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Top 10 Search Results for "Revlimid"

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Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid
A MyMyelomaTeam Member asked a question 💭

I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.

A MyMyelomaTeam Member

Your referral drug person should be able to help. There are several sources for assistance, American Cancer, Healthwell Foundation and others that may help. Best of luck!

My Husband Has Been In Remission After SCT For 2 Years, But Is Still On Oral Revlimid And Because Of The Side Effects Has A Poor Quality
A MyMyelomaTeam Member asked a question 💭

Of Life. Has anyone stopped Revlimid while in remission and stayed in remission

A MyMyelomaTeam Member

I'm am 2+ years off Revlemid maintenance and still in remission! I feel great! Ask your doc of this might work for your husband.

Revlimid
A MyMyelomaTeam Member asked a question 💭

How long a length of time does a person stay on Revlimid

A MyMyelomaTeam Member

That depends on how well the Revlimed is working. Sometimes even if you have achieved remission your oncologist may want to keep you on it to prevent relapse. It also depends on what type of MM you… read more

Does Anyone Else Get Rashes? I Have A Rash On My Neck (red Spots With White Pustules) That Worsens As I'm On 21 Days Of Revlimed And Clears
A MyMyelomaTeam Member asked a question 💭

When I'm on my 7 day off revlimid period. Could this be the revlimid?

A MyMyelomaTeam Member

Revlimid gave me a nasty rash. I was taken off ot it pretty quickly and put on Pomalyst. This was seven years ago. The Pomalyst has done very well.

Does Anyone Take Dexamethasone And Revlimid As Maintence?
A MyMyelomaTeam Member asked a question 💭

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

A MyMyelomaTeam Member

I completely agree - if you’re Induction gets you to or near normal Labs, please postpone your consideration of a SCT.

When I was Diag 2 years ago, I was MRD Negative (none per million) in 7 months… read more

I Am A Myeloma Patient. I Take Revlimid Every Day. Is There A Risk To Family And Friends To Be Around Me?
A MyMyelomaTeam Member asked a question 💭
6 Facts About Myeloma Maintenance Therapy Read Article...
A MyMyelomaTeam Member

Family members who are pregnant or planning to become pregnant must avoid contact with this medication. Otherwise there should be no problem with families and friends being around you.

Maintenance Therapy After Stem Cell Transplant
A MyMyelomaTeam Member asked a question 💭

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

A MyMyelomaTeam Member

they took me off Rivlmid after my SCT and only doing 2.6mg of Velcade biweekly. was told by transplant doctor revlimid would serve no purpose just make you feel bad

How Long Can Revlimed Maintenance Last? Thanks
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I was taking Relamid for about 7 months 1 1/2 years ago. Now not on for the rest of the time. I have SMM, so that may make a difference. Stay as healthy as possible. God Bless You Dale.

Maintenance Therapy
A MyMyelomaTeam Member asked a question 💭

My oncologist said that I’d be going to 10mg of Revlimid for maintenance therapy. Said I should feel much better. Anyone have firsthand experience??

A MyMyelomaTeam Member

Revlimid (Lenalidomide), immunomodulator… for maintenance, thanks for sharing.

I Am With Kaiser, They Are Pushing The Generic Form Of Revlimid.. Anybody Taking Generic Form Is My Question
A MyMyelomaTeam Member asked a question 💭

Kaiser is now only offering the generic form of revlimid.. The diarrhea just being on revl is way too much to handle sometimes. Kaiser is saying the generic form is the same, the side effects are the same, how do I know that. Plus , I Have been very lucky not to have paid very much for Revlimid, But the generic form I have to pay $50 for.. Does not make any sense.. I would rather stay on revlimid not the generic form

A MyMyelomaTeam Member

I think its before adjustment. I also found out recently that is based on a family of 4. Since its just the two of us, its much less - maybe $80K or so. My AON provider is going to submit a… read more