Is There Some Point When You Say Enough Is Enough And Discontinue MM Treatment? I’m One Year Into Treatment. | MyMyelomaTeam

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Is There Some Point When You Say Enough Is Enough And Discontinue MM Treatment? I’m One Year Into Treatment.
A MyMyelomaTeam Member asked a question 💭

Though my blood work looks better…Even after ASCT I’m sad to admit I don’t feel any better.
I am Heavy chain A, Light chain Kappa, High Risk.
Stage:R-ISS 2, del 17

posted May 4
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A MyMyelomaTeam Member

Hey Eileen. What does your doctor say? What does your family say? Could you ask about a different treatment? Or a dosage adjustment on your current protocol? It could be the myeloma itself making you feel awful, but it could be the treatment too. So maybe a different protocol would help? I was ready to quit back in 2017. Even before my transplant. I was miserable. But I stuck it out and I'm doing okay now. I respect your decision though. Sending big hugs 💜

posted May 5 (edited)
A MyMyelomaTeam Member

Check with your Dr. I was offered medication vacations. If your high risk that may be a good option. I was on revlimid almost 8 years for maintence. Now off all meds due to having small strokes. I was considered in a deep remission most of the 8 years. 🙏🏼🙏🏼

posted May 8
A MyMyelomaTeam Member

I had an ASCT in May, 2020. I only had a partial response. I had stage 3 MM and light chain kappa cells at 4,728. I have had 3 protocols since then and never went into remission. I felt like giving up treatment last year and my dr put me on teclistamab. I went into complete remission in one week and am still in remission. I will go to once monthly injections in June. I’m so glad I didn’t give up. Hang in there💕

posted May 7
A MyMyelomaTeam Member

Wow!!!👍😁

posted May 7
A MyMyelomaTeam Member

Deciding when to discontinue treatment for multiple myeloma (MM) is a complex decision that should be made with your healthcare team. Here are some key points to consider:

1. **Treatment Goals**: Understand what your treatment goals are. Are they to achieve remission, manage symptoms, or improve quality of life?
2. **Tr... read more

Deciding when to discontinue treatment for multiple myeloma (MM) is a complex decision that should be made with your healthcare team. Here are some key points to consider:

1. **Treatment Goals**: Understand what your treatment goals are. Are they to achieve remission, manage symptoms, or improve quality of life?
2. **Treatment Response**: Regular assessments to monitor how your myeloma is responding to treatment are crucial. If treatments are not effective, your doctor might adjust or change your treatment plan.
3. **Side Effects**: If the side effects of the treatment are significantly impacting your quality of life, discuss with your doctor whether adjustments or alternative treatments are available.
4. **Overall Health**: Your overall health status plays a critical role in determining whether to continue treatment. This includes considering other health conditions you might have.
5. **Personal Preferences**: Personal values and quality of life considerations are important. Some patients may choose to stop treatment to focus on palliative care, which focuses on symptom management and quality of life.

It's important to have open and ongoing conversations with your healthcare team about your treatment options, the potential benefits and risks, and your personal preferences. They can provide guidance tailored to your specific situation.

 This AI-generated response comes from MyMyelomaTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

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posted May 4

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