Connect with others who understand.

sign up log in
About MyMyelomaTeam
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Revlimid"

reset

Revlimid

Revlimid

How long a length of time does a person stay on Revlimid

A MyMyelomaTeam Member said:

hi primetime gal what meds are u on now

posted 12 months ago

Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid

Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid

I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.

A MyMyelomaTeam Member said:

Here is the information. Bristol Myers Squibb Access Support .Phone (Phone number can only be seen by the question and answer creators).

posted about 1 month ago

Maintenance Therapy After Stem Cell Transplant

Maintenance Therapy After Stem Cell Transplant

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

A MyMyelomaTeam Member said:

And I was doing good with pain until a couple of months ago, pain in my hips and upper thigh , is that where Claritin helps is with pain ?

posted 6 months ago

Diarrhea And Rash

Diarrhea And Rash

Taking revlamid for almost a year with no problem and suddenly I developed a rash and now have diarrhea. Anyone have these problems? Thanks

A MyMyelomaTeam Member said:

Keep trying to get the grey cells to work. Crossword puzzles, word find games, crafts, crocheting, knitting, etc
While I was on Revlimid my brain did the same thing
Knitting and playing Words with… read more

posted about 1 year ago

How Often Do You Take The Zarxio Injection?

How Often Do You Take The Zarxio Injection?

It’s to help increase WBC.

A MyMyelomaTeam Member said:

@A MyMyelomaTeam Member, hello Colleen. What type of blood builder pills do you take?

posted about 2 months ago

Revlimid

Revlimid

I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options… read more

A MyMyelomaTeam Member said:

I think that’s usually the protocol, to be on some type of maintenance chemo until it is no longer effective. There is no long term plan for me to get off the Revlimid unless it becomes ineffective… read more

posted over 1 year ago

Revlimid Itching

Revlimid Itching

My husband started revlimid this week for maintenance. He had stem cell transplant in January 2020 and has been doing well. He is having itching mostly on his scalp. Has anyone else had this and how long did it last? Thank you.

A MyMyelomaTeam Member said:

Thanks everyone for all of the input. He is doing better, is on a cream as needed and Claritin as needed. You guys are great!

posted 12 months ago

Revlimid

Revlimid

Just was diagnosed on Wednesday and they are going to start Velcade, Revlimid and Decadron next week. I was reading that you must take a blood thinner with the Revlimid. Oncologist hematologist recommended a baby aspirin. Is this what everyone else is taking with Revlimid to prevent blood clots. Or are you taking something stronger? The risk of blood clots makes me nervous.

A MyMyelomaTeam Member said:

Yes, that’s what I take since 2019. Works ok. I’m in remission since also.

posted 7 days ago

Use Of Revlimid

Use Of Revlimid

I have been on Revlimid for about two years and lately have been experiencing bouts of diarrhea. Is this common occurrence?

I started taking the drug at 10 mg and it floored me. Reduced drug level to 5mg and developed body rash. Presently on 2.5mg

Cost of drug actually increased as the dosage was reduced????

A MyMyelomaTeam Member said:

Seriously Snuffy? Don’t know why the cost would increase. I haven’t heard anything about a generic. My husband used to take 5 mg of Revlimed. He was have a lot of diarrhea but I can’t remember if it… read more

posted about 1 month ago