Ilene,
If doctors knew you were going to live to 95, they would treat you. I understand they’re not wanting to give you toxic amounts of chemo at your age. Also, the chemo for bladder cancer is probably different than that for MM. You may be able to tolerate a low dose of both. You need a second opinion, and can do it on-line. You don’t have to travel.

Eileen, could your daughter set you up with a telehealth video visit with a myeloma Specialist? My hemoglobin was super low like yours when I was diagnosed. Treatment helped tremendously. Hoping they can get you something not too aggressive that will stabilize your blood counts. Big hugs your way 💕🥰

Hi - For a period of time my HBG consistently fell below 7.0. When it did my Oncologist immediately ordered a blood transfusion. In a period pf 12 months, beside my reg meds,i had 7 transfusions. Now i stay at close to 10.1, which is good for me. I am concerned your oncologist dismissed you - find a new one as soon as you can! Eagle

Stand up for yourself and don't let a doctor tell you that you are no longer treatable. You are a strong women so don't give up on yourself. If you have lived to be 86 years old that makes you a winner in my book. I also live in a rural area and my drive is 110 miles round trip, so I know how you feel after trips like this. Find another oncologist and get back on track. God Bless you

I am going to a NCI center; I was on Revlimid for maintenance. However my heme/onc stopped this several months ago. I am currently on no maintenance meds at all. This makes me a little uncomfortable since he has not explained his reasoning to me. When I ask, the answer given is he felt that I was not tolerating the Revlimid. No additional info concerning possible other treatments available. I just want to know what the “game plan” is. I feel like I am at the best place for treatment (all things considered) but I am beginning to think I need to go elsewhere for a second opinion.

PLEASE I would like some opinions on this. I don’t want to relapse because I was not given maintenance meds.