I can’t remember who said it in this group, but back a short while ago I recall this MM warrior’s awesome comeback to people who kept telling him he didn’t look sick.

He said he’s learned to say back to them…..”If only I felt as good as I look!” or something very similar. Which I feel is a great comeback, as many don’t realize how MM can take so much out of you that isn’t necessarily visible. I look at MM very much like an iceberg. Only so much is visible, but the big problem or issue isn’t necessarily visible.

I just say makeup works wonders just be glad you didn’t see the before look!!!!
Lol and that’s the honest to Gods truth!!!!

Everyday my friends, relatives, neighbors and coworkers say, “you look good…” I say “I feel good, I knew I would!” And they laugh. Almost every day I feel good, not great, I know I’m sick but I look good and feel good…… for now. It’s just that in the future we know things will turn and then not so good. We just have to take it day by day.

Serendipity
In the beginning of my diagnosis and for several months I definitely looked sick. I lost weight and my face was very thin. I'm a small person so if I loose 5- 10 pounds it shows. I continued to get better so I looked better along with adding back a few pounds. I don't have problems with the steroids making me gain weight but for a few days and after that I go back down. Everyone does tell me I dont look sick. They even say I look better than they do and they aren't sick...lol.
Yes, people dont under the pain I'm in because I don't look sick so I definitely can relate. I guess that's a good thing. I'd rather look healthy than not. Hang in there. We are in this together.

Yes, the biggest problem with myeloma treatment is the overwhelming fatigue. Most of us gain weight with the steriods. So people don't understand why we don't look sick.