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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Revlimid"

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Revlimid

Revlimid

How long a length of time does a person stay on Revlimid

A MyMyelomaTeam Member

I was on it for 8 years. The dose was lowered several times in the 8 years due to side effects. The dr told me in France they have studied 2 years of maintance and had a positive response.

Does Anyone Take Dexamethasone And Revlimid As Maintence?

Does Anyone Take Dexamethasone And Revlimid As Maintence?

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

A MyMyelomaTeam Member

@A MyMyelomaTeam Member, which steroid did the doctor put you on?

Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid

Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid

I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.

A MyMyelomaTeam Member

Thanks so much John. I have been working the phones with regards to potential assistance. Have a great weekend.

What Is The Generic For Revlimid

What Is The Generic For Revlimid

A MyMyelomaTeam Member

I'm not on chemo now, but I got Revlimit from CVS and Part D/Humana helped pay for the prescription. I paid nothing. Medicaid worked with Humana, I believe. I had to apply for Medicaid. I could never… read more

Maintenance Therapy After Stem Cell Transplant

Maintenance Therapy After Stem Cell Transplant

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

A MyMyelomaTeam Member

Get a clonoSEQ test - preferably from a Bone Marrow Biopsy. If you’re Negative at 10 -6 (no cancer per million cells), lookup the MRD-SURE Report (web search) and discuss with your Doc about being on… read more

Diarrhea And Rash

Diarrhea And Rash

Taking revlamid for almost a year with no problem and suddenly I developed a rash and now have diarrhea. Anyone have these problems? Thanks

A MyMyelomaTeam Member

@A MyMyelomaTeam Member I have heard those can be really painful. I hope you're recovering and that the eliquis works well to prevent those in the future.

How Long Does Revlimed Do A Good Job? What Do You Take Next?

How Long Does Revlimed Do A Good Job? What Do You Take Next?

A MyMyelomaTeam Member

Hi Bill - if you're in complete remission, its old news to stay on MM Meds like Revlimid forever. Look into getting a clonoSEQ MRD test. If you're 10 -6 Negative (no cancer per million cells), then… read more

Revlimid

Revlimid

Do any Part D drug plans cover all of the cost of Revlimid? Which Part D drug policies pay the most on Revlimid in Colorado?
Thank you
Rock Obenchain

A MyMyelomaTeam Member

I never used Medicare or my supplemental insurance for Revlimid, I was able to get a grant. There are Cancer Nurse Navigators at the Cancer Center here and she is the one who found the grants for me… read more

Revlimid Itching

Revlimid Itching

My husband started revlimid this week for maintenance. He had stem cell transplant in January 2020 and has been doing well. He is having itching mostly on his scalp. Has anyone else had this and how long did it last? Thank you.

A MyMyelomaTeam Member

I had severe itching on my legs....the skin looked like lizard skin and I was miserable. That was the only place...weird. But I was using a steroid cream but then I found that Gold Bond lotion for… read more

Rising M Spike

Rising M Spike

When did your oncologist change your current treatment when your m-spike is rising?

A MyMyelomaTeam Member

So happy you are doing so well Karen! I had my stem cell in 2018 and been on Revlimid for maintenance since. I hope I can do as well as you.