Quick Links
Resources
About MyMyelomaTeam
Powered By
What is CCML
My car t lasted for a year and a half. I was very happy! Now I’m on a new drug that I’m happy with. It’s been over a year.
I do not about cart but I do know it is hard to gett
Told my hematologists about all the pain I’ve been having in random places and his suggestion was a steroid taper? Anyone else take a steroid for bone pain?
I’m on maintenance of 5Mg, my pain will come in my ankle, hip or back through the end of my cycle, I will take Dexamethazone 4mg for a couple of days that seems to work for me
And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests
Netta, please ask for a printout of your lab work that is ordered by your oncologist every time they do your monthly doctor's labs. Keep them together in a loose-leaf binder organized by date. This… read more
It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more
Though my blood work looks better…Even after ASCT I’m sad to admit I don’t feel any better.
I am Heavy chain A, Light chain Kappa, High Risk.
Stage:R-ISS 2, del 17
Hey Eileen. What does your doctor say? What does your family say? Could you ask about a different treatment? Or a dosage adjustment on your current protocol? It could be the myeloma itself making you… read more
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more
I was diagnosed with multiple Myeloma in April of 2021 after several spinal fractures were found. I had a stem cell transplant in Nov 2021. I was on Darzalex and Revlimid, but recently went off the Darzalex. I also no longer take dexamethasone or Acyclovir. I am in very good partial remission. I get a Zometa infusion every 3 months .
Bev , my husband has had two teeth pulled by an oral surgeon. We felt very comfortable with his knowledge of bone strengthening drugs and myeloma. My husband has not inquired about an implant. They… read more
My paraprotien figures are continuing to rise.Hopefully they will start to come down now i hsve started a course of lanidomide.the only thing worrying me at the moment is a continuous pain in my right side and lower back.The best way to describe it is the same as a severe stitch.I have tried all manner of pain killers,nothing seems to work it just constantly aches.
I agree with Mark. Talk to your doctor about any new pain.
