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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Darzalex"

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Nerve Or Back Pain From Darzalex ?

Nerve Or Back Pain From Darzalex ?

Has anyone developed back pain from taking Daralex? Joint, back and nerve pain are listed as common side effects. I have developed nerve pain going into my right shoulder. Not sure if this is related to the Daralex or swimming. Doctor says it is not Myeloma related.

A MyMyelomaTeam Member

I have been on this drug since mm started to attack me for a 2nd time. I am tired but only have to take it once a month now. Attitude is everything. Never believe anything is stronger than… read more

Darzalex

Darzalex

I am on Velcade ,Daralex,and Des,every week for at least 1 year,had a bad reaction the first week,they gave me 100 m of fast acting steroids in my veinsit helped the chills and blood pressure immediately,but the pain was severe for 2 hours,my second week had r
delayed reaction the next day took benadryl steroids,got because in 1 hour,3 treatment was yesterday and no reaction

A MyMyelomaTeam Member

It's Questran powder.

BETA 2 Microglobulin Serum High

BETA 2 Microglobulin Serum High

Just received my blood results back, B2M JUNE 1 2021 4.97H MAY 4.62.H APR 3.09 H
Pretty worried since I read way to much today. My Protein went down to 7.3 from 10.4 so that was good.
Going to call doctor tomorrow. Any ideas what is going on. I am on Velcade, Darzalex and steroids. 9 treatments but now every three weeks thinking I was doing good maybe I have to go back to weekly.

A MyMyelomaTeam Member

Our oncologist said not to worry about slight variances in test numbers. The ones to worry about are the drastic changes from one blood test to another. Usual procedure is to wait and do the same… read more

Darzalex Affect On M Spike

Darzalex Affect On M Spike

I’m on chemo Darzalex/Revlimid/Dexamethasone. My M Spike is down to .34. I’ve read that Darzalex is a Monoclonal Antibody that might affect the M Spike results. Does anybody have any info about this?

A MyMyelomaTeam Member

Thanks @A MyMyelomaTeam Member for the information. Hope you are doing well and get some answers soon. 🙏

Daratumumab+Dexamethasone For Smoldering Myloma And Al Amyloidosis

Daratumumab+Dexamethasone For Smoldering Myloma And Al Amyloidosis

I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.

A MyMyelomaTeam Member

I am newly diagnosed with amyloidosis and MM. I take Dexamethasone, velcade and daratumumab and cytoxan

Darzalex

Darzalex

I am a bit worried...I get Vertigo really bad..so I hope that the Darzalex will be o.k. I am being put on Darzalex Fast Pro

A MyMyelomaTeam Member

I have side effects similar to those mentioned by Donna and Gary. I am on Darzalex Faspro, Revlimid, and a low dose of Dexamethasone. On the day I get Darzalex Faspro I take a larger 10mg dose of Dex… read more

Has Anyone Had Side Effects From Darzalex Faspro?

Has Anyone Had Side Effects From Darzalex Faspro?

Ron's had 6 of 8 weekly 4+ hour Darzalex infusions. Hearing about the faspro injection, we're wondering now why his oncologist chose the infusion route. We'll be asking about his reasoning at the next appointment, but interested in getting team input meanwhile.

A MyMyelomaTeam Member

Thanks Donna. He didn't mention how it was administered, so I'll ask him. It seemed to go well, and he was sure glad to be home sooner!

Just Want To Know For Those That Did Not Get Or Chose Not To Get The SCT How Is Your Remission Going And How Long You Been In Remission?

Just Want To Know For Those That Did Not Get Or Chose Not To Get The SCT How Is Your Remission Going And How Long You Been In Remission?

Just want to know how long your number stay down without SCT. Is it months or years?

A MyMyelomaTeam Member

Sorry to say but I can’t remember what I was thinking of - that was in July. I might have been thinking about the article- “What is Minimum Residual Disease Testing”. It covers the history and the… read more