As a retired physician, I hypothesize that a cause for multiple myeloma is long term exposure to your immune system by a never changing bacteria or virus. The most likely source for such a bacteria or virus is a root canal or shingles. Bacteria can multiply and divide without exposure to plasma cells in the tubules of a dead tooth. Shingles virus hides in the spine. The never changing bacteria from the dead tooth… read more
I am waiting to see a specialist. I need to know what symptoms are common with MM besides the back pain and fatigue?
I am looking for trials involving Tcell treatments in canada. Does anyone have any contact info for this? I've been through one course of chemo and stem cell recently and currently in remission. Living on the west coast of BC. thanks
Are there any members of this group that are or have been treated at University of Kansas Medical Center or Saint Luke's Hospital in Kansas City? I would just like to compare experiences and connect with those nearby.
Newly diagnosed SMM and after all test results I just had my 1st meeting with specialist. As moderate risk and no symptoms with M spike 2.3 Kappa 2.0 IgG 20-30% plasma, he prescribed Zometa for my osteoporosis. He said that Revlimid may possibly slow SMM progression. However, with my mother dying from treatment induced AML following what appeared to be successful treatment of NHL, I am not a safe candidate for Revlimid due to its association with leukemia. Is this a typical… read more
I am about to start my first RVD cycle next week. I am 48 years old and have never been able to swallow pills. It's all in my head. Through the years I've gotten myself to be able to swallow very small pills. But anything the size of an Advil or larger is a no go. So my 25mg Revlimid came this week and it is a pretty large capsule. It has warnings all over it not to bite, chew or break it. So the question is ....