I am on Velcade ,Daralex,and Des,every week for at least 1 year,had a bad reaction the first week,they gave me 100 m of fast acting steroids in my veinsit helped the chills and blood pressure immediately,but the pain was severe for 2 hours,my second week had r
delayed reaction the next day took benadryl steroids,got because in 1 hour,3 treatment was yesterday and no reaction

Has anyone developed back pain from taking Daralex? Joint, back and nerve pain are listed as common side effects. I have developed nerve pain going into my right shoulder. Not sure if this is related to the Daralex or swimming. Doctor says it is not Myeloma related.

Just received my blood results back, B2M JUNE 1 2021 4.97H MAY 4.62.H APR 3.09 H
Pretty worried since I read way to much today. My Protein went down to 7.3 from 10.4 so that was good.
Going to call doctor tomorrow. Any ideas what is going on. I am on Velcade, Darzalex and steroids. 9 treatments but now every three weeks thinking I was doing good maybe I have to go back to weekly.

I am a bit worried...I get Vertigo really bad..so I hope that the Darzalex will be o.k. I am being put on Darzalex Fast Pro

I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.

I’m on chemo Darzalex/Revlimid/Dexamethasone. My M Spike is down to .34. I’ve read that Darzalex is a Monoclonal Antibody that might affect the M Spike results. Does anybody have any info about this?

I was surprised at the choice of Maintenance treatment as was my local oncologist. We both were expecting Revlimid. My SCT oncologist at Duke Medical recommended the Velcade/Ninlaro treatment, 3mg weekly for 3 weeks, off a week, then repeat the cycle. Curious to know if anyone else is using this maintenance treatment. Thx & God Bless.

I have been taking Revlimid again the past two months again and have been on Darzalex for the past year. I have had slow progression of my kappa light chains for the past 5 months. Has anyone experienced this slow progression to the point where they stay on the Revlimid and Darzalex for a while longer and then eventually need to switch medications or try a different approach? Thank you for your experience, strength and hope.

For those getting IgIVs…

What are your typical IgG levels before and after?

How long before you need another and what’s your IgG when it’s time for another?

Has anyone found ways to boost their IgG levels without an IgIV infusion?

Any comments about the effectiveness of the IgIV?

Any complications from getting the IgIV?

Thanks