Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question đź’­
Foothills of NC

Ok I know this might be petty, 🫤 but if my MGUS has become SMM, why would the Hematologist/Oncologist state: “His myeloma parameters will need to be followed” in her notes? Someone with more info than me, please explain this. Thank you thank you!

October 14, 2022
 · 
Reactions
A MyMyelomaTeam Member

Because it usually develops into MM. In my case it took about 4.5 yes. They would check my blood every 3 months at first then 2 twice a year after a couple more years. I noticed something was wrong when I felt weak and somewhat dizzy due to anemia

October 14, 2022
A MyMyelomaTeam Member

I would check with the dr. They watch labs closely but that’s not always the tell tale sign. I had SMM for 9 years. If it’s high risk they watch you closer. I had a Bone marrow biopsy after 9 years that showed active MM. labs did not see the change for me. Look up the Promise study. They are actively watching SMM and MGUS to see if and when treatment should begin. You should also see a MM specialist if you haven’t yet.

October 14, 2022
A MyMyelomaTeam Member

I would recommend that you review your concerns with your oncologist, but also join Healthtree for your peace of mind. There are resou ce articles on this site too. Healthtree has extensive information located in Healthtree University regarding MGUS, SMM, lab tests and multiple myeloma. Educated patients will experience less stress and improves communication with their healthcare team by understanding and outlook.

October 14, 2022
A MyMyelomaTeam Member

This is just my guess, but they would want to follow them see if they are remaining Where they are or increasing to active MM.

October 14, 2022
A MyMyelomaTeam Member

As a collective term, I believe, myeloma parameters refers to the blood levels that are followed that determine whether the status has changed from MGUS to SMM to Stage 1-3 myeloma. That would be SPEP, Immunoglobulins, Kappa/Lambda ratio. CBC and CMP is generally also drawn. There are other tests that are ordered initially and periodically but I think these are the basic ones that would be called 'parameters'.

October 14, 2022

Related Questions

View All
A MyMyelomaTeam Member asked a question đź’­
Harleysville, PA

A MyMyelomaTeam Member asked a question đź’­
Knoxville, TN

A MyMyelomaTeam Member asked a question đź’­
Arizona City, AZ

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In