I Am Approaching Time For My Stem Cell Transplant…would Love To Hear How That Went From Anyone Who Has Had One. | MyMyelomaTeam

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I Am Approaching Time For My Stem Cell Transplant…would Love To Hear How That Went From Anyone Who Has Had One.
A MyMyelomaTeam Member asked a question 💭
posted February 1, 2023
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A MyMyelomaTeam Member

That's is so truthful I had my done in September everybody was telling me make sure you walk that is part of your recovery I am in remission 🙌 🙌

posted February 2, 2023
A MyMyelomaTeam Member

You will need a central line for harvesting, usually done in interventional radiology under sedation. You are taught how to give yourself growth factors to stimulate your stem cells. I also had Mozibil to make the cells come out of my bone marrow. You go to the clinic and they check your blood to see if you have enough stem cells in circulation. You are them hooked to an apheresis machine to collect your cells. Some people have to go only one day, others take several days. Took me two days to get enough for two transplants. They like to get enough for two, if possible. They then freeze your cells. Apparently they can be frozen for many years. You can be inpatient or outpatient for the transplant. Depends on the center you go to. I was admitted to the hospital and given high dose Melphalan that night. You will want to chew on ice while the chemo is infusing so you don't get mouth sores. I rested the next day. The following day I got my stem cells back in my central line. Took 20-30 mins. By day 6 my white count was 0.0, I had to have blood and platelet transfusions. This is normal. By day 14 my bone marrow had recovered enough that I could go home. I got sepsis and C diff diarrhea. Had home health for antibiotics. It was hard but doable. The pre-testing and collection are actually harder than the transplant, for me anyway. Pre-testing for me included PET scan, bone survey, EKG, Echo, Chest X-ray, bone marrow biopsy, 19 tubes of blood for labs. You have to meet with the social worker, financial, nurse to teach you how to give shots and irrigate you line. The doctor sign your permit. Hope this helps

posted February 1, 2023
A MyMyelomaTeam Member

I had my SCT in May of 2021. They do harvest the stem cells from a temporary catheter in your neck vein (not artery).It took 3 days to get enough for me. You stay close to the hospital for that . Then I spent 10 days for the SCT. Its no joke but you can do it. After you are really tired but it gets better. I am MRD negative on last bone marrow biopsy in August. I get monthly labs. Only on Revlimid for maintenece. Read my story. I am now walking daily, go to gentle yoga classes and fell really good. I am lucky I have little pain. I had many lytic lesions in my spine but I seem ok. I do take many supplements and herbs.

posted February 4, 2023
A MyMyelomaTeam Member

I had my set a year or so ago. My process went as follows. They inserted a port type tube in my big artery around my heart. I spent one day having my stem cells harvested. The stem cells were "processed", not sure what that involved. A few days later I checked into the hospital(Barnes Jewish) and was placed in a clean room. They gave me a. dose of mega chemo that knocked out thr mm and my immune system. I rested one day and then they put in my stem cells. My immune system was rebuilt by the stem cells. A few days or weeks later I was checked out of the hospital.

posted February 2, 2023
A MyMyelomaTeam Member

Thanks…I’m a little scared but I know I can do it. I have a good Dr.

posted February 1, 2023

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