I am on Velcade ,Daralex,and Des,every week for at least 1 year,had a bad reaction the first week,they gave me 100 m of fast acting steroids in my veinsit helped the chills and blood pressure immediately,but the pain was severe for 2 hours,my second week had r
delayed reaction the next day took benadryl steroids,got because in 1 hour,3 treatment was yesterday and no reaction
Has anyone developed back pain from taking Daralex? Joint, back and nerve pain are listed as common side effects. I have developed nerve pain going into my right shoulder. Not sure if this is related to the Daralex or swimming. Doctor says it is not Myeloma related.
I have been on this drug since mm started to attack me for a 2nd time. I am tired but only have to take it once a month now. Attitude is everything. Never believe anything is stronger than… read more
Just received my blood results back, B2M JUNE 1 2021 4.97H MAY 4.62.H APR 3.09 H
Pretty worried since I read way to much today. My Protein went down to 7.3 from 10.4 so that was good.
Going to call doctor tomorrow. Any ideas what is going on. I am on Velcade, Darzalex and steroids. 9 treatments but now every three weeks thinking I was doing good maybe I have to go back to weekly.
Our oncologist said not to worry about slight variances in test numbers. The ones to worry about are the drastic changes from one blood test to another. Usual procedure is to wait and do the same… read more
I am a bit worried...I get Vertigo really bad..so I hope that the Darzalex will be o.k. I am being put on Darzalex Fast Pro
I have side effects similar to those mentioned by Donna and Gary. I am on Darzalex Faspro, Revlimid, and a low dose of Dexamethasone. On the day I get Darzalex Faspro I take a larger 10mg dose of Dex… read more
I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.
I’m on chemo Darzalex/Revlimid/Dexamethasone. My M Spike is down to .34. I’ve read that Darzalex is a Monoclonal Antibody that might affect the M Spike results. Does anybody have any info about this?
Thanks @A MyMyelomaTeam Member for the information. Hope you are doing well and get some answers soon. 🙏
I was surprised at the choice of Maintenance treatment as was my local oncologist. We both were expecting Revlimid. My SCT oncologist at Duke Medical recommended the Velcade/Ninlaro treatment, 3mg weekly for 3 weeks, off a week, then repeat the cycle. Curious to know if anyone else is using this maintenance treatment. Thx & God Bless.
Update. I'm not doing velcade. Its zomata that I'm doing once a month. For some reason I always mix the two up
I have been taking Revlimid again the past two months again and have been on Darzalex for the past year. I have had slow progression of my kappa light chains for the past 5 months. Has anyone experienced this slow progression to the point where they stay on the Revlimid and Darzalex for a while longer and then eventually need to switch medications or try a different approach? Thank you for your experience, strength and hope.
I would ask about adding another drug. Progression, even if it is slow, to me indicates you need to add another drug. Three drug combinations have been shown to perform better than two drug combos.
For those getting IgIVs…
What are your typical IgG levels before and after?
How long before you need another and what’s your IgG when it’s time for another?
Has anyone found ways to boost their IgG levels without an IgIV infusion?
Any comments about the effectiveness of the IgIV?
Any complications from getting the IgIV?
I have never had an IGIV and have had two SCTs and don’t know what my IGG is but have IGA MM but my results haven’t come back yet.