Hi i was on valcade prior to stem cell transplant . i had nerve damage in hands and feet , but after valcade ended 1 year ago my hands have gone back to normal, still a little in my feet . so… read more
I can tell you I felt much more pain before I started treatment than I do now 4 yrs later! The treatments definitely helped and I am so thankful!
I am close to 94 yrs and will start Velcade next week. Where is it injected and what are the side affects?
I started to get sensitivity to a molar and gum surrounding it
one month after my first infusion. I have already had osteonecrosis from Xgeva which resulted in surgery. Will have to see a cancer dental surgeon this week.
Zometa is what cause the problems with the jaws and teeth.
New patient here with this treatment. Have bone aches and pains in my side and back and joints. Is this common?
Six years in and back pain I been able to deal with you just got to learn what triggers it and stop doing it. The neuropathy and pain can be controlled with morphine ER and tens unit helps me. For me… read more
Let your Dr know because my Dr said if this begins they will immediately adjust Valcade. Don't wait.
I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…
Diagnosed 11/20 with mm. Started with velcade, Revlamid and deci something. SCT in 6/21. Went back on revlamid for maintenance. After about 3 months switched to velcade every 2 weeks because of severe diarrhea and weight loss. I was miserable. Been doing ok on velcade, usual rash and not feeling to great for one week. Second week was better. But now I don’t feel good at all. Since before Christmas. Skipped my shot two weeks ago because I wasn’t feeling good. I still have been sick even though I… read more
My eyes are also messed up! I was diagnosed with blepharitis. My eyes water a lot and I also get post nasal drip and dripping down my throat. Eye dr. recommended washing with an eye wash twice a day… read more
Has anyone had any issues getting a MMR immunization while being on Velcade? The clinic where I've been getting my childhood immunizations wouldn't give me one until they checked with my oncologist, and he couldn't be reached while I was there. It flagged giving me the MMR because it can cause interactions while on Velcade. I was eventually okayed to receive it from my specialist/pharmacist in Milwaukee. I am 15 months post SCT. My schedule states to get it after 14 months, but I've read that… read more
I got all my vaccines a year after my Trasplant but I was not on valcade
Drugs treatment plan was Revlimid, Velcade, Dexaethasone. I stopped the Velcade once numbness and tingling got worse. I continue now with lower dose of Revlimid and Dexaethasone. The pain in my feet has gotten worse and have tried natural remedies but no relief. Dr prescribed Gabapentin and have taken now for a few weeks but was told it takes longer before I would notice if it’s helping. Had some bad side effects so now taking Lyrica which seems to be helping to take the burning sensation away… read more
I take B-12 vitamin, Gabapentin didn’t do much, I was like a zombie
My cancer is coming back, so now I taking Pomalyst and Dexa, but the I don’t do to good with Dexamethasone, my heart rate is very… read more