Ok I know this might be petty, 🫤 but if my MGUS has become SMM, why would the Hematologist/Oncologist state: “His myeloma parameters will need to be followed” in her notes? Someone with more info than me, please explain this. Thank you thank you!
Because it usually develops into MM. In my case it took about 4.5 yes. They would check my blood every 3 months at first then 2 twice a year after a couple more years. I noticed something was wrong when I felt weak and somewhat dizzy due to anemia
I would check with the dr. They watch labs closely but that’s not always the tell tale sign. I had SMM for 9 years. If it’s high risk they watch you closer. I had a Bone marrow biopsy after 9 years that showed active MM. labs did not see the change for me. Look up the Promise study. They are actively watching SMM and MGUS to see if and when treatment should begin. You should also see a MM specialist if you haven’t yet.
I would recommend that you review your concerns with your oncologist, but also join Healthtree for your peace of mind. There are resou ce articles on this site too. Healthtree has extensive information located in Healthtree University regarding MGUS, SMM, lab tests and multiple myeloma. Educated patients will experience less stress and improves communication with their healthcare team by understanding and outlook.
This is just my guess, but they would want to follow them see if they are remaining Where they are or increasing to active MM.
As a collective term, I believe, myeloma parameters refers to the blood levels that are followed that determine whether the status has changed from MGUS to SMM to Stage 1-3 myeloma. That would be SPEP, Immunoglobulins, Kappa/Lambda ratio. CBC and CMP is generally also drawn. There are other tests that are ordered initially and periodically but I think these are the basic ones that would be called 'parameters'.