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Top 10 Search Results for "Pomalyst"

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Discontinuing Revlimid And Starting POMALYST While On Maintenance Therapy
A MyMyelomaTeam Member asked a question 💭

Due to a recurring itchy body rash developing when using Revlimid, I’ll be switching over pomalidomide with velcade and dex. POMALYST is 10 times more potent than that of lenalidomide. But what I’m reading, people seem to have less side effects although it’s in the same drug class. For those who are on POMALYST, what has been your experience?

Thanks !

A MyMyelomaTeam Member

Oh Lordy🥴

Has Anyone Been Switched From Revlimid To Pomalyst? I Believe Pomalyst Is Newer.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I am taking Daratumab, Dexamethasone and just added Pomalyst this week.Hoping and praying for improvement of myeloma.

Carfilzomib
A MyMyelomaTeam Member asked a question 💭

Hello out there!!
I just had to switch off Revlimid because I broke out with terrible hives, and now my oncologist wants me to try Carfilzomib. Has anyone out there been on or is being treated with this drug. If so then I would love your feedback!!
Pros and Cons.

A MyMyelomaTeam Member

I was on the (VRD) Velcade, Revlimid, Dexamethasone regimen, The Revlimid was stopped after I had the allergic reaction (yes - stopped for 10 days tried it again - much worse). The Velcade was… read more

Daratumumab+Dexamethasone For Smoldering Myloma And Al Amyloidosis
A MyMyelomaTeam Member asked a question 💭

I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.

A MyMyelomaTeam Member

I take Dara, revlimed, and dexamethasone for smm

“Kyprolis (carfizomib), Proteasome Inhibitor. Symptoms, Side Effects, Did You Improve? How Long? How Are You Feeling? (before, During After?
A MyMyelomaTeam Member asked a question 💭

I would like to learn: who are or were treated with “Kyprolis (carfizomib), Proteasome inhibitor. Symptoms, side effects, did you improve? How long? How are you now? (before, during after?

A MyMyelomaTeam Member

I took 2 treatments of kyprolis and My heart went into afib. So now I have blood Thinner xralto
That made me have a blood bleed in my knee
And now I can't walk. Probably will have to get a new… read more

Has Anyone Been On Maintenance For A Long Time
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

It's just something you have to decide and take whatever comes. If my numbers go up consistently, then I will re-think. 🤫. I'm not saying this outloud.....

Has Anyone Been On Double Maintenance For A While
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

One fellow in our support group has been on Revlimid for 6 years without serious side effects. One lady had issues and dosage was cut back.

Darzalex
A MyMyelomaTeam Member asked a question 💭

I am beginning treatment with Darzalex what have people experienced with this treatment? I had a Stem cell implant 18 yrs. ago and was in remission until now. Tried pomalyst and ninlaro with no sucess.
Dr.Stan

A MyMyelomaTeam Member

Yes i am on darz and ninlaro..my numbers got better but no to a stable number i told my dr
1 more blood test then something new I believe Ninlaro just isnt strong enough to kick it out..Pomalystread more

Does Stamina Ever Come Back?
A MyMyelomaTeam Member asked a question 💭

I’m currently starting my 4th year of maintenance therapy. I’m on the 3 week maintenance therapy schedule. 3 shots of Velcade of once a week and 21 days of the chemo pill revlamid, oh can’t forget the 20 mg of steroids I take on days I get the Velcade shot. I have absolutely no stamina. Anytime I exert myself I immediately start breathing hard. Will stop and take breaks to catch my breath. My oncologist says it’s a combination of the chemo and steroids. I do take walks with my wife but will also… read more

A MyMyelomaTeam Member

Yes if you take supplements to help build up your body like quercetin vitamin c and a strong b complex with b-12 drops is great drinking pomegranate juice and eating healthy diet fruits and vegetables… read more

DARZALEX FASPRO, POMALYST, And Dexamethsone
A MyMyelomaTeam Member asked a question 💭

I am starting on darzalex Casper, pomalyst and dexamethsone in a week and wonder if you tolerated it well and if you had any side affects

A MyMyelomaTeam Member

Good luck to you Jan 🤞🙏