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So confused, it took drs. 6 years to find anal cancer at a stage 4, how is this smoldering?
The 2 cancers are unrelated
And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests
Netta, please ask for a printout of your lab work that is ordered by your oncologist every time they do your monthly doctor's labs. Keep them together in a loose-leaf binder organized by date. This… read more
Right now my parathyroid and calcium are too high. I'm waiting for an appointment with an endocrinologist.
Thank you for your information. I will check it out!
Thank you for that very informative explanation @A MyMyelomaTeam Member !
Thanks for sharing!
Karla
Apparently when our Syracuse doctor sent a report to our Florida oncologist, he said that my husband has IgA Myeloma. We had never heard it classified this way before, and our Florida oncologist also said that none of his tests showed that. Wondering if anyone here has IgA Myeloma and if so, what test was done to determine that?
Serum Immunofixation Result: Immunofixation shows IgA monoclonal protein with kappa light chain specificity. The result confirmed on concentration. igG normal, igA normal, igM 23 low. S, Qn, Free K+L… read more
I see this going up.
I have a hard time getting any information out of my Oncologist.
Any suggestions on how to get information out of her.
All
She says is we are monitoring at times she says I don’t have Multiple Myeloma, and other times she does say I have Multiple Myeloma. So confusing.
I am taking Revelmid 15mg.
Hi Vince, are you able to get access to your patient portal? It helped me to look up my labs so I could understand why they were too low or too high.
Has anyone found a good form either online or printable to track myleoma blood work
Kathryn, I have good patient access as well. I see my results the same time my doctor does. I guess some facilities don't have a patient portal yet.😏
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more
Ok I know this might be petty, 🫤 but if my MGUS has become SMM, why would the Hematologist/Oncologist state: “His myeloma parameters will need to be followed” in her notes? Someone with more info than me, please explain this. Thank you thank you!
So true. We are all so different. Labs need to be watched closely by knowledgeable Drs. Life events, etc can trigger a latent disease process.
