Myeloma

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8 medium

Norpramin

Norpramin

If I take Zoloft for anxiety, should I ask my doctor about taking this drug?

2 mini
A MyMyelomaTeam Member said:

I was put on it and it did not mix well with my chemo..I nearly lost it..I would tell them every drug you take..Needless to say i no longer take… read more

posted about 21 hours ago
1 medium

I will start Velcade soon. What can i expect?

I will start Velcade soon. What can i expect?

I am close to 94 yrs and will start Velcade next week. Where is it injected and what are the side affects?

6 mini
A MyMyelomaTeam Member said:

I had neuropathy too from Velcade but thankfully it left during my rest week so was gone when my next cycle started. I also did not get nausea or… read more

posted about 21 hours ago
2 medium

Does anyone know if Mayo Clinic in Jacksonville, Fl have cots or some type of small sleeping bed so you can stay with the patient 24/7

Does anyone know if Mayo Clinic in Jacksonville, Fl have cots or some type of small sleeping bed so you can stay with the patient 24/7

Does anyone know if Mayo Clinic Jacksonville FL has a cot or some type of small bed in the room with the patient so you can stay with the patient 24/7?

7 mini
A MyMyelomaTeam Member said:

Eric, Ask they Nurses! They will know! Love, Marcia

posted 4 days ago
6 medium

Does anyone have Marketplace ACA insurance

Does anyone have Marketplace ACA insurance

I have ACA insurance and on June 1st I was dropped. My premium was not paid and bcbst dropped me. Funny thing is no one seems to no why my premium was not paid. I’ve missed 3 months of all my healthcare visits and medications. I don’t have a thyroid so now I have no Synthroid. Same with my Bipolar 2 meds. My Hematologist/Oncologist is having a fit becsuse I will have missed 2 rounds lab work and my mental health Drs are the same. they call everyday to check on me.
read more

8 mini
A MyMyelomaTeam Member said:

Not sure if I said hello Pam, I always thought Pamala was a pretty name. Thank you for adding me.

posted 3 days ago
4 medium

I was just diagnosed in Feb. 2019. The Dr, is just doing bloodwork now. I don't know what to expect? Very nervous and scary!

I was just diagnosed in Feb. 2019. The Dr, is just doing bloodwork now. I don't know what to expect? Very nervous and scary!

What are usually the first symptoms?

4 mini
A MyMyelomaTeam Member said:

Lillian, are they doing bone scans as well? My MM is nonsecretory and doesn’t show up on blood tests, just in the bone marrow biopsy and PET scans. You… read more

posted 11 days ago
4 medium

Does a bile acid sequestrant work for you?

Does a bile acid sequestrant work for you?

Has anyone been put on a bile acid sequestrant to control Revlimid diarrhea? What was the dose? Did it work? Any side effects?

4 mini
A MyMyelomaTeam Member said:

Melody. I have never heard that. How much? 8 oz or should it be more.

posted 4 days ago
6 medium

Does anyone have a high risk mutation that cause the cancer to come out of remission much quicker?

Does anyone have a high risk mutation that cause the cancer to come out of remission much quicker?

I was just told that I have a high risk mutation known as translocation 1416 that causes the cancer to come out of remission quicker. I thought I was getting some good news about it being stage 2 but unfortunately the high risk mutation has a huge effect on everything apparently.

8 mini
A MyMyelomaTeam Member said:

I also have trisomy 9 and translocation of 11:14. I don't panic as bad as I use to. You for sure need a world class myeloma specialist when you have… read more

edited, originally posted 29 days ago
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