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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Moorestown, NJ

I remember my doctor saying no alcohol during induction chemo but haven’t asked him during maintenance. What can you tell me about it? What has your doctor advised? I’m currently on the maintenance regimen of 10mg Revlimid 21/7, dexamethasone and Darzalex monthly.

April 14, 2024
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Answer Summary

Members shared varied perspectives on drinking alcohol while managing multiple myeloma, with the overwhelming majority reporting that their... Read more

Members shared varied perspectives on drinking alcohol while managing multiple myeloma, with the overwhelming majority reporting that their doctors approved moderate consumption, typically one to two drinks per week, especially during maintenance therapy rather than active treatment. Several members emphasized that moderation is essential and shared personal strategies like hydrating before drinking, timing alcohol during their week off Revlimid, and being mindful of how medications interact with alcohol. A recurring theme was the importance of balancing quality of life with health considerations, with many members expressing that after giving up so much due to their diagnosis, enjoying an occasional drink helps them feel more normal and brings small moments of joy worth preserving.

A MyMyelomaTeam Member

Yes it’s everyone’s personal choice and I don’t think that all the chemicals in our food these days will mix very well with all our drugs either. We never know when the end is coming so I don’t see any problem with enjoying life a little since so many of life’s pleasures have been taken away from us. I have one drink a day to help ease the pain because my pain meds just don’t take away all the pain.

April 17, 2024
A MyMyelomaTeam Member

When trying to heal bone marrow, why ignore the health of the rest of your body? The heart and liver react unfavorably to alcohol. So does the gut where your immune system is. If alcohol helps calm you so you can cope, find another coping mechanism, like dancing, singing, enjoying your grandchildren, gardening, getting a massage or facial. Share what makes you feel good.🌹

April 17, 2024
A MyMyelomaTeam Member

Yes enjoy your life in moderation because you never know when the end is coming. I know people that drank heavily and smoked heavily live to 90 years old and people who never drank or smoked plus ate properly and died at 35 years old so when your time comes nothing is going to change that.

April 15, 2024 (edited)
A MyMyelomaTeam Member

I have one or two small glasses of wine almost every night with dinner. I am 83 years old. I have given up or lost the desire for just about everything that used to give me pleasure. My numbers are excellent so apparently I'm not harming myself.

December 2, 2024
A MyMyelomaTeam Member

There is a saying that says you can live to be 100 if you give up all the things that make you want to live to be 100. The Titanic was full of women who waved off the dessert cart.

April 14, 2024

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A MyMyelomaTeam Member asked a question 💭
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