Myeloma

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5 medium

Has anyone else had a feeling of tightness around the ribcage?

Has anyone else had a feeling of tightness around the ribcage?

Sometimes when I wake up, especially lately, the lower part of my ribs feels so tight, it is like someone tied a belt around my ribs and pulled it as tight as they could. It would s extremely uncomfortable and I have not found a way to relieve it, nor do I know what is causing it. Has anyone else had a similar problem, and if so, what did you do about it?

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A MyMyelomaTeam Member said:

It is probably muscle related. Have you discussed it with your doctor. I have not had that type of feeling but I have pulled muscles in my rib area and… read more

posted about 9 hours ago
2 medium

I was in Iraq for approximately 2 years and Afghanistan for approximately 3 years. Has anyone else in here think that you got it overseas?

I was in Iraq for approximately 2 years and Afghanistan for approximately 3 years. Has anyone else in here think that you got it overseas?

I'm pretty sure that I'm seeing a pattern of military/contractors who have been diagnosed with Multiple Myeloma after serving overseas in these countries. With the air quality and the burn pits I believe that it is possible that is where it was caught (if caught is the right word). So, is anyone else in this group in the same situation, wondering if you got it from Iraq or… read more

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A MyMyelomaTeam Member said:

Yes, I am probably older but agent orange exposure. Those burn pits cause all sorts of cancers. Go to the VA.

posted 1 day ago
6 medium

Revlimid

Revlimid

I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options. Just curious… read more

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A MyMyelomaTeam Member said:

I hope Revlimid proofs to be as effective long term for you as it’s been for me. What worries me is being lulled into a false sense of security though.… read more

posted about 5 hours ago
5 medium

has anyone had experience with CAR-T therapy for MM.?

has anyone had experience with CAR-T therapy for MM.?

As I prepare to head to Moffitt to begin the SCT process, I have read up on immunotherapy and what I have seen about CAR-T sure sounds promising, even for recurring MM. I would love to hear other’# thoughts and especially if anyone has been involved with this treatment.

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A MyMyelomaTeam Member said:

Jane, Melphalan didn't make my neuropathy worse. Hope it doesn't with you. We are all different

posted 3 days ago
3 medium

Is there any problem with having 1or 2 alcoholic beverages per day while on Darzalex ?

Is there any problem with having 1or 2 alcoholic beverages per day while on Darzalex ?

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A MyMyelomaTeam Member said:

Wow EVERY DAY? My dr. Said occasional only and no more that 2 maybe 2 or 3 times a month..Odd how each dr. Has their own rules..Right now I cant even… read more

posted 4 days ago
1 medium

I'm +16 days after my transplant. Anyone else get tired easily and want to sleep?

I'm +16 days after my transplant. Anyone else get tired easily and want to sleep?

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A MyMyelomaTeam Member said:

If you are talking a stem cell transplant It was 1.5 years before I was back to normal after my first stem cell transplant but fatigue is guite normal.

posted 6 days ago
5 medium

Velcade and Cytoxin

Velcade and Cytoxin

I have taken Velcade and Cytoxin in past.What is other's experiences with these drugs,good or bad.Thanks!!!!

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A MyMyelomaTeam Member said:

Jesusismyboss, Hi, I just wanted to put my two cents in, for what it is worth, about SCT’s. Most doctors are leaning toward doing an early SCT. The… read more

posted 16 days ago
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