Quick Links
Resources
About MyMyelomaTeam
Powered By
So confused, it took drs. 6 years to find anal cancer at a stage 4, how is this smoldering?
The 2 cancers are unrelated
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more
I found out by accident that my doctors notes show me as having stage 3 kidney disease! No one ever mentioned this, and when I asked about it my doctor seemed to think it was no big deal!
Huh. I seriously suggest you get an MM Specialist. I have a regular hematologist/oncologist that I see monthly, but I see a specialist every three months or so because they ONLY do MM and they know so… read more
I was diagnosed this year and to this day I've seen one image and it's been multiple images taken. My cancer was found via biopsy in my sacrem but the pain is radiating from my left hip to my ankle, I had radiation on my sacrem and more recently my femur. I've went from slow release morphine to Fentanyl patches and oxycodone for break through but now on fentanyl patches and Dilaudid. Just started Dilaudid today and pain in left hip Is horrible. My question is does this pain subside once in… read more
Are you seeing a Multiple Myeloma Specialist? If not I’d highly recommend it.
Please dont delay the treatment,better to go for second opinion. Best wishes 🙏
open enrollment for Healthcare Marketplace (I am 64) Virginia now has their own VA marketplace -my only choice. Only VA doctors are covered! no out of state specialists or trials? Im high risk and want to see a specialist in NY. any ideas? Get a job at starbucks for better insurance?
Great👍💖
I am so frustrated -- can't get approval from insurance to move things forward -- primary care physican is out of town, and is booked until March
WHY would a doctor order a CT scan instead of a MRI???
Cheryl
I was having problems breathing. I had a MRI which didn’t show anything wrong with my lungs. 6 months later I had a Ct Scan which showed my lower left lung is collapsed in multiple places. I… read more
Where can I find info specific to MIDD?
Hi Kathleen
https://en.wikipedia.org/wiki/Monoclonal_immuno... -a clear and comprehensive description of MIDD and how kidneys are affected
look on the net - there are many articles explaining this… read more
I see this going up.
I have a hard time getting any information out of my Oncologist.
Any suggestions on how to get information out of her.
All
She says is we are monitoring at times she says I don’t have Multiple Myeloma, and other times she does say I have Multiple Myeloma. So confusing.
I am taking Revelmid 15mg.
Hi Vince, are you able to get access to your patient portal? It helped me to look up my labs so I could understand why they were too low or too high.
