I am on Velcade ,Daralex,and Des,every week for at least 1 year,had a bad reaction the first week,they gave me 100 m of fast acting steroids in my veinsit helped the chills and blood pressure immediately,but the pain was severe for 2 hours,my second week had r
delayed reaction the next day took benadryl steroids,got because in 1 hour,3 treatment was yesterday and no reaction

Hi I was wondering how many milligrams are you taking of Pomalyst and how long did it take to reach a complete response? So far it’s working but very slowly.

Has anyone declined to add darzolax to the therapy they are already On? I received my clonol seq results. 2 cells per million. Hope everyone is well. Have an active weekend.

Has anyone developed back pain from taking Daralex? Joint, back and nerve pain are listed as common side effects. I have developed nerve pain going into my right shoulder. Not sure if this is related to the Daralex or swimming. Doctor says it is not Myeloma related.

Just received my blood results back, B2M JUNE 1 2021 4.97H MAY 4.62.H APR 3.09 H
Pretty worried since I read way to much today. My Protein went down to 7.3 from 10.4 so that was good.
Going to call doctor tomorrow. Any ideas what is going on. I am on Velcade, Darzalex and steroids. 9 treatments but now every three weeks thinking I was doing good maybe I have to go back to weekly.

I am a bit worried...I get Vertigo really bad..so I hope that the Darzalex will be o.k. I am being put on Darzalex Fast Pro

I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.

Here’s a good question for everyone. Ever since I was diagnosed with MM whenever I eat food, whether it’s hot or cold, my nose runs. My Oncologist has no explanation for this happening. I went to an ear, nose and throat specialist and as soon as I said Cancer he dismissed me. Any body with the same experience? It’s a little embarrassing when I go to a restaurant.