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Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid
I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.
About 2 months before my grant is up for the year they send me another application, I fill it out give it to my Oncologists office they fill out their part and fax it to the pharmaceutical Co. for… read more
My Husband Has Been In Remission After SCT For 2 Years, But Is Still On Oral Revlimid And Because Of The Side Effects Has A Poor Quality
Of Life. Has anyone stopped Revlimid while in remission and stayed in remission
I'm am 2+ years off Revlemid maintenance and still in remission! I feel great! Ask your doc of this might work for your husband.
My Question Is About Revlimid Or The Generic Form, Who Is Still On Revlimid And Where Are You Time Wise With Mm.
I was told by a doctor that studies are being done as to the length of time We stay on revlimid during maintenance.
Does Anyone Else Get Rashes? I Have A Rash On My Neck (red Spots With White Pustules) That Worsens As I'm On 21 Days Of Revlimed And Clears
Does Anyone Take Dexamethasone And Revlimid As Maintence?
I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…
I'm close to completing induction therapy with Dara/Velcade/Revlimid/dex (began Dec. 1, 2023), and I'm now only taking 4 mg dex on treatment day. With the approval from my oncologist, I reduced down… read more
Has Anyone Had An Issue With Revlimid Causing Horrible Rashes
I'm covered with a rash that suddenly appeared. Doctor took me off Revlimid
Well, I just started 10 mg again as maintenance after my SCT. Third dose and my head is covered in angry red rash. Especially my ears that are itching and burning. I
A few other areas too. Dang. I… read more
Diarrhea And Rash
Taking revlamid for almost a year with no problem and suddenly I developed a rash and now have diarrhea. Anyone have these problems? Thanks
For constipation - start with magnesium glycinate 400mg and add magnesium citrate 200mg if needed. More citrate and less glycinate if needed for a total of 600mg daily
More. Fiber intake
I Am A Myeloma Patient. I Take Revlimid Every Day. Is There A Risk To Family And Friends To Be Around Me?
Family members who are pregnant or planning to become pregnant must avoid contact with this medication. Otherwise there should be no problem with families and friends being around you.
Can Anyone Explain My Situation
Hi all members
Any of your opinions can share,aft SCT l on 15 mg Rivlimid about 4 months every day Zometa every month valcade every 2 weeks but l had heavy rashes and itchiness in wards about a week, when l on 15 mg had no problem and feel very active no pain issues no fatigue
tiredness the Haemotologydoctor now changed 10 mg linalidomide to every day,zometa, valcade as usual the problem is l on 10 mg and nowfeeling very tired, weak, down, so far l have no pain problem all good . What about it… read more
Moh
I have to take geritol, b-12 drops methyl 5,000 mg or iron supplement cause taking chemo makes me really fatigued and anemic. Revlamid does cause rashes and doctors do have to reduce dosages… read more
Discontinuing Revlimid And Starting POMALYST While On Maintenance Therapy
Due to a recurring itchy body rash developing when using Revlimid, I’ll be switching over pomalidomide with velcade and dex. POMALYST is 10 times more potent than that of lenalidomide. But what I’m reading, people seem to have less side effects although it’s in the same drug class. For those who are on POMALYST, what has been your experience?
Thanks !
Well I’m still taking revlamide 10 mg for maintenance at night but noticing back pain has doubled Shoulder pain too. Plus leg and feet cramps running to pee every hour or two all night long
Guess… read more
