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is this a stigma associated with Multiple myeloma?
Agree with other replies. A Consultant even said well, you don’t look like you are in pain or have Cancer, even though I look as pale as a ghost.. But generally now just say I’m Ok thank you. It's so… read more
Thanks Ambassadors for all that you do! This support group is so helpful while dealing with Multiple Myaloma! May God Bless you all
Hi Fred. I am doing well today. It's beautiful here in Georgia. Getting my from porch ready to be painted 💕🌻
When one is diagnosed with MM, is MGUS and/or Smoldering MM always a precursor which goes undiagnosed until the full-blown MM diagnosis? Just wondering how long before my husband's MM diagnosis in March 2019 might he have had MGUS and/or Smoldering MM and no one identified it. He is of the opinion that he had it long before, since the pelvic lesions and the spine vertebrae deteriorations had advanced so far.
I was never diagnosed with MGUS. I went right to SMM then active
Thank you MarkParker. I have read about poo for a very long time even before I got cancer. Its amazing what us older adults including the men will talk about now. I'm amazed at what all everyone… read more
My IgG and IgM are low low and the IgA is high high and the Kappa Light Chain is rising... so I was at UPenn yesterday and received guidance for the IviG treatments. Thoughts?
I have had four infusions two were in the chemo unit then for some reason they said that I had to take them at home but once we did it a few times we realized it wasn’t as complicated as the booklet… read more
Multiple myeloma newly diagnosed
It's a money thing too, hard to go outside of the lines if our insurance will not cover it. We have to demand it , refuse standard protocol. Say enough is enough! I want this or just supportive care… read more
He said about the same thing. Dealing with it. Got to get meds in me.
I did not have a stem cell transplant immediately due to heart issue. that has been resolved. I am now debating on staying on just the maintenance regimin because it is working or go ahead and go through the SCT. Any recommendations? Is the stress of the transplant worth it?
If the doctor has declared that you are in remission, it won’t hurt continuing maintenance treatment till the myeloma relapses. That could be a long while and might be worth it. Based on your blood… read more
Recovering from stem cell I sleep a lot have a lot of back pain due to damage from cancer compression fractures and lost 4” in height with curvature in spine due to diagnosis so late at stage 3
But… read more
Thats a good one 🙂
