Told my hematologists about all the pain I’ve been having in random places and his suggestion was a steroid taper? Anyone else take a steroid for bone pain?
My initial treatment included Dexamethazone but I am no longer prescribed it. I struggle with back pain from 6 compression fractures and the associated muscle fatigue pain when I try to be physically active. I use a 25mg Fentanyl patch and sometimes Tylenol. I also have Zometa infusions every 3 months. Lately I have found gentle stretching exercises several times a day along with walking has helped with moderating the pain. When the pain increases I know I have to stop what I am doing and take a rest. I am always looking for holistic ways to manage my pain on a daily basis. The doctors have not offered many suggestions. My goal is to get off the Fentanyl. My greatest challenge is self control in my activities. I always want to do more. Self insight and self care is critical. Learning to say "no more" is my challenge.
Aredia bone strengthener has helped. I took it prior to my stem cell transplant and after that as well, once every three months for over two years. I am finished with it now, and made a difference. I still will get some aches in my back if I overdue it. Other than that, it is much better.
I believe there are others. Check with your doctor. He may increase dose of Gabapentin or try another. As always make sure of all the side effects and interactions new drug can cause including effect on disease(s). I"m just a novice but this is my experience with doctors when they prescribe different drugs.I have to educate myself to be absolutely sure of it(s) safety and effectiveness.
Lolobro, Zomets and Aredia are Biophosphonates and are used to strengthen bones, not a steroid. Prednisone and Dexamethasone are Steroids. With Myeloma bone pain it is not usually tapered. You are put on a dose and stay on it. Love, Marcia 🌸
Okay now I understand, thank you. Steriods are a big part of myeloma treatment. They are part of all protocols especially at the beginning. Hopefully the treatments will help your pain. I go to Winship Friday for bone marrow results. Wish me luck🙏