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What Vitamins Does Everyone Take? I Have Peripheral Neuropathy In Addition To Mm. Marcia Holman, What Do You Take?

What Vitamins Does Everyone Take? I Have Peripheral Neuropathy In Addition To Mm. Marcia Holman, What Do You Take?

I was writing down what Marcia Holman is taking beginning with Centrum Silver Multivitamin, 1000 mg vitamin c, but d, magnesium for leg cramps, Alpha Lipoic Acid 600 mg for peripheral neuropathy, L -Lisine for immune health, but then I somehow lost the rest when writing it down. Could anyone help with what she wrote. I’m also very interested to know what the other team members take & is working… read more

A MyMyelomaTeam Member said:

Hi Grace. I just read an article on nutrition and neuropathy. They stated that there are 7 nutrients that have been shown to provide relief and protect… read more

posted 29 minutes ago

After Stem Cell Harvest

After Stem Cell Harvest

Good morning all. I'm wondering after you had your stem cell Harvest did anyone have a weird like taste in the morning when you woke up for days (mine has only been 4 days). I wake up at night sweating and I have this case I remember having when they were I believe it was when they flushed at the end of harvest or it may be from the catheter. I remember the taste /smell.
Now I wake up in morning headache, nauseous and with this like taste. Wondering if I'm just a weirdo or if anybody else… read more

A MyMyelomaTeam Member said:

I also had a easy harvest.

posted about 2 hours ago

Not Officially Diagnosed...but Scared

Not Officially Diagnosed...but Scared

I was sent to a rheumatologist because I was having a petechiae/purpura rash since march of 2020 with bone pain and low grade fever. Also have severe hip and back pain, neuropathy, terrible headaches, recurrent uti's, fatigue and weakness. My routine labs at my PCP kept coming back relatively normal. My WBC is always elevated. The labs the rheumatologist ran showed elevated proteins, elevated IgA, hypoalbunemia, elevated CRP, elevated kappa light chain and… read more

A MyMyelomaTeam Member said:

Thank you! I'm going to call UAMS today and see about getting an appt there. It's only about 2 1/2 hrs away. That's the closest myeloma specialist I… read more

posted about 8 hours ago

Is There Any MGUS Symptoms?

Is There Any MGUS Symptoms?

I looked in my portal and my doctor says maybe mgus. I don’t really have any symptoms. I was there for headaches which seem to be stress. I have inflammation. I’m not anemic yet. But I use to be due to fibroids and I have inflammation that I’ve attributed to my diet. My doctor has put me on antidepressants. I checked my blood test form November and everything was in range. My platelets were 249. I just don’t know what I should be looking for.

A MyMyelomaTeam Member said:

Yea it was found accidentally, some iga kappa protein, in my blood test. So now I’m taking a urine test.

posted 1 day ago

Does Your Doctor Advise Anyone Of Us To Get Covid Vaccine

Does Your Doctor Advise Anyone Of Us To Get Covid Vaccine

A MyMyelomaTeam Member said:

We could just get our antibodies drawn to check our levels a few weeks after we get the shots. It's a simple blood test

posted about 7 hours ago

Can People With Multiple Myeloma Taking Maintenance Therapy Get The Covid 19 Vaccine?

Can People With Multiple Myeloma Taking Maintenance Therapy Get The Covid 19 Vaccine?

Hi
I am on Daralex and dexamethasone for maintenance therapy. I ask my doctor about getting the Covid 19 vaccine and was told it may not be as effective because of the maintenance therapy. They did not say I could not get the vaccine, but I should check to see what the CDC guidelines were.

Thanks
Wordpass22

A MyMyelomaTeam Member said:

Thanks for all your answers re receiving covid vaccine. My doctor recommended all of us receive vaccine. I am not happy with this and want my particular… read more

posted 23 minutes ago

I’m Not Sure...

I’m Not Sure...

When to the doctor today and was told that part of my blood work came back iga kappa monoclonal detected and I’ve been asked to submit a 24-hour urine test. Does this mean I have cancer? I’ve been googling all day and I can’t think of any other reason or see anything else that could mean. My neurologist says, “I’m 95% you don’t have cancer”, but isn’t that what that means? I’m nervous and any input could help.

A MyMyelomaTeam Member said:

Thanks. Anything input anyone can provide. I just don’t know how I tell my kids. I’m a single mother.

edited, originally posted 4 days ago

I Have MM, 2 Yrs Post Transplant, MRD Negative But I’m Still Struggling With Fatigue On A Daily Basis. Is It MM Or Something Else?

I Have MM, 2 Yrs Post Transplant, MRD Negative But I’m Still Struggling With Fatigue On A Daily Basis. Is It MM Or Something Else?

The only treatment I’m on is zometa (I’ve read that fatigue can be a side effect of zometa). I’m getting the clear impression from my doctor that the fatigue is either in my head or caused by something other than MM since I’m in remission.

I realize I’m fortunate to not have worse side effects (pain, etc.), but I’m only 61 and am struggling to stay physically active. I do exercise pretty… read more

A MyMyelomaTeam Member said:

I am 62 and no longer work I was diagnosed July 2019 Had stem cell harvest and chemo It took me over a year to be able to walk without help But I still… read more

posted about 8 hours ago
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