Told my hematologists about all the pain I’ve been having in random places and his suggestion was a steroid taper? Anyone else take a steroid for bone pain?
Aredia bone strengthener has helped. I took it prior to my stem cell transplant and after that as well, once every three months for over two years. I am finished with it now, and made a difference. I still will get some aches in my back if I overdue it. Other than that, it is much better.
Lolobro, Zomets and Aredia are Biophosphonates and are used to strengthen bones, not a steroid. Prednisone and Dexamethasone are Steroids. With Myeloma bone pain it is not usually tapered. You are put on a dose and stay on it. Love, Marcia 🌸
Yes, prednisone tapered for 8 days
My initial treatment included Dexamethazone but I am no longer prescribed it. I struggle with back pain from 6 compression fractures and the associated muscle fatigue pain when I try to be physically active. I use a 25mg Fentanyl patch and sometimes Tylenol. I also have Zometa infusions every 3 months. Lately I have found gentle stretching exercises several times a day along with walking has helped with moderating the pain. When the pain increases I know I have to stop what I am doing and take a rest. I am always looking for holistic ways to manage my pain on a daily basis. The doctors have not offered many suggestions. My goal is to get off the Fentanyl. My greatest challenge is self control in my activities. I always want to do more. Self insight and self care is critical. Learning to say "no more" is my challenge.
We never share your personal information with anyone.