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I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.
I was diagnosed in June of 2020 and had a stem cell transplant in January of 2021. I have been on Revlimid and Velcade the entire time. My latest lab tests show a definite decline. I am wondering if there is another medication that people have changed to after these two quit being beneficial.
I am beginning treatment with Darzalex what have people experienced with this treatment? I had a Stem cell implant 18 yrs. ago and was in remission until now. Tried pomalyst and ninlaro with no sucess.
Yes i am on darz and ninlaro..my numbers got better but no to a stable number i told my dr
1 more blood test then something new I believe Ninlaro just isnt strong enough to kick it out..Pomalyst… read more
I did not have pain prior to chemo. I am now having pain in my sides and back. It seems more muscular than bone. Like when I twist, turn, or bend. It also feels like my muscles in shoulders are frogging up. I’m staying hydrated. Anyone?
Induction Meds are extremely muscle wasting. Quite easy to have plenty of back pain due to very weak muscles. Plenty of PT exercises with stretching may help. I’m going to the gym daily. I do strength… read more
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