I'm Not Exactly Sure How Or Where To Start But I Will | MyMyelomaTeam

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I'm Not Exactly Sure How Or Where To Start But I Will
A MyMyelomaTeam Member asked a question 💭

I was diagnosed this year and to this day I've seen one image and it's been multiple images taken. My cancer was found via biopsy in my sacrem but the pain is radiating from my left hip to my ankle, I had radiation on my sacrem and more recently my femur. I've went from slow release morphine to Fentanyl patches and oxycodone for break through but now on fentanyl patches and Dilaudid. Just started Dilaudid today and pain in left hip Is horrible. My question is does this pain subside once in… read more

posted August 11, 2023
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A MyMyelomaTeam Member

Yes sir I've had all of those test.

posted August 12, 2023
A MyMyelomaTeam Member

I think sct is supposed to extend remission. Do you have Multiple Myeloma?
I just have no knowledge of the treatments you are getting but we are all different!
Do you have a Mutiple Myeloma specialist?
I don't have a specialist; oncologist/hematologist only, but I haven't heard about that procedure to find MM
I thought a bone marrow test wasin the hip
I just he they can stp your pain

posted August 11, 2023 (edited)
A MyMyelomaTeam Member

Are you seeing a Multiple Myeloma Specialist? If not I’d highly recommend it.

posted August 13, 2023
A MyMyelomaTeam Member

Roderick, Have you been diagnosed with Multiple Myeloma? Have you had a bone marrow biopsy?

posted August 12, 2023
A MyMyelomaTeam Member

From what I understand Car-T is for people who have relapsing or refractory MM. I had the SCT in May/June and am ending the 100 day recovery on September 1. They gave me the bone marrow transplant (SCT) because 4 cancer spots were on my liver. They are gone and only a little is left in my vertebrae. I will post my experiences soon.

posted August 12, 2023

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