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Strange Docs
A MyMyelomaTeam Member asked a question 💭

I just had my first follow up after my SCT in November with my local oncologist. He just yelled at me because the nurse didn’t go through my med list one by one. She asked if anything changed. No. I stupidly asked doc if he really felt I should be taking 2400 calcium daily with D3 if my calcium is 10 already. He screamed at me there’s nothing here about your calcium pills. Final answer was ‘ it says you’re taking 200 a day’. No clue why his report said that, but he had no answer for me. He has… read more

posted February 14
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A MyMyelomaTeam Member

It sounds like you may be taking too much calcium especially if you’re level says 10. Too much is just as bad as too little!!! He should not be screaming you have enough to deal with!!! Especially when it’s errors within his own team!!! If he needs to scream scream at his nurse but not you!!!
Surely there’s another oncologist you can see!!! No you needed blood work what an idiot!!
Please be your own advocate at this point it makes me mad because we pay high dollar for this kind of treatment and I’m sort but it is wrong!!!!
I’m so sorry you are having to deal with that and yes you do deserve better tell him I said so too!!!!

posted February 17
A MyMyelomaTeam Member

Im in PA and about to text him again. Allow 48 hours for an answer. Time is up in 10 minutes. I’ve had enough. This doc is probably in his 40’s. Don’t know how long he’s been in this country. Accent is very strong.

posted February 22
A MyMyelomaTeam Member

My regular oncologist is super smart, but her bedside manner could use some work. 😏

posted February 22
A MyMyelomaTeam Member

My oncologist and NP oncologist are very patient, polite and thorough. They gives me time to ask any questions and give me honest answers. I scrutinize my labs every month, looking for any increases or decreases in the numbers. If I ask an inquiring question they do not brush it aside, but explain it to me. I was in the medical field for 50 years as a lab tech and medical assistant. When you know so much background info, you can speculate the smallest changes as good or bad. It helps to have a good connection with your provider, even asking me about my personal life and hobbies!

posted February 17
A MyMyelomaTeam Member

It is good to expand your support team, you need to form these relationships. I only talk with my oncologist every 3 or 4 months now, but since I receive my treatments in another town, I speak with the local cancer clinic doctor monthly and the nurses in the cancer clinic 3 times a month during my treatments. All of them are knowledgeable in the side effects and quality of life type of questions and I reserve the more treatment type questions for the oncologist. Also, there are some very helpful patients and caregivers on this site. I guess I am just recommending you don't put all your dependance on the one specialist, especially since he doesn't sound very useful anyway. And I agree with the others that its time to find another Oncologist or multiple myeloma specialist. You deserve respect.

posted February 14

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