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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 31, 2022
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Answer Summary

Members clarified the distinction between remission and cancer-free status for multiple myeloma, with the overwhelming consensus being that... Read more

Members clarified the distinction between remission and cancer-free status for multiple myeloma, with the overwhelming consensus being that while remission means the disease is controlled or undetectable, MM is currently incurable and never truly gone. Several members shared that terms like "complete response," "MRD negative," or "controlled" are more accurate than "cancer free," with many describing their MM as "in a box" or "hibernating" rather than eradicated, though some expressed hope and faith that long-term remission could feel like freedom. A recurring theme was the importance of maintenance therapy to keep the disease at bay, staying positive despite the uncertainty, and leaning on both medical guidance and personal faith to navigate the emotional weight of living with an incurable but treatable cancer.

A MyMyelomaTeam Member

With multiple myeloma since it is incurable you are never cancer free but when your numbers are greatly reduced, like mine are currently, under 1, I am considered in remission. For the first time in over 10 years I do not have weekly or monthly chemo. In fact I have had nothing since my CAR-T transplant in July.

October 20, 2023
A MyMyelomaTeam Member

I like remission!!! Cause that's where I am. I take no meds at all, haven't for two years !!

July 11, 2023
A MyMyelomaTeam Member

I am in "complete remission" and as there are no M proteins in my bloodwork I am considered to be "cancer free" at the moment and have been for 2 years with no medication at all. This is more than "remission" and is obviously possible!

December 2, 2023
A MyMyelomaTeam Member

Hi Darell,
Hi here is my story.
Since my first showing up on this website, I have had substantial improvements. I've been through my stem cell transplant and a chemo drug that they used for people with leukemia. They were both very brutal. Then they put me on a new drug and I am doing very well. It's call TECVAYLI. It is a sub Q injectable. I have had minimal side effects but I feel much better even though I am 72.

August 19, 2023
A MyMyelomaTeam Member

I never tell anyone that I’m in remissions. I usually say “Im feeling pretty good ” To think remissions means you ok for now but the truth is you’re not back feeling like you did prior to being treated for MM ever. You just as well say you’re on a commercial break and will be back soon

August 18, 2023

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