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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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IgG Levels

IgG Levels

My IgG level has been consistently low. My doctor wants to start me on an infusion to increase it. Has anyone done this and are there any downsides?

posted 2 hours ago

I’ve Asked Before But Haven’t Gotten An Answer Has Anyone Used Msk

I’ve Asked Before But Haven’t Gotten An Answer Has Anyone Used Msk

Dr usamani’s team?

posted 4 hours ago
A MyMyelomaTeam Member

I’m at MSK Dr Urvi Shah

posted 4 hours ago

Low Platelets

Low Platelets

For the first time in almost 8 years on Revlimid; I have low platelets. Has anyone been able to raise them up with diet?

posted 5 hours ago
A MyMyelomaTeam Member

2021

Is there a natural way to increase platelet levels?
Folate (vitamin B9)-rich foods such as green leafy vegetables, beans, peanuts, liver, and seafood.
Foods rich in vitamins B-12, C, D, and… read more

posted 1 hour ago

Military Veteran Temporary Compensation:Benefits Increase

Military Veteran Temporary Compensation:Benefits Increase

What were the procedure for requesting a temporary increase in your military veterans monthly compensation and/or benefits?

Once requested, did you get approval?

If do, how long did it take?!

posted 11 hours ago

Does Anyone Have T(14;16) With 16q Deletion Like I Do?

Does Anyone Have T(14;16) With 16q Deletion Like I Do?

posted 13 hours ago
A MyMyelomaTeam Member

@A MyMyelomaTeam Member,
What percentage of gene rearrangement is bad on FISH results? My IGH gene rearrangement is 53%. 40% of nuclei indicate t(14;16) with 16q deletion.

posted 3 hours ago

I Am Approaching Time For My Stem Cell Transplant…would Love To Hear How That Went From Anyone Who Has Had One.

I Am Approaching Time For My Stem Cell Transplant…would Love To Hear How That Went From Anyone Who Has Had One.

posted 1 day ago
A MyMyelomaTeam Member

I had my set a year or so ago. My process went as follows. They inserted a port type tube in my big artery around my heart. I spent one day having my stem cells harvested. The stem cells were… read more

posted 13 hours ago

Carfilzomib/dexamethasone/daratumumab

Carfilzomib/dexamethasone/daratumumab

Is anyone doing the carfilzomib/dexamethasone/daratumumab infusion after other treatments are not responding the myeloma treatments? I have read the effects and want some personal information from those that have or are using this form or infusion.
Thanks,
Midge Geer

posted 2 days ago
A MyMyelomaTeam Member

I'm on Darzalex, dexamethasone for in office treatment. Also take two Benadryl and two 500m Tylenol before the treatment.

posted 2 days ago

Bmt

Bmt

Does anyone here feel a bone marrow transplant is something they don’t feel good about doing. Seems most people have them and as I’m recouping from double hip replacement I’m not able at this point but sooner or later I need to make the decision but everything inside of me says no. Is this God speaking or me. I’ve been praying for the right answer and the doc keeps pushing

posted 2 days ago
A MyMyelomaTeam Member

I’m sorry Kim, I had a hip replacement in 2014 and I was healthy. Praying for you.

posted 3 hours ago

Myloema Changes Form To EMM Plasmacytoma

Myloema Changes Form To EMM Plasmacytoma

Disease has changed form. Will the same medications be working for the same . Will Darasumab work. Any clinic reasearch or studies on the same. Pls connect to me here or email me on (Email address can only be seen by MyMyelomaTeam users) to help. Need to connect and understand this better.

posted 2 days ago
A MyMyelomaTeam Member

Oncologist is suggesting the same treatment as Myloema only. We are chemotherapy with Bortidumab and Lipodox and Cyclophosphamide. He is looking to add Dara to the schedule. Just wanted to understand… read more

posted 2 days ago
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