I will see oncologist next week but blood tests and symptoms are classic myeloma. What is the immediate treatment for the bone pain to stop the myeloma growth? I just sit here imaging my bones being eaten away everyday.

I remember my doctor saying no alcohol during induction chemo but haven’t asked him during maintenance. What can you tell me about it? What has your doctor advised? I’m currently on the maintenance regimen of 10mg Revlimid 21/7, dexamethasone and Darzalex monthly.

I'd like to know how you made the decision to stop the MM Meds.
Was it your choice or doctor recommended - any details would be great.

I'm now MRD Negative. My Doc has placed me on MM Meds holiday. Now with the Jan 2022 Report about MRD-SURE, I plan to stay in Labs Monitoring Mode with no MM Meds and only add back Revlimid, if a future Labs indicates the need. Keeping my fingers crossed.

MRD-SURE Link:
https://www.cancernetwork.com/view/mrd-adapted-...

Thanks,
Larry2

I know I’m silly doing it but I just can’t help it. I worry everyday about dying from this cancer. I finish my first line of treatment on Thursday. I’ve had 6 months of dvtd and a stem cell transplant. Family say, be positive, don’t think about what and when, but I’m finding it difficult.

How long does it take for the immune system to rebound?

How many of us think about the root cause of this worldwide disease? Is it caused by environmental factors, or viruses, or diet, DNA mutations or stress? Although experts say that genetic MM mutations are acquired and not inherited, family history is a known risk as we’ve read from many stories from our teammate’s family members also having MM. Genderwise: Men are slightly more likely to develop myeloma than women. Racewise: Black people are twice as likely to develop myeloma than white people… read more