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I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.
Your referral drug person should be able to help. There are several sources for assistance, American Cancer, Healthwell Foundation and others that may help. Best of luck!
Of Life. Has anyone stopped Revlimid while in remission and stayed in remission
I'm am 2+ years off Revlemid maintenance and still in remission! I feel great! Ask your doc of this might work for your husband.
How long a length of time does a person stay on Revlimid
That depends on how well the Revlimed is working. Sometimes even if you have achieved remission your oncologist may want to keep you on it to prevent relapse. It also depends on what type of MM you… read more
I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…
I completely agree - if you’re Induction gets you to or near normal Labs, please postpone your consideration of a SCT.
When I was Diag 2 years ago, I was MRD Negative (none per million) in 7 months… read more
Family members who are pregnant or planning to become pregnant must avoid contact with this medication. Otherwise there should be no problem with families and friends being around you.
I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.
I was taking Relamid for about 7 months 1 1/2 years ago. Now not on for the rest of the time. I have SMM, so that may make a difference. Stay as healthy as possible. God Bless You Dale.
My oncologist said that I’d be going to 10mg of Revlimid for maintenance therapy. Said I should feel much better. Anyone have firsthand experience??
Revlimid (Lenalidomide), immunomodulator… for maintenance, thanks for sharing.
Kaiser is now only offering the generic form of revlimid.. The diarrhea just being on revl is way too much to handle sometimes. Kaiser is saying the generic form is the same, the side effects are the same, how do I know that. Plus , I Have been very lucky not to have paid very much for Revlimid, But the generic form I have to pay $50 for.. Does not make any sense.. I would rather stay on revlimid not the generic form
I think its before adjustment. I also found out recently that is based on a family of 4. Since its just the two of us, its much less - maybe $80K or so. My AON provider is going to submit a… read more