Quick Links
Resources
About MyMyelomaTeam
Powered By
I was taken off ninlaro 2 yrs ago. This week I had my first M spike since transplant (2015). Is it likely that I will be put back on ninlaro?
That’s a good question for your doctor. You have to get control of your myeloma so there’s going to be an answer for sure. Best of wishes you get in remission again soon!
Just got my second set of labs back after my SCT. The first (4 months after it) showed a monoclonal protein in the gamma region. My doc reminded me that this disease is never gone, it comes back. I just started back with dara and he assured me it wasn’t a false positive with no additional testing done. He reminded me my remission would be short b/c I’m high risk. Well, it didn’t show in my new labs. Still no M spike. I am so happy the relapse hasn’t started yet. I didn’t realize how worried I… read more
Myeloma is a chronic disease. I tell myself not to worry about the labs. It’s just some number. But you worry. Absolutely normal. I have no idea there is anything you can do to control the numbers… read more
My good friend Mike who also has MM is having a titanium rod inserted in his femur which has been destroyed by the cancer.
I have a parathyroid that had an incredible work ethic. One of it's nodules decided to work overtime and did a dang fine job of draining my skeletal system of bone density. This was like 10 to 15 years go and I underwent surgery to remove the nodule with the adenoma.
My endocrinologist wanted to put me on therapy to strengthen my skeletal system. I have forgotten the name of the medicine but remember that it was a black label medicine. I passed since I am male and with Testosterone was… read more
https://x.com/makismd/status/178346769961337694...
Something I might check with doctor on- but I did just read that 1-3 kiwi a day could help fight cell damage
Wow that’s awfully complicated just ask a question and see what answers you get and just play on this site and you will figure it out over time.
Multiple myeloma for the last 9 years and have never been as tired as I have been for the last two weeks!
I have Stage 1 multiple myeloma. I started treatment in January because of proteins in my urine. I am on Velcade, Revlimid and dexamethasone. I am on my 4th cycle. My understanding is that Revlimid will suppress stem cell production. So if down the road I may want a stem cell transplant my maintenance program would be the Velcade. I think the Revlimid might be a better option to for remission. I am wondering what others have found with your treatments.
It is my understanding that remission is based on lab results and how many MM cells are found in your bone marrow biopsy (BMB). I had two BMBs before I was deemed "in remission" six months after my… read more
Yes, I have had a problem with this too. It can start affecting my balance. I wish I could find a home remedy that works but so far I haven't.
Continue with Facebook
Sign up with your email
Your privacy is our priority. By continuing, you accept our
Terms of use, and our
Health Data and
Privacy policies.
