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Top 10 search results for "Revlimid" in Q&A. To see all results and access other features, sign up for free.

Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid
A MyMyelomaTeam Member asked a question 💭

I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.

A MyMyelomaTeam Member

About 2 months before my grant is up for the year they send me another application, I fill it out give it to my Oncologists office they fill out their part and fax it to the pharmaceutical Co. for… read more

My Husband Has Been In Remission After SCT For 2 Years, But Is Still On Oral Revlimid And Because Of The Side Effects Has A Poor Quality
A MyMyelomaTeam Member asked a question 💭

Of Life. Has anyone stopped Revlimid while in remission and stayed in remission

A MyMyelomaTeam Member

I'm am 2+ years off Revlemid maintenance and still in remission! I feel great! Ask your doc of this might work for your husband.

My Question Is About Revlimid Or The Generic Form, Who Is Still On Revlimid And Where Are You Time Wise With Mm.
A MyMyelomaTeam Member asked a question 💭

I was told by a doctor that studies are being done as to the length of time We stay on revlimid during maintenance.

A MyMyelomaTeam Member

4 years I was on revlimid. My dr wanted me on 10mgs. I could stand it. So 5 mgs. I started April 2019. My moods changed, my muscles craped, my bones hurts. Walking or movements were hard. The… read more

Does Anyone Take Dexamethasone And Revlimid As Maintence?
A MyMyelomaTeam Member asked a question 💭

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

A MyMyelomaTeam Member

I'm close to completing induction therapy with Dara/Velcade/Revlimid/dex (began Dec. 1, 2023), and I'm now only taking 4 mg dex on treatment day. With the approval from my oncologist, I reduced down… read more

Does Anyone Else Get Rashes? I Have A Rash On My Neck (red Spots With White Pustules) That Worsens As I'm On 21 Days Of Revlimed And Clears
A MyMyelomaTeam Member asked a question 💭

When I'm on my 7 day off revlimid period. Could this be the revlimid?

A MyMyelomaTeam Member

Revlimid gave me a nasty rash. I was taken off ot it pretty quickly and put on Pomalyst. This was seven years ago. The Pomalyst has done very well.

Has Anyone Had An Issue With Revlimid Causing Horrible Rashes
A MyMyelomaTeam Member asked a question 💭

I'm covered with a rash that suddenly appeared. Doctor took me off Revlimid

A MyMyelomaTeam Member

Well, I just started 10 mg again as maintenance after my SCT. Third dose and my head is covered in angry red rash. Especially my ears that are itching and burning. I
A few other areas too. Dang. I… read more

Diarrhea And Rash
A MyMyelomaTeam Member asked a question 💭

Taking revlamid for almost a year with no problem and suddenly I developed a rash and now have diarrhea. Anyone have these problems? Thanks

A MyMyelomaTeam Member

For constipation - start with magnesium glycinate 400mg and add magnesium citrate 200mg if needed. More citrate and less glycinate if needed for a total of 600mg daily

More. Fiber intake

I Am A Myeloma Patient. I Take Revlimid Every Day. Is There A Risk To Family And Friends To Be Around Me?
A MyMyelomaTeam Member asked a question 💭
6 Facts About Myeloma Maintenance Therapy Read Article...
A MyMyelomaTeam Member

Family members who are pregnant or planning to become pregnant must avoid contact with this medication. Otherwise there should be no problem with families and friends being around you.

Discontinuing Revlimid And Starting POMALYST While On Maintenance Therapy
A MyMyelomaTeam Member asked a question 💭

Due to a recurring itchy body rash developing when using Revlimid, I’ll be switching over pomalidomide with velcade and dex. POMALYST is 10 times more potent than that of lenalidomide. But what I’m reading, people seem to have less side effects although it’s in the same drug class. For those who are on POMALYST, what has been your experience?

Thanks !

A MyMyelomaTeam Member

Well I’m still taking revlamide 10 mg for maintenance at night but noticing back pain has doubled Shoulder pain too. Plus leg and feet cramps running to pee every hour or two all night long
Guess… read more

What Is The Difference With Taking Revlimid And It's Generic Lenalidomide. The Word Generic Does Not Mean (the Same) But (in The Same Class)
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Absolutely revlamide is very expensive more than i could afford without insurance and even with insurance it’s costly that’s why dr’s choose lenalidomide.