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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Darzalex"

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Darzalex
A MyMyelomaTeam Member asked a question 💭

I am on Velcade ,Daralex,and Des,every week for at least 1 year,had a bad reaction the first week,they gave me 100 m of fast acting steroids in my veinsit helped the chills and blood pressure immediately,but the pain was severe for 2 hours,my second week had r
delayed reaction the next day took benadryl steroids,got because in 1 hour,3 treatment was yesterday and no reaction

A MyMyelomaTeam Member

There is a subcutaneous (below the skin) injection form of Darzalex available. I started with intravenous but my veins did not hold up. So the injection works great and only at the cancer center once… read more

Nerve Or Back Pain From Darzalex ?
A MyMyelomaTeam Member asked a question 💭

Has anyone developed back pain from taking Daralex? Joint, back and nerve pain are listed as common side effects. I have developed nerve pain going into my right shoulder. Not sure if this is related to the Daralex or swimming. Doctor says it is not Myeloma related.

A MyMyelomaTeam Member

I have been on this drug since mm started to attack me for a 2nd time. I am tired but only have to take it once a month now. Attitude is everything. Never believe anything is stronger than… read more

BETA 2 Microglobulin Serum High
A MyMyelomaTeam Member asked a question 💭

Just received my blood results back, B2M JUNE 1 2021 4.97H MAY 4.62.H APR 3.09 H
Pretty worried since I read way to much today. My Protein went down to 7.3 from 10.4 so that was good.
Going to call doctor tomorrow. Any ideas what is going on. I am on Velcade, Darzalex and steroids. 9 treatments but now every three weeks thinking I was doing good maybe I have to go back to weekly.

A MyMyelomaTeam Member

Our oncologist said not to worry about slight variances in test numbers. The ones to worry about are the drastic changes from one blood test to another. Usual procedure is to wait and do the same… read more

Darzalex
A MyMyelomaTeam Member asked a question 💭

I am a bit worried...I get Vertigo really bad..so I hope that the Darzalex will be o.k. I am being put on Darzalex Fast Pro

A MyMyelomaTeam Member

I have side effects similar to those mentioned by Donna and Gary. I am on Darzalex Faspro, Revlimid, and a low dose of Dexamethasone. On the day I get Darzalex Faspro I take a larger 10mg dose of Dex… read more

Daratumumab+Dexamethasone For Smoldering Myloma And Al Amyloidosis
A MyMyelomaTeam Member asked a question 💭

I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.

A MyMyelomaTeam Member

I had a severe reaction to Pomalyst, severe back pain and sick as a dog. Back pain to the extent I could not stand up and in the hospital for 6 days. Back on revlimed 10 mg 21 on 7 off darzalex 1 time… read more

Anyone Have Experience With Darzalex? My Wife Is Starting Next Week
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Thank you💕

Darzalex Affect On M Spike
A MyMyelomaTeam Member asked a question 💭

I’m on chemo Darzalex/Revlimid/Dexamethasone. My M Spike is down to .34. I’ve read that Darzalex is a Monoclonal Antibody that might affect the M Spike results. Does anybody have any info about this?

A MyMyelomaTeam Member

Thanks @A MyMyelomaTeam Member for the information. Hope you are doing well and get some answers soon. 🙏

Had SCT End Of June, 2022… Maintenance Treatment Is Velcade Weekly Via Ninlaro, 3mg, Pill. Anyone Else Doing This Treatment?
A MyMyelomaTeam Member asked a question 💭

I was surprised at the choice of Maintenance treatment as was my local oncologist. We both were expecting Revlimid. My SCT oncologist at Duke Medical recommended the Velcade/Ninlaro treatment, 3mg weekly for 3 weeks, off a week, then repeat the cycle. Curious to know if anyone else is using this maintenance treatment. Thx & God Bless.

A MyMyelomaTeam Member

Update. I'm not doing velcade. Its zomata that I'm doing once a month. For some reason I always mix the two up

"slow Disease Response?.
A MyMyelomaTeam Member asked a question 💭

I have been taking Revlimid again the past two months again and have been on Darzalex for the past year. I have had slow progression of my kappa light chains for the past 5 months. Has anyone experienced this slow progression to the point where they stay on the Revlimid and Darzalex for a while longer and then eventually need to switch medications or try a different approach? Thank you for your experience, strength and hope.

A MyMyelomaTeam Member

I would ask about adding another drug. Progression, even if it is slow, to me indicates you need to add another drug. Three drug combinations have been shown to perform better than two drug combos.

IgIV - Results And Complications?
A MyMyelomaTeam Member asked a question 💭

For those getting IgIVs…

What are your typical IgG levels before and after?

How long before you need another and what’s your IgG when it’s time for another?

Has anyone found ways to boost their IgG levels without an IgIV infusion?

Any comments about the effectiveness of the IgIV?

Any complications from getting the IgIV?

Thanks

A MyMyelomaTeam Member

I have never had an IGIV and have had two SCTs and don’t know what my IGG is but have IGA MM but my results haven’t come back yet.