Myeloma
Questions + Answers
If you have multiple myeloma, have you had a root canal or shingles. I need both yes and no answers
If you have multiple myeloma, have you had a root canal or shingles. I need both yes and no answers
As a retired physician, I hypothesize that a cause for multiple myeloma is long term exposure to your immune system by a never changing bacteria or virus. The most likely source for such a bacteria or virus is a root canal or shingles. Bacteria can multiply and divide without exposure to plasma cells in the tubules of a dead tooth. Shingles virus hides in the spine. The never changing bacteria from the dead tooth… read more
What are the symptoms besides back pain?
What are the symptoms besides back pain?
I am waiting to see a specialist. I need to know what symptoms are common with MM besides the back pain and fatigue?
If you do a bone marrow transplant, do you still need to take Revlimid?
If you do a bone marrow transplant, do you still need to take Revlimid?
Clinical trials
Clinical trials
I am looking for trials involving Tcell treatments in canada. Does anyone have any contact info for this? I've been through one course of chemo and stem cell recently and currently in remission. Living on the west coast of BC. thanks
Karen they do a lot of clinical trials in Edmonton . I am not sure if Tcell for myeloma is on the list. I watched a webinar last week from Vancouver. It… read more
KU Medical Center
KU Medical Center
Are there any members of this group that are or have been treated at University of Kansas Medical Center or Saint Luke's Hospital in Kansas City? I would just like to compare experiences and connect with those nearby.
Revlimid association with leukemia?
Revlimid association with leukemia?
Newly diagnosed SMM and after all test results I just had my 1st meeting with specialist. As moderate risk and no symptoms with M spike 2.3 Kappa 2.0 IgG 20-30% plasma, he prescribed Zometa for my osteoporosis. He said that Revlimid may possibly slow SMM progression. However, with my mother dying from treatment induced AML following what appeared to be successful treatment of NHL, I am not a safe candidate for Revlimid due to its association with leukemia. Is this a typical… read more
Yes it is the new way to go. I believe, could change tomorrow. They have Started treating SMM Just Recently.
Do not open revlimmed. Call the… read more
Swallowing pills
Swallowing pills
I am about to start my first RVD cycle next week. I am 48 years old and have never been able to swallow pills. It's all in my head. Through the years I've gotten myself to be able to swallow very small pills. But anything the size of an Advil or larger is a no go. So my 25mg Revlimid came this week and it is a pretty large capsule. It has warnings all over it not to bite, chew or break it. So the question is ....
What happens if you bite, chew or break a revlimid capsule? It may be the only way… read more
From what I understand capsules have tiny pills in them that are timed to release at certain prescribed intervals, so if you break the capsule before… read more
