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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Revlimid"

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Does Anyone Take Dexamethasone And Revlimid As Maintence?
A MyMyelomaTeam Member asked a question 💭

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

A MyMyelomaTeam Member

Well I've been on the dex, Velcade and later added Revlimid10 for awhile...and have been pretty stable...diagnosed in 2015. I guess everyone is different. I've had some side effects from Revlimidread more

Revlimid
A MyMyelomaTeam Member asked a question 💭

How long a length of time does a person stay on Revlimid

A MyMyelomaTeam Member

Gail, you have to be careful with Zometa, because it affects your teeth and jaws, Dentists don’t want to work in your teeth, they said if they pull a tooth it never heel.
I have that problem now.

Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid
A MyMyelomaTeam Member asked a question 💭

I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.

A MyMyelomaTeam Member

VA will pay for it if you can get assigned to community care.

Does Anyone Else Get Rashes? I Have A Rash On My Neck (red Spots With White Pustules) That Worsens As I'm On 21 Days Of Revlimed And Clears
A MyMyelomaTeam Member asked a question 💭

When I'm on my 7 day off revlimid period. Could this be the revlimid?

A MyMyelomaTeam Member

Hi DonnaAndrew
I always too Benedryl whenever I itched and it also helps sleep as a side benefit when medications are making me stay awake. I find that my body gets used sleep aids so I have to… read more

What Is The Generic For Revlimid
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Lenolidamide.

Maintenance Therapy After Stem Cell Transplant
A MyMyelomaTeam Member asked a question 💭

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

A MyMyelomaTeam Member

I am on Revlimid for maintenance as well. I didn’t have any diarrhea for about two years later. Then I got Diarrhea pretty bad. I am on Colestipol and taking 2 in morning and 2 at night and diarrhea… read more

Diarrhea And Rash
A MyMyelomaTeam Member asked a question 💭

Taking revlamid for almost a year with no problem and suddenly I developed a rash and now have diarrhea. Anyone have these problems? Thanks

A MyMyelomaTeam Member

@A MyMyelomaTeam Member I have heard those can be really painful. I hope you're recovering and that the eliquis works well to prevent those in the future.

How Long Does Revlimed Do A Good Job? What Do You Take Next?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I take PhysicianNaturals C3 Curcumin (PN). I've been testing Dr's Best C3 Curcumin. Though Dr's Best is a little smaller and easier to swallow, it gives me very bad indigestion when I take all 8 at… read more

Revlimid
A MyMyelomaTeam Member asked a question 💭

Do any Part D drug plans cover all of the cost of Revlimid? Which Part D drug policies pay the most on Revlimid in Colorado?
Thank you
Rock Obenchain

A MyMyelomaTeam Member

Interesting. I have found the dosage does not effect the cost. My copay has been 400 per month for either 5mg or 10 mg for 21 days a month. That was before I got VA to give me community care.

Revlimid Itching
A MyMyelomaTeam Member asked a question 💭

My husband started revlimid this week for maintenance. He had stem cell transplant in January 2020 and has been doing well. He is having itching mostly on his scalp. Has anyone else had this and how long did it last? Thank you.

A MyMyelomaTeam Member

I had severe itching on my legs....the skin looked like lizard skin and I was miserable. That was the only place...weird. But I was using a steroid cream but then I found that Gold Bond lotion for… read more