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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Steroid For Bone Pain?

Steroid For Bone Pain?

Told my hematologists about all the pain I’ve been having in random places and his suggestion was a steroid taper? Anyone else take a steroid for bone pain?

A MyMyelomaTeam Member said:

Aredia bone strengthener has helped. I took it prior to my stem cell transplant and after that as well, once every three months for over two years. I am finished with it now, and made a difference. I still will get some aches in my back if I overdue it. Other than that, it is much better.

posted about 1 year ago
A MyMyelomaTeam Member said:

Lolobro, Zomets and Aredia are Biophosphonates and are used to strengthen bones, not a steroid. Prednisone and Dexamethasone are Steroids. With Myeloma bone pain it is not usually tapered. You are put on a dose and stay on it. Love, Marcia 🌸

posted over 2 years ago
A MyMyelomaTeam Member said:

Yes, prednisone tapered for 8 days

posted over 2 years ago
A MyMyelomaTeam Member said:

My initial treatment included Dexamethazone but I am no longer prescribed it. I struggle with back pain from 6 compression fractures and the associated muscle fatigue pain when I try to be physically active. I use a 25mg Fentanyl patch and sometimes Tylenol. I also have Zometa infusions every 3 months. Lately I have found gentle stretching exercises several times a day along with walking has helped with moderating the pain. When the pain increases I know I have to stop what I am doing and take a rest. I am always looking for holistic ways to manage my pain on a daily basis. The doctors have not offered many suggestions. My goal is to get off the Fentanyl. My greatest challenge is self control in my activities. I always want to do more. Self insight and self care is critical. Learning to say "no more" is my challenge.

posted 5 months ago
A MyMyelomaTeam Member said:

Always research and be your own advocate.

posted over 2 years ago
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