I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.
I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.
Taking revlamid for almost a year with no problem and suddenly I developed a rash and now have diarrhea. Anyone have these problems? Thanks
It’s to help increase WBC.
I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options… read more
My husband started revlimid this week for maintenance. He had stem cell transplant in January 2020 and has been doing well. He is having itching mostly on his scalp. Has anyone else had this and how long did it last? Thank you.
Just was diagnosed on Wednesday and they are going to start Velcade, Revlimid and Decadron next week. I was reading that you must take a blood thinner with the Revlimid. Oncologist hematologist recommended a baby aspirin. Is this what everyone else is taking with Revlimid to prevent blood clots. Or are you taking something stronger? The risk of blood clots makes me nervous.
I have been on Revlimid for about two years and lately have been experiencing bouts of diarrhea. Is this common occurrence?
I started taking the drug at 10 mg and it floored me. Reduced drug level to 5mg and developed body rash. Presently on 2.5mg
Cost of drug actually increased as the dosage was reduced????