The only "staging" my oncologist did, was telling me I went from Smoldering Myeloma, to full blown myeloma. Otherwise, in 3 years, staging has never come up.

I have not been told what stage I am either I just know I have not been in remission since I found out I have MM so I am still here and I praise God for it

They do have staging systems for myeloma, I have read it is used for research purposes only. Myeloma is pretty much in our entire bone marrow. Emory and Northside Atlanta staged me at diagnosis. I think my high risk genetics are a much bigger predictor of how hard my myeloma has been to treat than the stage.

I was told stage 2, but some of the indicators do not fit me. Fortunately I do not have any bone lesions. I was very anemic and have stage 3b kidney failure. The Beta 2 and LDH were slightly elevated, but the free kappa light chains were 1600! I also have not broken any bones. The bone marrow showed 1q duplication (which assessed high risk) and trisomy 4 and 13. So, after 3+ years, I am stable with treatment and hoping for many more years of survival.

I was "smoldering" and then "Full Blown". Thankfully my numbers and chart show me as barely being in remission. Yet still need the weekly treatments to stay there.