think it caused my present diseases but would like more information. Thank You.

A MyMyelomaTeam Member said:

Wow. That is a complex situation. I am glad they have been able to control the IPT levels.

posted 2 days ago

Chemo And BP.

Chemo And BP.

I’ve been in BP meds for the past 20 years. I’ve recently started taking revlimed, Ninlaro and Dex for recently diagnosed MM. has anyone else had their Blood pressure affected by these meds. My pressure goes down so low that I get dizzy and feel awful.

A MyMyelomaTeam Member said:

RJL, glad it’s working for you. That low BP really beats you up. Keep up the good work.

posted 4 days ago

Anyone Been On Revlimid And Dexamthasone 2 Weeks On And Two Weeks Off Because Of Rash And Itchiness

Anyone Been On Revlimid And Dexamthasone 2 Weeks On And Two Weeks Off Because Of Rash And Itchiness

A MyMyelomaTeam Member said:

I was on three weeks on and one week off but experience rash and itch scalp.
Has anyone been on two weeks on and two weeks off or Revlimid on alternate… read more

posted 6 days ago

Is Treatment For MM Needed When In Remission?

Is Treatment For MM Needed When In Remission?

We question whether that is necessary, since she is still weak and dealing with side effects from past treatments, including neuropathy in her feet from the chemo. Blood test is scheduled for mid-Aug., so we are eager to know the options available for my wife if she is still in remission at that time and also any options if the MM is detected in Aug. We are told that her MM is not aggressive.
Thank you very much,
Roy and Sandy

A MyMyelomaTeam Member said:

Thanks for responding. Her glucose level has been fine.Her foot neuropathy is improving as time goes on. Just trying to determine the best way forward… read more

posted 8 days ago

Fungal Pneumonia Preventative

Fungal Pneumonia Preventative

My husband's oncologist prescribed Atovaquone Oral Suspension 1500 mg, for what he said would prevent fungal pneumonia. Has anyone else here had this prescribed? If so, what is your experience. Is this a one-time prescription or something that will be ongoing? There are no refills on it, and he's to take it for 3 weeks.

A MyMyelomaTeam Member said:

I am on 1gm of Acyclovir and been on it for 8 years and glad to be . No shingles for me!

posted 5 days ago

T14 Found In Urine

T14 Found In Urine

Ok so next up on the things that can go wrong with me.
I went to see my Dr Wed to get my results of my MM marker test. Well he said your #are coming down but we found a T14 strain of protein in your urine. It's very rare and you have some rare cell mutations. The chemo I'm giving you is very aggressive but it's not working on this. I have 2 more treatment on this round and then my last 3. I should have been done with chemo the first week in Sept. Now I'm going to have to try something else.
read more

A MyMyelomaTeam Member said:

The Venclexta I take is a pill . I have not heard too many good results on MM with alternative treatment . Get a MM specialist . I NEVER wanted to do… read more

posted 5 days ago

Velcade, Dex & Liver Damage

Velcade, Dex & Liver Damage

My husband is on Velcade and Dexamethasone and up until now has had very few difficulties. However, in recent CMP and Gamma GT tests, the AST and ALT have been high, as was the Gamma GT number. He's being referred to a Hepatologist, but I am wondering if his MM protocol could be causing this. Been a year and a half on this protocol without any problem. Anyone else had any liver problems?

A MyMyelomaTeam Member said:

I can't take ibuprofen unless I eat with it because it makes me sick to my stomach, but my doctor recommended it for occasional use. I agree that you… read more

posted 13 days ago

Looking For Stem Cell Transplant Info

Looking For Stem Cell Transplant Info

Coming to the end of my induction therapy and a stem cell transplant is up next. I will have to travel out of state. Looking for insights - while making arrangements, what should you have considered that you did not? How common is chemo as part of the harvesting phase and was it done inpatient? How badly did it wipe you out at first? How long were you inpatient? How long did you have to stay near the transplant facility? How long did it take for you to start feeling… read more

A MyMyelomaTeam Member said:

Thanks for the hug Donna.

posted 20 days ago
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