Hello all! I hope everyone is doing well. I’m wondering if my work career had anything to do with my issues. I worked as a R&D lab technician for 27 years and as a chemical operator for 7. The lab tech job had me working with toluene di-isocyanate, amine catalysts, styrene, ethylene oxide, propylene oxide, and other chemicals. My operator job at the plant dealt with producing pesticides. In that job, I worked with sulfur di-chloride, methomyl, pyridine, and methanol
The lab tech job comprised… read more
I did a ton of reading on this when I first got diagnosed with MM. I'm a carpenter and on the high risk list. The medical and scientific world conclude MM can't be said to be genetic, and they don't… read more
Welcome Louise. I am sorry for your loss. Take care.❤️ We're here for you 🙏🏽
So far I was the youngest at diagnosis, but longest living post-diagnosis. My brother was diagnosed almost a year after me, but died less than 2 months after his SCT. I will be 4years post SCT May 21… read more
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more
I’m sorry you are dealing with myeloma
I can only be grateful for how much research has been done and the success they’ve made in treating myeloma just in the past 5-10 years
Sending you love and… read more
What is CCML
Original diagnosis of lambda light chain myeloma but in remission after stem cell transplant
Cathy the light chain ratios are hard to understand. They can go up and down some too. I think they are more concerned with the pattern from month to month. All the best, Doloresđź«‚
Has anyone spoken to their oncologist about how the MM treatments are (hopefully) driving the numbers down to minimal residual disease but doesn’t address the genetic mutation in the bone marrow that’s producing the abnormal cells? Hence, MM comes back over time. We’re so focused on treating the disease with pills and injections, and new drugs for treatment that I never hear what the researchers are focused on to actually cure the disease.
This is the first paper I’ve read which addresses… read more
I think we all (City Governments should start then I think it would spread nationwide) should go back to GLASS containers that could be recycled and used for liquids and containers for food. Go back… read more
It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more
From day 1 my oncologist has said since multiple myeloma is incurable, there are no stages. So in over 10 years of treatments, stages have not come up. I tend to trust my oncologist 100% so I don’t believe in the stages.
I was "smoldering" and then "Full Blown". Thankfully my numbers and chart show me as barely being in remission. Yet still need the weekly treatments to stay there.