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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Revlimid" in Q&A. To see all results and access other features, sign up for free.

Has Anyone Taken Revlimid? Does Anyone Take B12 Shots? Thank You

A MyMyelomaTeam Member asked a question πŸ’­
Liberty Hill, TX

As I get my chemo in the room with others, I notice 99% of us are getting the exact same treatment. I understand it but in a way, I don't. Yes, I'm going to speak with my doctor.

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My Husband Has Been In Remission After SCT For 2 Years, But Is Still On Oral Revlimid And Because Of The Side Effects Has A Poor Quality

A MyMyelomaTeam Member asked a question πŸ’­
Winter Haven, FL

Of Life. Has anyone stopped Revlimid while in remission and stayed in remission

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A MyMyelomaTeam Member

Nancy after my transplant my oncologist that did the transplant. told my regular oncologist that would do my maintenance program to just give me Velcade injections and no more Revlimid because it… read more

Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid

A MyMyelomaTeam Member asked a question πŸ’­
Louisville, CO

I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.

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A MyMyelomaTeam Member

Thank goodness!

My Question Is About Revlimid Or The Generic Form, Who Is Still On Revlimid And Where Are You Time Wise With Mm.

A MyMyelomaTeam Member asked a question πŸ’­
Manteca, CA

I was told by a doctor that studies are being done as to the length of time We stay on revlimid during maintenance.

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A MyMyelomaTeam Member

Good Morning KimleonardDudly hope u are in a good place.Thx u for your story.I realize everyone is different howeve some of ur side effects are VER similar to mine.You are so RIGHT unless pain is… read more

If You Had A Stem Cell Transplant, Did You Do Consolidation Therapy After And Then Maintenance Or Go Straight To Maintenance?

A MyMyelomaTeam Member asked a question πŸ’­
Mundelein, IL
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A MyMyelomaTeam Member

Yes. I was on a trial and that was part of the treatment. RVD, transplant then RVD then just Revlimid maintenance.

Does Anyone Else Get Rashes? I Have A Rash On My Neck (red Spots With White Pustules) That Worsens As I'm On 21 Days Of Revlimed And Clears

A MyMyelomaTeam Member asked a question πŸ’­
Las Vegas, NV

When I'm on my 7 day off revlimid period. Could this be the revlimid?

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A MyMyelomaTeam Member

Revlimid gave me a nasty rash. I was taken off ot it pretty quickly and put on Pomalyst. This was seven years ago. The Pomalyst has done very well.

How Long Can Revlimed Maintenance Last? Thanks

A MyMyelomaTeam Member asked a question πŸ’­
Deland, FL
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A MyMyelomaTeam Member

Maintenance therapy with Revlimid (lenalidomide) can last indefinitely until there is evidence of disease progression or relapse, as long as the patient tolerates the drug well. The goal is to… read more

Why Did Some Multiple Myeloma Treatment Should Take The Medication Every Day And Some Other Take The Medication Like 21 Days And 7 Days Off.

A MyMyelomaTeam Member asked a question πŸ’­
Singapore

Can anyone explain to this question please πŸ™ like to know the reason because l been wandering about this?And l always forgot to ask this question to my doctor? Thank you ☺️

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A MyMyelomaTeam Member

In answer to "why" some medications are 21 days on and 7 days off is that in the case of Revlimid with the mentioned schedule, your body needs rest to build up other blood cells in your bone marrow. R… read more

It Is Safe To Take Revlimid On The Chemotherapy Day?

A MyMyelomaTeam Member asked a question πŸ’­
Ohio, OH
A MyMyelomaTeam Member

I was on revlamid a year
Now. Take darzelex once e a month

Discontinuing Revlimid And Starting POMALYST While On Maintenance Therapy

A MyMyelomaTeam Member asked a question πŸ’­
Lee, MA

Due to a recurring itchy body rash developing when using Revlimid, I’ll be switching over pomalidomide with velcade and dex. POMALYST is 10 times more potent than that of lenalidomide. But what I’m reading, people seem to have less side effects although it’s in the same drug class. For those who are on POMALYST, what has been your experience?

Thanks !

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A MyMyelomaTeam Member

I had the two Shingrix shots as well. I also take Valtrex 500 mg daily. Shingles were πŸ˜– awful for me