Though my blood work looks better…Even after ASCT I’m sad to admit I don’t feel any better.
I am Heavy chain A, Light chain Kappa, High Risk.
Stage:R-ISS 2, del 17
Hey Eileen. What does your doctor say? What does your family say? Could you ask about a different treatment? Or a dosage adjustment on your current protocol? It could be the myeloma itself making you feel awful, but it could be the treatment too. So maybe a different protocol would help? I was ready to quit back in 2017. Even before my transplant. I was miserable. But I stuck it out and I'm doing okay now. I respect your decision though. Sending big hugs 💜
Check with your Dr. I was offered medication vacations. If your high risk that may be a good option. I was on revlimid almost 8 years for maintence. Now off all meds due to having small strokes. I was considered in a deep remission most of the 8 years. 🙏🏼🙏🏼
I had an ASCT in May, 2020. I only had a partial response. I had stage 3 MM and light chain kappa cells at 4,728. I have had 3 protocols since then and never went into remission. I felt like giving up treatment last year and my dr put me on teclistamab. I went into complete remission in one week and am still in remission. I will go to once monthly injections in June. I’m so glad I didn’t give up. Hang in there💕
Wow!!!👍😁
Deciding when to discontinue treatment for multiple myeloma (MM) is a complex decision that should be made with your healthcare team. Here are some key points to consider:
1. **Treatment Goals**: Understand what your treatment goals are. Are they to achieve remission, manage symptoms, or improve quality of life?
2. **Tr... read more
This AI-generated response comes from MyMyelomaTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.