Myeloma Questions and Answers | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
2901 questions
Revlimid
A MyMyelomaTeam Member asked a question 💭

I have blowouts within a hour of taking my meds it last for at least for days. You never no when it's going to happen. We alternate between OTC and prescribed diarrhea medication doesn't matter taking up to 7 tabs per day.The blowouts are so bad it's in my lap has a gross smelling. I want to know what else might help avoid this. The clinic has given me meds for it too unfortunately it didn't help either. Sometimes it effects me at both ends dry heaves (hard ones that broke my ribs). I want to… read more

A MyMyelomaTeam Member

I’m so sorry you are having this reaction. Have you tried a lower dose?

posted 7 hours ago
I Am Affected With Weakness In My Knees. Looking For Help.
A MyMyelomaTeam Member asked a question 💭
Is IVIG The Same As Polygam Which My Doctor Has Ordered For My Immune System.
A MyMyelomaTeam Member asked a question 💭

i have a low CD count

My Wife Has MM Kappa Stage 1. She Really Doesn't Want To Do Chemo. Is Nutrition And Immunotherapy And Option W/o Chemo?
A MyMyelomaTeam Member asked a question 💭

She is 57 and broke a hip caused by MM. All of her numbers were good except kappa M protein. Good health otherwise and active.

A MyMyelomaTeam Member

I have not had chemo. My dr has me on immunotherapy drugs and I am doing fine. Hopefully she will do as well. With this disease she really should see someone who specializes in MM as a normal… read more

posted 1 day ago
Any Truth To MM Chemo Therapy And An Unusual Increase In Sexual Arrosal
A MyMyelomaTeam Member asked a question 💭

currebtlt taking Revilimid ans Darxalex FastPro shots

I've Has MM For 8 Years. When I Wake In The Morning Feel Achy, Until I Get Up And Move Around. Anyone Else Have This Experience?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

If you have had it for 8 years and you are a bit achy, good for you. I not only ache but hurt where my cancer is. Because it affects your bones and spine so much, it pretty much has done a number in… read more

posted 1 day ago
My Husband Is Starting To Experience Sharp Pains In His Right Kidney Area. Any Thoughts?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Drink lots of water with a squeeze of lemon. Talk you your doctor. You don’t want to end up in the ER with kidney failure. He could be passing a kidney stone. The water will help. Best to get checked… read more

posted 7 hours ago
I Have Muscle Tenderness In My Leg Muscles No Where Else. Is This An Early Symptom? No Bone Pain At This Point I Moved To 20% See More
A MyMyelomaTeam Member asked a question 💭

I am at the beginning diagnosis of Myleoma. Nothing on PET scan waiting for and MRI. I had a severe reaction to the COVID vaccine in 2020. I developed muscle tenderness after. I am on XOLAIR 300mg to manage the chronic symptoms since as well as claritin and pepcid 40mg.
Lately it seems more intense than it was 3 months ago. The tenderness is only to touch. Just researching because I am not having any glaring Myleoma symptoms at this point.

I've Had One Stem Cell Collection, Did Not Collect Enough And Will Need Another. Anyone Had This Experience? Any Advice?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Brenda, I had 2 separate stem cell collections done. Collected enough to do 2 transplants if needed. I didn't have any problems with either collection process. In June/2023 I had stem cell transplant… read more

posted 21 hours ago
Most Of MM Patients Are Diabetic Also.
A MyMyelomaTeam Member asked a question 💭

Eat well means fruits, carbohydrates. But most of MM patients are diabetic also. Sugar level may go to alarming levels because of chemo and other medicines which are steroids viz. Dexa. Foods, fruits high in pottasium may be harmful to those who have kidney problems. So selecting low pottasium fruits also helps.

A MyMyelomaTeam Member

nope

posted 1 day ago
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of use and Privacy policy.
Already a Member? Log in