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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Who Has Stopped Maintenance Meds Like Revlimid 2 Years After SCT And How Are You Doing
A MyMyelomaTeam Member asked a question 💭
posted 1 hour ago
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Do Lesions Heal Up Once You Go Into Remission?
A MyMyelomaTeam Member asked a question 💭

When they did all the testing that I had so many lesions on my chest and my skull that they couldn’t count them. I never remember to ask if the lesions heal

posted 4 hours ago
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A MyMyelomaTeam Member

When I was diagnosed in 2018, my Oncologist told me that I had MM since 2012. I had a pretty serious fall a year before ( 2011 ); related?? 🤔

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Has Anyone Done CAR-T Cell Treatment? Was It Successful? Any Side Effects? I Start Mine (zevor-cell Clinical Trial) In 2 Weeks
A MyMyelomaTeam Member asked a question 💭
posted 10 hours ago
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I’ve Been Put On 10mg Revlimid. Has Anyone Else Been Put On These, If So How Have People Found Them?
A MyMyelomaTeam Member asked a question 💭
posted 2 days ago
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A MyMyelomaTeam Member

My husband is on 10 mg of Revlimid since last fall. So far he is doing good. Tired & his feet & legs hurt but I think that is more from the chemo last year.

posted 15 hours ago
Managing Symptoms
A MyMyelomaTeam Member asked a question 💭

Hi...does anyone else struggle with the following symptoms? Neck and low back pain, itchy skin, blisters on fingertips (unhealed after 11 mos), muscle spasms, restless leg, difficulty sleeping, neuropathy, brain fog, tmj, and migraines? Suggestions to help me? Please!!

posted 2 days ago
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A MyMyelomaTeam Member

I did not mention Nutritional yeast which helps with neuropathy.
Paula

posted 1 day ago
What Are Some Remedies For Peripheral Neuropathy?
A MyMyelomaTeam Member asked a question 💭

I began feeling peripheral neuropathy shortly after my last chemotherapy session several months ago and it has only gotten worse. One of my life's passion has been playing the guitar and that is no longer possible. It saddens me and I was told that this condition may never go away. I've tried accupuncture, electric treatment, massage, qigong, yoga, cranberry juice and tart cherry juice. Any more suggestions?

posted 2 days ago
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A MyMyelomaTeam Member

Thanks for the answer Paula. I'll look into the nutritional yeast. I sure as heck don't plan on being on drugs the rest of my life. 😀

posted 9 hours ago
C-Pap And High Risk Of Infection
A MyMyelomaTeam Member asked a question 💭

I use a C-Pap machine and clean it everyday but worry about lung infections. I have a low white blood cell count. Any recommendations?

posted 3 days ago
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A MyMyelomaTeam Member

Neither my husband or I have a c-pap machine, so I don't know much about them,but I have been seeing ads on the tv for a new kind of machine that is not so restricting, or intense.

posted 16 hours ago
Has Anyone Else Developed Cavities Due To Your Mouth Being Dry All The Time Because Of The Medications?
A MyMyelomaTeam Member asked a question 💭

After discussing the X-rays with my dentist, he explained that the medications make our mouths stay dry and sets us up for developing cavities because the saliva that usually helps wash the bacteria away is not there. I wish someone had mentioned this so I could try to prevent what has happened.

posted 3 days ago
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A MyMyelomaTeam Member

My mouth was terribly dry the first year I was diagnosed. It was really miserable. I was drinking water constantly. I think the high dose steriods had something to do with it? It's better now.

posted 2 days ago
How Has Velcade Worked For Multiple Myeloma After A Stem Cell Transplant?
A MyMyelomaTeam Member asked a question 💭
posted 3 days ago
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A MyMyelomaTeam Member

Can't say after transplant but it's a disaster for Peripheral Neuropathy. It comes on soon after starting it and it doesn't go away when you stop the Velcade.

posted 21 hours ago
How Has Velcade Worked For Multiple Myeloma After A Stem Cell Transplant?
A MyMyelomaTeam Member asked a question 💭
posted 3 days ago
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