Myeloma

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4 medium

I need a tooth pulled. How bad is that for me to do?

I need a tooth pulled. How bad is that for me to do?

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A MyMyelomaTeam Member said:

I think your oncologist will need to be notified by the dentist re procedure.I believe you might not be able to take zometa till it's done. It affects… read more

posted about 2 hours ago
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Mount Sinai doctor

Mount Sinai doctor

My doctor at Mount Sinai has now retired and I need a new doctor wondering if anybody on here uses Mount Sinai Hospital and could refer a doctor.

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A MyMyelomaTeam Member said:

No

posted 4 days ago
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Profile Photo instructions

Profile Photo instructions

How do I upload a profile picture?

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A MyMyelomaTeam Member said:

Click the on the .O

posted 9 days ago
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Has anyone been on Daratumumab? If so, can you give me some feedback on your experience with it,please.

Has anyone been on Daratumumab? If so, can you give me some feedback on your experience with it,please.

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A MyMyelomaTeam Member said:

The first infusion in all day or they can split it up over two consecutive days. After 16 doses he gets to go to monthly which is not bad at all. I take… read more

edited, originally posted 8 days ago
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Does anyone get muscle cramps, pulled muscles, spasms or anything like that through the night?

Does anyone get muscle cramps, pulled muscles, spasms or anything like that through the night?

I get that every night, what can I do to prevent it? I have multiple myeloma and I also have a back condition called spondylolisthesis which is bone slipping on bone in my lower back that is pinching nerves causing chronic pain 24/7. This is driving me crazy. Any information will be helpful. Thank You & God Bless You!

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A MyMyelomaTeam Member said:

I was worse on Revlimed..seems to be calming down plus at night i take two muscle relaxers before bed..Seems to be working..fingers crossed..

posted about 20 hours ago
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CBD Oil and helping Neuropathy

CBD Oil and helping Neuropathy

Many have mentioned CBD oil for the severe neuropathy. Due to what I believe is the shingles still as I still have sores not completely gone my feet neuropathy is almost to point of wheelchair. It doesn't matter if I sit all day, pain is the same. My feet become candy apple red, throb, burn, tingle and hurt so badly. I have asked so many times and the only cream they seem to prescribe is Voltaren which does nothing. What works best putting the oil under your tongue the twice a day… read more

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A MyMyelomaTeam Member said:

A local dispensary in Sacramento. They have a website. They are called Hugs, Sacramento

posted 8 days ago
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Anyone have a wheat intolerance?

Anyone have a wheat intolerance?

My diet was changed recently when I went to see a doctor about menopause and chemo. Part of my transplant stuff. She had me switch to all whole wheat stuff and lots of vegetables since I am fat and the way I carry my weight. Needless to say, I have been so sick every since.
I finished with chemo and thought for sure I would start feeling better. Not the case. I'm sicker now than I ever was on chemo.
My joints and calves hurt so bad it's hard to walk and hurts to touch. The stomach… read more

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A MyMyelomaTeam Member said:

I too lost about 35 pounds after transplant but gained it back about 6 months later. My local Onc wants me to lose the weight again. Good luck

posted 13 days ago
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