Myeloma
Questions + Answers
Has anyone experienced a spike (from 30 to 79) in their ALT (liver function) after being on RVD regimen for 9 weeks?
Has anyone experienced a spike (from 30 to 79) in their ALT (liver function) after being on RVD regimen for 9 weeks?
Doctor reported it to me. He said we would watch it more closely. I think that means testing for it more than once a month. Not sure what will happen if… read more
Has anyone else had a feeling of tightness around the ribcage?
Has anyone else had a feeling of tightness around the ribcage?
Sometimes when I wake up, especially lately, the lower part of my ribs feels so tight, it is like someone tied a belt around my ribs and pulled it as tight as they could. It would s extremely uncomfortable and I have not found a way to relieve it, nor do I know what is causing it. Has anyone else had a similar problem, and if so, what did you do about it?
I was in Iraq for approximately 2 years and Afghanistan for approximately 3 years. Has anyone else in here think that you got it overseas?
I was in Iraq for approximately 2 years and Afghanistan for approximately 3 years. Has anyone else in here think that you got it overseas?
I'm pretty sure that I'm seeing a pattern of military/contractors who have been diagnosed with Multiple Myeloma after serving overseas in these countries. With the air quality and the burn pits I believe that it is possible that is where it was caught (if caught is the right word). So, is anyone else in this group in the same situation, wondering if you got it from Iraq or… read more
Yes, I am probably older but agent orange exposure. Those burn pits cause all sorts of cancers. Go to the VA.
Revlimid
Revlimid
I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options. Just curious… read more
has anyone had experience with CAR-T therapy for MM.?
has anyone had experience with CAR-T therapy for MM.?
As I prepare to head to Moffitt to begin the SCT process, I have read up on immunotherapy and what I have seen about CAR-T sure sounds promising, even for recurring MM. I would love to hear other’# thoughts and especially if anyone has been involved with this treatment.
Jane, Melphalan didn't make my neuropathy worse. Hope it doesn't with you. We are all different
Is there any problem with having 1or 2 alcoholic beverages per day while on Darzalex ?
Is there any problem with having 1or 2 alcoholic beverages per day while on Darzalex ?
Wow EVERY DAY? My dr. Said occasional only and no more that 2 maybe 2 or 3 times a month..Odd how each dr. Has their own rules..Right now I cant even… read more
I'm +16 days after my transplant. Anyone else get tired easily and want to sleep?
I'm +16 days after my transplant. Anyone else get tired easily and want to sleep?
If you are talking a stem cell transplant It was 1.5 years before I was back to normal after my first stem cell transplant but fatigue is guite normal.
Velcade and Cytoxin
Velcade and Cytoxin
I have taken Velcade and Cytoxin in past.What is other's experiences with these drugs,good or bad.Thanks!!!!
Jesusismyboss, Hi, I just wanted to put my two cents in, for what it is worth, about SCT’s. Most doctors are leaning toward doing an early SCT. The… read more
