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A MyMyelomaTeam Member asked a question 💭
Texas City, TX

is this a stigma associated with Multiple myeloma?

November 20, 2023
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Myeloma and Ethnicity: Is Race a Risk Factor in Multiple Myeloma? Read Article...
A MyMyelomaTeam Member

Oh yes. When someone says, “Gee, you look great.” My usual response is, thank you I wish I felt as good as I look. On rare occasions I end up telling them that most of the compilations are internal.

November 25, 2023
A MyMyelomaTeam Member

I can relate to you. I always say I am doing good! but that is not the truth. I have extreme numbness foot to lips. Constint back ack, lack of energy, poor sleep. I guess other than that I feel good! ,

November 26, 2023
A MyMyelomaTeam Member

I have had that comment made to me many times. Kind of weird as I have a lot of back pain and fatigue. I generally avoid getting into how I feel and just say thank you.

November 25, 2023
A MyMyelomaTeam Member

thank you all for your comments. I thought there was an article that helped address that concern.. does anyone know or have a thought on that?

November 26, 2023
A MyMyelomaTeam Member

Agree with other replies. A Consultant even said well, you don’t look like you are in pain or have Cancer, even though I look as pale as a ghost.. But generally now just say I’m Ok thank you. It's so difficult., trying to be positive all the time.

November 28, 2023

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A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

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