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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Hello Everyone. Brand New Member As Of Today. I Just Got A Positive M-spike. Number Turns Out To Be Low, Less Than 1.

Hello Everyone. Brand New Member As Of Today. I Just Got A Positive M-spike. Number Turns Out To Be Low, Less Than 1.

Very early in the process for me. Does just having positive results mean that I will eventually have bigger and bigger numbers or issues? I’ll be doing blood work and 24 hour urine analysis soon to see better detail. My doctor (first time to oncologist/hematologist) said I have nothing to worry about. But I can’t help but think it can only continue to progress. Am I overreacting? Or is that exactly how this works?
Thanks

After 22 Years My Husband Is Slowly Coming Out Of Remission. First SCT 1999. Proposing 2nd Stem Cell Transplant? What To Do?

After 22 Years My Husband Is Slowly Coming Out Of Remission. First SCT 1999. Proposing 2nd Stem Cell Transplant? What To Do?

My husband diagnosed with MM 1999 with MM. Had VAD. Kyphoplasty 3 levels then autologous stem cell transplant. All in 1999
In 2015 was started on revlemid for maintenance and did well until this year. M protein levels starting to slowly climb. Switched to daratumumab/velcade//dexamethasone in March and M protein level stable but not decreasing. Specialist wants to repeat autologous stem cell transplant. Would CART T be a better option? Can you do SCT and have CART T later? Can they harvest both… read more

A MyMyelomaTeam Member said:

Welcome Lighthouse 2000. Honestly these are questions for his myeloma Specialist. Maybe get a couple of opinions. He has actually done amazing. Looks like he will have several options including… read more

edited, originally posted 3 days ago

After 22 Years My Husband Is Slowly Coming Out Of Remission. First SCT 1999. Proposing 2nd Stem Cell Transplant? What Are Best Options

After 22 Years My Husband Is Slowly Coming Out Of Remission. First SCT 1999. Proposing 2nd Stem Cell Transplant? What Are Best Options

My husband diagnosed with MM 1999 with MM. Had VAD. Kyphoplasty 3 levels then autologous stem cell transplant. All in 1999
In 2015 was started on revlemid for maintenance and did well until this year. M protein levels starting to slowly climb. Switched to daratumumab/velcade//dexamethasone in March and M protein level stable but not decreasing. Specialist wants to repeat autologous stem cell transplant. Would CART T be a better option? Can you do SCT and have CART T later? Can they harvest both… read more

Anyone Using Valcade Please Tell Me If It Is Safe To Have Unprotected Sex After 48hrs Have Passed.

Anyone Using Valcade Please Tell Me If It Is Safe To Have Unprotected Sex After 48hrs Have Passed.

A MyMyelomaTeam Member said:

Oh yes; everytime a refill is about to be sent to me, the pharmacist goes through all the warnings. Pregnancy is not likely but he has to read off the instructions.

posted 3 days ago

Has Anyone Been Kicked Off Social Security Disability?

Has Anyone Been Kicked Off Social Security Disability?

I'm facing losing my social security disability next month. SSD has sent me three times for medical evaluations and once for a phyc evaluation. They say I'm better and able to return to work without issues. I have five collapsed vertebrates and two fractured ribs, also walk with a cane and have nuerapathy in my hands and feet. The only way I get relief during the day from back pain is to lay down to allow it to relax. How am I to work like that.? Has anyone had to go back to work because of… read more

A MyMyelomaTeam Member said:

revlimid withdrawal? my husband has been off of revlimid because of a surgery for almost 13 days now, will be back on it in 2 more days.....he's been feeling blah, headache, maybe nauseous, just weird… read more

posted 6 days ago

Has Anyone Not Been Able To Collect Enough Cells For An SCT?

Has Anyone Not Been Able To Collect Enough Cells For An SCT?

A MyMyelomaTeam Member said:

This is the second attempt at collection. He had an infusion of cytoxan on 8/27 followed by 8 daily injections of Neupogen. His white cell count was way up and then tanked on Friday 9/3. They… read more

posted 11 days ago

Wondering How Folks Are Making Out With Myeloma And COVID?

Wondering How Folks Are Making Out With Myeloma And COVID?

Was just diagnosed positive and effects have been pretty nasty. Even had the Vaccine.

A MyMyelomaTeam Member said:

A little more info on Regeneron for us. https://www.medscape.com/viewarticle/958251?fbc...

posted 3 days ago
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