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So far I was the youngest at diagnosis, but longest living post-diagnosis. My brother was diagnosed almost a year after me, but died less than 2 months after his SCT. I will be 4years post SCT May 21… read more
Original diagnosis of lambda light chain myeloma but in remission after stem cell transplant
Cathy the light chain ratios are hard to understand. They can go up and down some too. I think they are more concerned with the pattern from month to month. All the best, Doloresđź«‚
I feel fine, but I know my ANC is dangerously low. My doctor will probably have me start injections of neupogen.
Thanks,
Kara
I have a gain of 1q. which puts me at high risk.
@A MyMyelomaTeam Member Having high IgA, your question interested me enough to look it up. Here's a link to an article although I'll freely admit I understand about 10% of it at best. Yes, there are… read more
Welcome Louise. I am sorry for your loss. Take care.❤️ We're here for you 🙏🏽
I am now in Active MM and it is escalating at an alarming rate. My light chain ratio went from 80% to 182% in 4 weeks. All the other numbers are also going crazy. I start chemo Tuesday. I will be on the following:
Daratumad, Velcade, and Cyclophosphamide. Any advice would be greatly appreciated.
Laurie,
People confuse “Never, ever give up, with Never lose faith.” I like to think that as each day starts, I’m one step closer to Paradise, so I better start tidying up.
It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more
There are different translocations, some are high-risk, and others are not
For instance, translocation of 11/14 is one of the most common and more benign genetic translocations
I just had my first follow-up for my Daratumumab treatment (based on bloods taken at 3/4 weeks and am disappointed that I haven’t started responding yet. I am in complete remission but the doctor is using the Dara to get me into MRD negativity. My light chains are still abnormal and at the levels of MGUS. Can anyone say that they took longer to start responding? I am extremely worried about drug resistant clones…
From what I’ve read, MGUS is usually the precursor of Multiple Myeloma. This is what was linked to mine.
What is CCML
