Does Anyone Have Smoldering Myeloma?are You Doing Treatment? | MyMyelomaTeam

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Does Anyone Have Smoldering Myeloma?are You Doing Treatment?
A MyMyelomaTeam Member asked a question 💭
posted December 12, 2018
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A MyMyelomaTeam Member

I was diagnosed with high-risk smoldering myeloma in early 2022. Started treatment with Revlimid and Dex. My numbers are coming down slowly. Prior to treatment, the MM specialist showed me research done on both progressions to full-blown MM and survivability! That was all I needed to see to make my decision. Anything I can do to stall any damage to my major organs and bones I will do! Hoping for the best results!

posted August 15, 2022
A MyMyelomaTeam Member

I was diagnosed with Smoldering Myeloma over ten years ago… . My doctors at Winship Cancer Center, Emory University-recommended only regular follow-up with office visits and labs for my particular case about every 3 months. My labs have shown no significant change over time in my condition.

posted June 17, 2022
A MyMyelomaTeam Member

I have had SMM for 6+ years. I have blood tests every 3 months, but no treatments. Dr. Doesn't want to do anything until my symptoms elevate for fear of causing me to go into MM. I started out with dizzy spells. Blood tests at that time caused the SMM diagnosis. I had anemia which was the cause of the dizzy spells.
I have adjusted to life with SMM and seldome think about it. There is so much to do before I don't need this body anymore. I don't drink, but I enjoy good cigars. I love my life and family and plan to enjoy every minute God gives me.

posted May 3, 2020
A MyMyelomaTeam Member

Yes I have smoldering myeloma which started as MGIS in April 2019. I have been treated at Dana-Farber in Boston for the last 6 months. The treatment is with Daratumumab infusion and Revlimid medication. I started with 8 one week treatments in October and now every other week and soon to once a month depending on blood results. I can’t say enough about my wonderful treatment at DFCI.

posted April 6, 2020
A MyMyelomaTeam Member

Been diagnosed with SMM for about a year now. No treatment as of yet. Went to John Hopkins Hospital, and was told that if I was going to get cancer that MM was the best kind. It can have a long life span. And with me having SMM, even longer. I do not care what kind of cancer- I want it out of me.

posted February 8, 2019 (edited)

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