Thank you and happy new year. A cure is on the way ‘

It was only a year ago I was told by my first Doc that Darzalex & the FasPro versions were Only available as RR - not for me as first line treatment and Not covered by Medicare.

That said there were a few in my area that were offering DarzFasPro and Medicare did cover it from the onset.

Now, through this year it seems that plenty are getting DarzFasPro as part of their initial treatment.

Let’s hope that Talquetamab gets fast tracked by oncologist who want a cure Now.

Come Monday, I’ll call Medicare and ask if Talquetamab is covered. If Medicare does than all Supplemental policies will as well - they’re required to do their 20% when Medicare does the 80%.

If Medicare does, then I expect finding a Doc will be easier.

It would be a great way to ring in the New Year

Peter
Couple weeks ago , I was driving and caught a 30 min interview with Dr. Chari on NPR radio (national public radio).
Theyve been cranking out these new Bispecifics, but Talquetamab is the best one yet.
Problem is , these new meds are only for the RR relapsed refractory who have failed several other treatments, ie they are real sick.
Talque is working at near 80% on these older sicker patients, so it will work on anyone.
Darn near a cure.
Interviewer asked Chari if Talque would replace CAR-T, since Talque is off the shelf and CAR-T is a longer more expensive process.
Chari said no, both would continue on ...
But CAR-T waiting lists are 50 people deep at every major center that does them (all academic centers).
CAR-T is also currently only for the RR.
All of us deserve a med like Talque, when we are first diagnosed, instead of having to go through the hoops of these older meds that are potentially unknowably harmful and fatiguing.
It is hopeful and yet very frustrating at the same time.
We all have to stay in the highest health state possible for the next few years, while they work this all out.
If Talque was made available to anyone in another country, I would probably go and do it right now. Germany or Singapore maybe, India a little dicey.
You would think that the insurance companies would want to get all of us cured, and off the expensive Revlimid etc.
We MM patients need stronger advocacy groups, though Im grateful weve gotten so much research attention.
Chari said Talque will hit the RR market in 6 months to 1 year.

MGlive, how many doses did you take? So it sounds like you are having a pretty durable response.

Hi all !
That’s what I am saying all along !
They have the drag that will work !!
The keep it on “trial “ status because of the drag Companeys object to it .
If everyone (they way it should be) will go on this drag - the drag company’s stop making billions by selling their stuff to us with outrageous prices just because they can .
In this case it’s all about politics and money .
Now - 8 months since the last dose of teclistamab - the light chain count is still down .
(I did not flow the recommended dose of once a week or a month - as long as it’s down I am not on anything!
All tho - this drag suppress the immune system big time and require IVIG every 2 months.

And yes - to get this drag you really need to go through hoops !!

Good luck all
God bless !!