Is there a backup treatment if revlimid rash (which is bad) can’t be controlled. Any ideas how to best dean with revlimid rash?

He orders transfusions. Usually when I go for the tests it is at 6.1 to 5.5 and I am super weak plus needing oxygen to function. I do not have an oncologist, he dismissed me as untreatable. Is there anyone else on here who is going this route?? How many times can I have trasfusions??

Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings

Is it common for a doctor to see that the kappa light chain is out of normal range and the IgG is raising and the M spike is stable? She’s keeping me on the same medication 4 mg of Ninlaro every Wednesday for three weeks and 21 days on 25 mg of Revlimid 4 mg of decamethazone on the Wednesdays that I take the in Ninlaeo?

I’m confused and perplexed.

I will see oncologist next week but blood tests and symptoms are classic myeloma. What is the immediate treatment for the bone pain to stop the myeloma growth? I just sit here imaging my bones being eaten away everyday.

i just received my ct scan for mouth and jaw ,my oncologist nurse call me after that and told me we need to do biopsy from ur mouth , doctor Cowen suspect it's the myeloma that do that in ur mouse, even my cbc came today very good , m spike 0.1, she told me he is not sure, , any help with reading my ct scan,, and if its myeloma in my mouth my question:is at can be treated?and if somebody experience like my situation I would appreciate if he can tell me his story thanks

And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests

I just had my first follow up after my SCT in November with my local oncologist. He just yelled at me because the nurse didn’t go through my med list one by one. She asked if anything changed. No. I stupidly asked doc if he really felt I should be taking 2400 calcium daily with D3 if my calcium is 10 already. He screamed at me there’s nothing here about your calcium pills. Final answer was ‘ it says you’re taking 200 a day’. No clue why his report said that, but he had no answer for me. He has… read more

I see this going up.
I have a hard time getting any information out of my Oncologist.
Any suggestions on how to get information out of her.
All
She says is we are monitoring at times she says I don’t have Multiple Myeloma, and other times she does say I have Multiple Myeloma. So confusing.
I am taking Revelmid 15mg.