How long a length of time does a person stay on Revlimid
I was on it for 8 years. The dose was lowered several times in the 8 years due to side effects. The dr told me in France they have studied 2 years of maintance and had a positive response.
I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…
@A MyMyelomaTeam Member, which steroid did the doctor put you on?
I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.
Thanks so much John. I have been working the phones with regards to potential assistance. Have a great weekend.
I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.
Taking revlamid for almost a year with no problem and suddenly I developed a rash and now have diarrhea. Anyone have these problems? Thanks
@A MyMyelomaTeam Member I have heard those can be really painful. I hope you're recovering and that the eliquis works well to prevent those in the future.
My husband started revlimid this week for maintenance. He had stem cell transplant in January 2020 and has been doing well. He is having itching mostly on his scalp. Has anyone else had this and how long did it last? Thank you.
When did your oncologist change your current treatment when your m-spike is rising?