What’s The Word On Alcohol? I’ve Had 2 Beers In 2 Years And I’m In Tears! | MyMyelomaTeam

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What’s The Word On Alcohol? I’ve Had 2 Beers In 2 Years And I’m In Tears!
A MyMyelomaTeam Member asked a question 💭

I remember my doctor saying no alcohol during induction chemo but haven’t asked him during maintenance. What can you tell me about it? What has your doctor advised? I’m currently on the maintenance regimen of 10mg Revlimid 21/7, dexamethasone and Darzalex monthly.

posted April 14
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A MyMyelomaTeam Member

Yes enjoy your life in moderation because you never know when the end is coming. I know people that drank heavily and smoked heavily live to 90 years old and people who never drank or smoked plus ate properly and died at 35 years old so when your time comes nothing is going to change that.

posted April 15 (edited)
A MyMyelomaTeam Member

There is a saying that says you can live to be 100 if you give up all the things that make you want to live to be 100. The Titanic was full of women who waved off the dessert cart.

posted April 14
A MyMyelomaTeam Member

I totally agree with people that are not going to let their MM take away the few pleasures that we have left in life and I don’t think it’s going too make much difference in the length of your life but moderation is the key.

posted April 14
A MyMyelomaTeam Member

Mark, I wanted many drinks after being diagnosed 😅 but quit during treatments. After SCT I remained alcohol free for about 4 months. Today I will enjoy a few drinks with visitors occasionally. I'm in remission and just recently been taken off revlimid as maintenance due to side effects I developed. So I'm currently not on any drug for MM. I personally don't think a few drinks (moderation) is bad. With everything a person goes thru with this disease a drink just might help. 😁

posted April 14
A MyMyelomaTeam Member

Yes it’s everyone’s personal choice and I don’t think that all the chemicals in our food these days will mix very well with all our drugs either. We never know when the end is coming so I don’t see any problem with enjoying life a little since so many of life’s pleasures have been taken away from us. I have one drink a day to help ease the pain because my pain meds just don’t take away all the pain.

posted April 17

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