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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
4051 questions

If You Were A Hematologist/Oncologist Who Specializes In MM, What Would You Do?

A MyMyelomaTeam Member asked a question 💭

Would you only offer them treatment, which in some cases helps, and others affects quality of life, but would you also have your patients talk to a Naturopath? It seems diet, supplements and exercise really make a difference.

A MyMyelomaTeam Member

Hi Paula
That’s a great question! If I were an oncologist, or hematologist, I would definitely recommend the naturopathic approach that you mentioned in addition to the chemotherapeutic approach… read more

posted 2 hours ago

What Are Your Top Tips For Dealing With Myeloma In The Heat?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I go out early in the morning. If I am out in the heat I sweat so much I am drenched and my hair is dripping

posted 1 hour ago

How To Help My Husband To Eat.

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Try feeding him! ❤️🤗😘

posted 2 hours ago

How To Delete Account

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

To delete your account on MyHealthTeam, follow these steps:

1. Select the menu icon in the upper left corner
2. Go to 'Settings' then 'Account Settings'.
3. Towards the bottom, select 'Deactivate My… read more

posted 24 hours ago

Is Chemo A Mosquito Repellant?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

We live in Florida, the mosquitoes are big and bite. I go outside with the kids and grandson they all get eaten alive as they say scratching and spraying. me not a single bite...

posted 2 days ago

I Have Smoldering Myeloma. I Was Told I Have A 26% Chance Of Progressing To Muliple In 2 Years. Any Advice To Help Stop The Progression?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Sorry to tell you this, but there is no "stopping" progression without starting treatment. Make sure you are seeing a Myeloma specialist, even if as a second opinion to work with your local… read more

posted 2 days ago

I Would Love To Hear From Someone Who Had A Autologous Stem Cell Transplant. Thank You!

A MyMyelomaTeam Member asked a question 💭

Especially if you're experiencing loss of appetite, fatigue, etc.

A MyMyelomaTeam Member

Thank you, Tricia, for sharing your experience. My husband is having a hard time with fatigue, appetite and balance. It's been almost 6 months. We're praying it will get better. Thank you again!

posted 7 hours ago

Hi. I'm On Recormin For Low HB (thalassemia Related) For Over A Year Now. Does The Meds Cause High Blood Pressure?

A MyMyelomaTeam Member asked a question 💭

I have had a stem cell transplant and am presently on Linolidimide as part of my maintenance program.

A MyMyelomaTeam Member

Kyprolis, a protease inhibitor used instead of Valcade is known to cause high blood pressure. Revlimid also lists HBP as a side effect.

posted 2 days ago

I Have Been Advised That If I Have Private Insurance I MUST It As NHS Will Not Pay. There Are Medications Only Available Privately?

A MyMyelomaTeam Member asked a question 💭

Light Chain Myeloma diagnosed 4.5 years

A MyMyelomaTeam Member

As you are in the UK, this will have to addressed by your health care team.

posted 2 days ago

When You Get A Blood Test And They Report Your WBC, Does That Include The Non-functioning Cancer Cells?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

No

posted 2 days ago
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