Due to a recurring itchy body rash developing when using Revlimid, I’ll be switching over pomalidomide with velcade and dex. POMALYST is 10 times more potent than that of lenalidomide. But what I’m reading, people seem to have less side effects although it’s in the same drug class. For those who are on POMALYST, what has been your experience?
Thanks !
Oh Lordy🥴
I am taking Daratumab, Dexamethasone and just added Pomalyst this week.Hoping and praying for improvement of myeloma.
Hello out there!!
I just had to switch off Revlimid because I broke out with terrible hives, and now my oncologist wants me to try Carfilzomib. Has anyone out there been on or is being treated with this drug. If so then I would love your feedback!!
Pros and Cons.
I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.
I take Dara, revlimed, and dexamethasone for smm
I would like to learn: who are or were treated with “Kyprolis (carfizomib), Proteasome inhibitor. Symptoms, side effects, did you improve? How long? How are you now? (before, during after?
It's just something you have to decide and take whatever comes. If my numbers go up consistently, then I will re-think. 🤫. I'm not saying this outloud.....
One fellow in our support group has been on Revlimid for 6 years without serious side effects. One lady had issues and dosage was cut back.
I’m currently starting my 4th year of maintenance therapy. I’m on the 3 week maintenance therapy schedule. 3 shots of Velcade of once a week and 21 days of the chemo pill revlamid, oh can’t forget the 20 mg of steroids I take on days I get the Velcade shot. I have absolutely no stamina. Anytime I exert myself I immediately start breathing hard. Will stop and take breaks to catch my breath. My oncologist says it’s a combination of the chemo and steroids. I do take walks with my wife but will also… read more
Yes if you take supplements to help build up your body like quercetin vitamin c and a strong b complex with b-12 drops is great drinking pomegranate juice and eating healthy diet fruits and vegetables… read more