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My IgG level has been consistently low. My doctor wants to start me on an infusion to increase it. Has anyone done this and are there any downsides?
Dr usamani’s team?
I’m at MSK Dr Urvi Shah
For the first time in almost 8 years on Revlimid; I have low platelets. Has anyone been able to raise them up with diet?
2021
Is there a natural way to increase platelet levels?
Folate (vitamin B9)-rich foods such as green leafy vegetables, beans, peanuts, liver, and seafood.
Foods rich in vitamins B-12, C, D, and… read more
What were the procedure for requesting a temporary increase in your military veterans monthly compensation and/or benefits?
Once requested, did you get approval?
If do, how long did it take?!
@A MyMyelomaTeam Member,
What percentage of gene rearrangement is bad on FISH results? My IGH gene rearrangement is 53%. 40% of nuclei indicate t(14;16) with 16q deletion.
I had my set a year or so ago. My process went as follows. They inserted a port type tube in my big artery around my heart. I spent one day having my stem cells harvested. The stem cells were… read more
Is anyone doing the carfilzomib/dexamethasone/daratumumab infusion after other treatments are not responding the myeloma treatments? I have read the effects and want some personal information from those that have or are using this form or infusion.
Thanks,
Midge Geer
I'm on Darzalex, dexamethasone for in office treatment. Also take two Benadryl and two 500m Tylenol before the treatment.
Does anyone here feel a bone marrow transplant is something they don’t feel good about doing. Seems most people have them and as I’m recouping from double hip replacement I’m not able at this point but sooner or later I need to make the decision but everything inside of me says no. Is this God speaking or me. I’ve been praying for the right answer and the doc keeps pushing
I’m sorry Kim, I had a hip replacement in 2014 and I was healthy. Praying for you.
Disease has changed form. Will the same medications be working for the same . Will Darasumab work. Any clinic reasearch or studies on the same. Pls connect to me here or email me on (Email address can only be seen by MyMyelomaTeam users) to help. Need to connect and understand this better.
Oncologist is suggesting the same treatment as Myloema only. We are chemotherapy with Bortidumab and Lipodox and Cyclophosphamide. He is looking to add Dara to the schedule. Just wanted to understand… read more
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