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I was diagnosed with multiple Myeloma in April of 2021 after several spinal fractures were found. I had a stem cell transplant in Nov 2021. I was on Darzalex and Revlimid, but recently went off the Darzalex. I also no longer take dexamethasone or Acyclovir. I am in very good partial remission. I get a Zometa infusion every 3 months .
Bev , my husband has had two teeth pulled by an oral surgeon. We felt very comfortable with his knowledge of bone strengthening drugs and myeloma. My husband has not inquired about an implant. They… read more
I feel fine, but I know my ANC is dangerously low. My doctor will probably have me start injections of neupogen.
Thanks,
Kara
I have a gain of 1q. which puts me at high risk.
It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more
With multiple myeloma I would like to know can you still work a job?
I know we run the risk of our immune system being compromised. We also run the risk of infections and fractures.
Yes, it is. I was actually a Wound Care nurse specialist when I got diagnosed. I took early retirement. I actually applied for SSDI. I got it right away. I was very sick at diagnosis though. My… read more
I am seeking affordable IVIG. Dr has prescribed but insurance has denied preauthorization and appeal.
I found an article in HEALTHTREE.ORG that speaks to IVIG preventing myeloma cell growth and actually killing myeloma cells. As I am still smoldering, this line of treatment speaks to me. https://healt… read more
Healing takes weeks instead of days.
Yes, healing is slow. As above, but also due to lowered immunity caused by the treatment.
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more
Question I have:
Should I be in this group if I only have SMM. Everyone else in here has MM. Just confused and concerned, but this group is very helpful in gathering information. On what I might be experiencing at a later time........
I started at MGUS 7 years but now at SMM just 3 months blood work
Does anyone here have both Multiple Myeloma and Kidney Disease? My husband has Stage 3, high risk MM and Stage4/5 kidney disease. The myeloma has damaged his kidneys. Does anyone else deal with both of these?
Bone disease
What is CCML
