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Top 10 Search Results for "Pomalyst"

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Daratumumab+Dexamethasone For Smoldering Myloma And Al Amyloidosis
A MyMyelomaTeam Member asked a question 💭

I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.

A MyMyelomaTeam Member

I take Dara, revlimed, and dexamethasone for smm

Carfilzomib
A MyMyelomaTeam Member asked a question 💭

Hello out there!!
I just had to switch off Revlimid because I broke out with terrible hives, and now my oncologist wants me to try Carfilzomib. Has anyone out there been on or is being treated with this drug. If so then I would love your feedback!!
Pros and Cons.

A MyMyelomaTeam Member

I was on the (VRD) Velcade, Revlimid, Dexamethasone regimen, The Revlimid was stopped after I had the allergic reaction (yes - stopped for 10 days tried it again - much worse). The Velcade was… read more

Has Anyone Been On Maintenance For A Long Time
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Amazing JoA💪👍🥰

Darzalex
A MyMyelomaTeam Member asked a question 💭

I am beginning treatment with Darzalex what have people experienced with this treatment? I had a Stem cell implant 18 yrs. ago and was in remission until now. Tried pomalyst and ninlaro with no sucess.
Dr.Stan

A MyMyelomaTeam Member

Yes i am on darz and ninlaro..my numbers got better but no to a stable number i told my dr
1 more blood test then something new I believe Ninlaro just isnt strong enough to kick it out..Pomalystread more

Long Term Maintenance
A MyMyelomaTeam Member asked a question 💭

For you who have been on maintenance How do you feel. When I was getting treatment from March to September I felt good in the beginning and the longer I was on I felt unwell which apparently is expected. Is it the same on maintenance I am guessing maintenance is a lower dose

A MyMyelomaTeam Member

Your supplement is invermectin which is animal worm medicine. I’ve heard good things about it and it’s helping you. The cbd is that mixed with frankincense or separate

Pomalyst
A MyMyelomaTeam Member asked a question 💭

First of all good afternoon everybody! Have anybody been on this drug Pomalyst for any period of time and did you have any side effects like hives or rashes or what?

A MyMyelomaTeam Member

In addition, now that I’ve been on pomalyst for a bit , cough , phlegm and fatigue. But good news is my mSpike is now normal and so is my Igg. However white blood cells have dropped. Been through one… read more

Does Anyone Have Any Information On These Treatments, Daratumumab Or Pomalyst?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Thanks, for updating me on your experiences and hopefully both conditions soon subside, energy and respiratory system are normal.

If You Have Had A Reaction To Revlimid, What Other Alternative Oral Medications Can They Give?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Kevin Hutton, you will have to call your doc about the rash. I'm sure you probably already have🙏

Has Anyone Changed From Revlimid To Pomalyst?
A MyMyelomaTeam Member asked a question 💭

What was reaction and effect?

A MyMyelomaTeam Member

Yep, I was on Revlimid with Velcade and Dex for about 4 cycles back in 2017. I didn't have a complete response to that treatment. So, they switched me to Kyprolis and Pomalyst with dex. My numbers… read more

Has Anyone Taken Kyprolis (generic For Carfilzombib). In Addition Pomalyst> I Start Taking These Tomorrow
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Yes, I was on Kyprolis and Pomalyst with dexamethasone in 2017. I didn't have a good response to it, but I tolerated it okay. It did make my blood pressure go up a little. So maybe monitor your blood… read more