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I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.
Keep trying to get the grey cells to work. Crossword puzzles, word find games, crafts, crocheting, knitting, etc
While I was on Revlimid my brain did the same thing
Knitting and playing Words with… read more
I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options… read more
I just learned that I have been getting the generic Velcade since the beginning of July. I noticed there was huge price difference on my bill, and called my hospital to see if they had made a mistake. Turns out that it indeed was the correct pricing! It dropped $4000! That might also be why I've been feeling different after my last few injections. A little more run down, weaker and slightly nauseous. 🤔 Funny no one informed me of this at the infusion center.
My husband started revlimid this week for maintenance. He had stem cell transplant in January 2020 and has been doing well. He is having itching mostly on his scalp. Has anyone else had this and how long did it last? Thank you.
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