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Fatigue

Fatigue

I am 5 months post transplant. It was successful and I’m told I’m in remission. On a 2 year maintenance program. I have felt pretty good but lately I’m feeling more fatigued. Is this normal? Will it ebb and flow? As a very previously healthy and active person, I find this discouraging. The Lord is my strength and I know He’s in control. Also, I’ve lost 18 pounds through this ordeal and only gained 3 back in 5 months. I thought it might be encouraging to hear someone else’s thoughts/experiences… read more

A MyMyelomaTeam Member said:

Oh yes fatigue is very common! And only 5 months after sct is early. I am on Revlimid and it causes fatigue too. I try to stay active, it helps me!!
Take care! 😊

posted 1 day ago

No Other Than A Infected Jaw

No Other Than A Infected Jaw

A MyMyelomaTeam Member said:

Marcia. It appears a nick while shaving caused the abscess. Saw the doc. I am on Bactrin antibiotic.Just started it yesterday. Hurts like hell at times but Ibuprofen eases the pain

Thank you for… read more

posted 3 days ago

Bone Pain

Bone Pain

Hey everyone. I will be starting Neupogen soon. Does anyone have recommendations for addressing the bone pain that comes with it in addition to taking Claritin? Thank you

A MyMyelomaTeam Member said:

KurtKosma, I had severe pain from Nuprigen. I even ended up in the hospital from it for pain management - Dilauded. Talk with your doctor! There maybe another medication that doesn’t cause severe… read more

posted 3 days ago

Just Received Antibody Level Results From The Lls.org Study

Just Received Antibody Level Results From The Lls.org Study

Just received antibody level results from the lls.org study, (third test).

RECORD OF TESTS:

3 months after the 2 initial Pfizer vaccine shots 27.8 U/mL
1 month after the 3rd Pfizer vaccine shot 1112 U/mL
5 months after the 3rd Pfizer vaccine shot 63.2 U/mL

Very disappointing results, will get a fourth Pfizer vaccine shot in a couple of weeks and then another antibody test. You kind of feel like you’re on a hamster wheel, getting a little battle weary.

A MyMyelomaTeam Member said:

Pre 4 th blood draw- 440 - not great as down from 909 but not as low as I was after 2 Pfizer- averaged in mid 30’s with them. 4 th will be moderna- same as third.

posted 1 day ago

New Covid Vaccine

New Covid Vaccine

So today i went for treatment and my Dr asked me why i jad to cancel my last treatment appointment and my appointment down in NYC for my BMB, PET scan, snd and blood work up. I told her i was again exposed to covid. And because my vaccines did not take I am unvaccinated
She told me there is a new vaccine just approved two to three days ago for people like me that the vaccine did not take
Wondering has anyone heard of this?
I had to give blood again. To make sure that i still have no… read more

A MyMyelomaTeam Member said:

No side effects. 👍

posted 10 days ago

Is There Ever A Time You Become Cured Of Multiple Myeloma.

Is There Ever A Time You Become Cured Of Multiple Myeloma.

I had a stem cell transplant in 2010 for sage 2 multiple myeloma. I am checked every 6 months and numbers are always good. I have read and been told that you are never cured but in remission. Is there any length of being clear that you are considered cured.

A MyMyelomaTeam Member said:

Angela, unfortunately no. But I hope you are one of the few that never have a recurrence🙏💕 Keep exercising and eating right. Keep up with labs and other cancer screenings. 🤞

posted 12 days ago

Neuropathy Issues

Neuropathy Issues

Happy Friday Team
Does anyone feel the numbness all day? My doctors have me taking Lyrica 3 times a day and Cymbalta at night. I have it in my lower feet. At night when it's time for bed the numbness is very intense it's hard to fall asleep some nights.

A MyMyelomaTeam Member said:

DebraDardenMcDow, Hi, I have had bad Neuropathy for years and I have slowly increased my Gabapentin to 1,800 mg. I take 1 in am, two after dinner and 3 at night. It is finally under control. I… read more

posted 12 days ago

Diagnostic

Diagnostic

Hello I'm Michelle I'm new here, I have a few questions for you warriors! After having several fractures over last 3 years my Rheumatologist sent me for an endocrinologist referral. Her labs showed some abnormal values in protein area. The mgus showed IgG lambda with no values. Also the single urine specimen was negative she said.

I asked for a hematologist referral just same, which I am waiting for.

What are some indicatorss that you may have had health wise, aside from fractures?

read more

A MyMyelomaTeam Member said:

Thank you for sharing this. God bless you both. Michelle

posted 18 days ago
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