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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Pomalyst"

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Daratumumab+Dexamethasone For Smoldering Myloma And Al Amyloidosis

Daratumumab+Dexamethasone For Smoldering Myloma And Al Amyloidosis

I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.

A MyMyelomaTeam Member

I am newly diagnosed with amyloidosis and MM. I take Dexamethasone, velcade and daratumumab and cytoxan

Has Anyone Ever Been On Pomalyst?

Has Anyone Ever Been On Pomalyst?

Has anyone ever been on Pomalyst? If so, can you tell me about your experience on it. I'm having a hard time with the side effects and could use some insights.

A MyMyelomaTeam Member

I've never had dexamethasone every day. Usually once or twice weekly with the various treatments I have been on ๐Ÿ’•

What Other Medications Have You Changed To After Revlimid And Velcade Ceased To Be Effective?

What Other Medications Have You Changed To After Revlimid And Velcade Ceased To Be Effective?

I was diagnosed in June of 2020 and had a stem cell transplant in January of 2021. I have been on Revlimid and Velcade the entire time. My latest lab tests show a definite decline. I am wondering if there is another medication that people have changed to after these two quit being beneficial.

A MyMyelomaTeam Member

You are most welcome. I hear you on the labs. I am so thankful my most recent ones are still okay๐Ÿ’•๐Ÿ™

Darzalex

Darzalex

I am beginning treatment with Darzalex what have people experienced with this treatment? I had a Stem cell implant 18 yrs. ago and was in remission until now. Tried pomalyst and ninlaro with no sucess.
Dr.Stan

A MyMyelomaTeam Member

Yes i am on darz and ninlaro..my numbers got better but no to a stable number i told my dr
1 more blood test then something new I believe Ninlaro just isnt strong enough to kick it out..Pomalystโ€ฆ read more

After Bone Marrow Transplant How Long Are You On Revlimid

After Bone Marrow Transplant How Long Are You On Revlimid

After a bone marrow transplant how long are you on Revlimid?

A MyMyelomaTeam Member

My labs are actually great except for the extremely low immunoglobulins. God is amazing ๐Ÿ‘๐Ÿ˜‡

Remission

Remission

Is the definition of remission with MM is being MRD negative?

A MyMyelomaTeam Member

what grant did you get . Is it income dependent?

Side Effects.

Side Effects.

My husband gets infusions of Dara and velcade and has been having shortness of breath and back pain. Anyone else experiencing any of these side effects? Y Thx in advance ๐Ÿ™

A MyMyelomaTeam Member

Thank you for your input. I pray your issues resolve soon as well.

Has Anyone Had Pain Worsen During Chemo?

Has Anyone Had Pain Worsen During Chemo?

I did not have pain prior to chemo. I am now having pain in my sides and back. It seems more muscular than bone. Like when I twist, turn, or bend. It also feels like my muscles in shoulders are frogging up. Iโ€™m staying hydrated. Anyone?

A MyMyelomaTeam Member

Induction Meds are extremely muscle wasting. Quite easy to have plenty of back pain due to very weak muscles. Plenty of PT exercises with stretching may help. Iโ€™m going to the gym daily. I do strengthโ€ฆ read more