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Has Anyone Taken Pomalyst 2 Mg And Had To Go Up To 3 Mg? Was It A Big Adjustment?
I started with 2 mg in April 2023. My kappa light chains begin increasing in March so we increase the mg to 3. The kappa number did go down but in May we noticed an increase. So we are watching the… read more
Discontinuing Revlimid And Starting POMALYST While On Maintenance Therapy
Due to a recurring itchy body rash developing when using Revlimid, I’ll be switching over pomalidomide with velcade and dex. POMALYST is 10 times more potent than that of lenalidomide. But what I’m reading, people seem to have less side effects although it’s in the same drug class. For those who are on POMALYST, what has been your experience?
Thanks !
Well I’m still taking revlamide 10 mg for maintenance at night but noticing back pain has doubled Shoulder pain too. Plus leg and feet cramps running to pee every hour or two all night long
Guess… read more
Daratumumab+Dexamethasone For Smoldering Myloma And Al Amyloidosis
I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.
I take Dara, revlimed, and dexamethasone for smm
Has Anyone Been Switched From Revlimid To Pomalyst? I Believe Pomalyst Is Newer.
I am taking Daratumab, Dexamethasone and just added Pomalyst this week.Hoping and praying for improvement of myeloma.
For Those Taking Pomalyst And Dara Faspro When Do You Get Your Blood Tests Done. Halfway Thru The 21 Days Or After Your 7 Day Break?
every 4 weeks I see the doctor and labs are done then...not necessarily does it fall on my 7 day off
Carfilzomib
Hello out there!!
I just had to switch off Revlimid because I broke out with terrible hives, and now my oncologist wants me to try Carfilzomib. Has anyone out there been on or is being treated with this drug. If so then I would love your feedback!!
Pros and Cons.
What Treatment Options Have You Used For Relapsing MM?
Unfortunately, after my SCT in Dec 2022, the MM has relapsed. It only took 10 months before it started to show up in blood tests. I had a bone marrow biopsy and the plasma cell percentage has now doubled from the value when I was initially diagnosed. So I'm curious to know if others have relapsed after a SCT and what was the next method of treatment used
We are looking to get me on Car-T cell therapy, but I do not yet qualify based on the number of refractory treatments (drugs that did not… read more
Thanks Larry. This us something I need to research before I decide to get tested
I'm starting to think that cancer/myeloma are mutations that just like every living being do everything they can to… read more
“Kyprolis (carfizomib), Proteasome Inhibitor. Symptoms, Side Effects, Did You Improve? How Long? How Are You Feeling? (before, During After?
I would like to learn: who are or were treated with “Kyprolis (carfizomib), Proteasome inhibitor. Symptoms, side effects, did you improve? How long? How are you now? (before, during after?
Has Anyone Been On Maintenance For A Long Time
It's just something you have to decide and take whatever comes. If my numbers go up consistently, then I will re-think. 🤫. I'm not saying this outloud.....
About To Start On Pomalyst After 8 Months On Valcade And Darelex. Any Suggestions?
Kappa light chain MM
I too have Kappa Light Chain MM; after 6 months on Revlimid and Velcade , plus Dexamethasone I am now one year in remission. Velcade gave me a rash at injection site. Dexamethasone gave me a terrible… read more
