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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Revlimid"

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Revlimid

Revlimid

How long a length of time does a person stay on Revlimid

posted about 2 years ago
A MyMyelomaTeam Member said:

hi primetime gal what meds are u on now

posted over 1 year ago

Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid

Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid

I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.

posted over 2 years ago
A MyMyelomaTeam Member said:

Talk to your Social Worker where you dare being treated. They should be able to help you find a grant. Also The Leukemia and Lymphoma Society.

posted about 2 months ago

Maintenance Therapy After Stem Cell Transplant

Maintenance Therapy After Stem Cell Transplant

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

posted over 3 years ago
A MyMyelomaTeam Member said:

And I was doing good with pain until a couple of months ago, pain in my hips and upper thigh , is that where Claritin helps is with pain ?

posted 10 months ago

Revlimid

Revlimid

Do any Part D drug plans cover all of the cost of Revlimid? Which Part D drug policies pay the most on Revlimid in Colorado?
Thank you
Rock Obenchain

posted 4 months ago
A MyMyelomaTeam Member said:

no but you have to pay a copay which for me is about $500 a month. I got grants to pay it until I got VA involved., but that has other issues.

posted 3 months ago

Diarrhea And Rash

Diarrhea And Rash

Taking revlamid for almost a year with no problem and suddenly I developed a rash and now have diarrhea. Anyone have these problems? Thanks

posted over 1 year ago
A MyMyelomaTeam Member said:

Keep trying to get the grey cells to work. Crossword puzzles, word find games, crafts, crocheting, knitting, etc
While I was on Revlimid my brain did the same thing
Knitting and playing Words with… read more

posted over 1 year ago

Revlimid

Revlimid

I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options… read more

posted over 3 years ago
A MyMyelomaTeam Member said:

I came down with MM last May 21st, 2021. I'm in remission as of 2 months ago and had my dose reduced from 25MG every day to 15MG for the 21 day cycle. I want nothing to do with Stem Cell… read more

edited, originally posted 3 months ago

How Often Do You Take The Zarxio Injection?

How Often Do You Take The Zarxio Injection?

It’s to help increase WBC.

posted 7 months ago
A MyMyelomaTeam Member said:

@A MyMyelomaTeam Member, hello Colleen. What type of blood builder pills do you take?

posted 6 months ago

Rising M Spike

Rising M Spike

When did your oncologist change your current treatment when your m-spike is rising?

posted about 2 months ago
A MyMyelomaTeam Member said:

Back in 2020 and I was started on Daralex.

posted about 1 month ago

Did Anyone Know About The New Generic Velcade?

Did Anyone Know About The New Generic Velcade?

I just learned that I have been getting the generic Velcade since the beginning of July. I noticed there was huge price difference on my bill, and called my hospital to see if they had made a mistake. Turns out that it indeed was the correct pricing! It dropped $4000! That might also be why I've been feeling different after my last few injections. A little more run down, weaker and slightly nauseous. 🤔 Funny no one informed me of this at the infusion center.

posted about 1 month ago
A MyMyelomaTeam Member said:

BettyJE, I hope you have adjusted the best that you can and that you are starting to feel better. Sending prayers your way!
Jodi

posted 10 days ago

Revlimid Itching

Revlimid Itching

My husband started revlimid this week for maintenance. He had stem cell transplant in January 2020 and has been doing well. He is having itching mostly on his scalp. Has anyone else had this and how long did it last? Thank you.

posted over 1 year ago
A MyMyelomaTeam Member said:

Thanks everyone for all of the input. He is doing better, is on a cream as needed and Claritin as needed. You guys are great!

posted over 1 year ago