I was writing down what Marcia Holman is taking beginning with Centrum Silver Multivitamin, 1000 mg vitamin c, but d, magnesium for leg cramps, Alpha Lipoic Acid 600 mg for peripheral neuropathy, L -Lisine for immune health, but then I somehow lost the rest when writing it down. Could anyone help with what she wrote. I’m also very interested to know what the other team members take & is working… read more
Good morning all. I'm wondering after you had your stem cell Harvest did anyone have a weird like taste in the morning when you woke up for days (mine has only been 4 days). I wake up at night sweating and I have this case I remember having when they were I believe it was when they flushed at the end of harvest or it may be from the catheter. I remember the taste /smell.
Now I wake up in morning headache, nauseous and with this like taste. Wondering if I'm just a weirdo or if anybody else… read more
I was sent to a rheumatologist because I was having a petechiae/purpura rash since march of 2020 with bone pain and low grade fever. Also have severe hip and back pain, neuropathy, terrible headaches, recurrent uti's, fatigue and weakness. My routine labs at my PCP kept coming back relatively normal. My WBC is always elevated. The labs the rheumatologist ran showed elevated proteins, elevated IgA, hypoalbunemia, elevated CRP, elevated kappa light chain and… read more
I looked in my portal and my doctor says maybe mgus. I don’t really have any symptoms. I was there for headaches which seem to be stress. I have inflammation. I’m not anemic yet. But I use to be due to fibroids and I have inflammation that I’ve attributed to my diet. My doctor has put me on antidepressants. I checked my blood test form November and everything was in range. My platelets were 249. I just don’t know what I should be looking for.
I am on Daralex and dexamethasone for maintenance therapy. I ask my doctor about getting the Covid 19 vaccine and was told it may not be as effective because of the maintenance therapy. They did not say I could not get the vaccine, but I should check to see what the CDC guidelines were.
When to the doctor today and was told that part of my blood work came back iga kappa monoclonal detected and I’ve been asked to submit a 24-hour urine test. Does this mean I have cancer? I’ve been googling all day and I can’t think of any other reason or see anything else that could mean. My neurologist says, “I’m 95% you don’t have cancer”, but isn’t that what that means? I’m nervous and any input could help.
The only treatment I’m on is zometa (I’ve read that fatigue can be a side effect of zometa). I’m getting the clear impression from my doctor that the fatigue is either in my head or caused by something other than MM since I’m in remission.