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I have been home 66 days after my transplant. I was in the hospital 19 days and felt so good to get home. I have been able to have family over and the best part is we can sit outside on the patio and… read more
Thanks for that information 👍
https://medicalxpress.com/news/2022-12-experime...
Seems to be very promising.
Peter
MGlive, how many doses did you take? So it sounds like you are having a pretty durable response.
https://www.dana-farber.org/newsroom/news-relea...
Great information!
A plant-based diet can turn a lot of our ailments around.
I even stopped eating turkey bacon, deli, and other processed meats once I found out that they are Class-1A… read more
I am recently diagnosed with light chain mm. Have not yet started treatment but trying to get more information about my options.
Is Caregivers an organization or...??? A friend's mother used something local to her, but had things stolen. Several years back, I hired several people (1 at a time) from local churches which was… read more
At the moment I have SMM but I will need treatment soon but I am thinking of opting out of having a stem cell transplant.
It sounds like such a complex and difficult procedure to go through.
Just wondering if anyone else has opted out of it?
I know some people are not suitable for the procedure though.
Have a good day Toni
I opted out...seems to me stem cell trans ruins quality of life for very little gain...on the other end. find the meds that control the MM...and enjoy life!
I find it interesting that many of you say that you are in "remission." My husband's Hematology Oncologist says that he never tells his patients that they are in "remission" because if one looked hard enough in a MM patient, they could always find some cancer cells hiding somewhere in the body. Has anyone else ever been told this before?
maybe the term should be changed to " Respite"
Will I be in pain so I can’t drive? Also, my Mspike is down to 1.4 and but my kappa/lambda ratio is almost 14. Does anyone else have this going on? What does it mean?
Hi hope it all goes well for you
Is it common for a doctor to see that the kappa light chain is out of normal range and the IgG is raising and the M spike is stable? She’s keeping me on the same medication 4 mg of Ninlaro every Wednesday for three weeks and 21 days on 25 mg of Revlimid 4 mg of decamethazone on the Wednesdays that I take the in Ninlaeo?
I’m confused and perplexed.
How long have you been doing treatments? Sometimes it takes a while for things to level off
