https://www.dana-farber.org/newsroom/news-relea...
Hi Cheryl - During my very active mode of this Bone Lesion MM Cancer, being extra strict to avoid anything that can fuel the Cancer, is why that List was so strict.
No Animal Iron or food elements that can fuel cancer's survival and growth.
Now a few months past it being killed off and I've stopped treatment meds, I've added a little bit of fish - maybe one serving a week. Wild caught and organic.
I don't get eggs as a meal but I know they'll be in some of the prepared pasta and others but very little.
I want to avoid animal products that provide hemi-iron and food items that can fuel cancer. Methionine is not needed for our normal cells but it's critical for cancer cells to survive. I looked at collagen and plant based protein powders - they have extra high levels of methionine.
Only wild caught and organic and you'll be fine. 15 years of Vegetarian is great.
Though I had been predominately organic, beef was a big part of my previous diet. I'm now plant based for only 6 months.
I think a Plant Base Diet, exercise, key supplements and MM Meds, only when needed and for as short a time as possible, is going to work very well for me.
I tried their way and now mine. I Trust my Labs and my Plan. Fortunately, so does my Onc. I must have his support in this so I can get the treatment meds when needed. He's seen my results. He's totally on-board.
Hi Samar - this requires 3 pills for 500mg Curcumin. I use PhysicianNaturals Super C3 1000. This provides 1,000mg per 1 pill.
I take 8 daily. Iād suggest at least 4 to 8 daily
I tried to find info about using MinimuMM now - I could not find a resource for testing. Is there a means of having my local Onc draw blood and send it to someone for this test?
Currently, I do quarterly clonoSEQ testing for MRD Negative from a blood sample. My Onc participates with clonoSEQ to be able to use their Services.
Though the gold standard is a biopsy, clonoSEQ has proven they are extremely accurate with a blood sample. They have a multi-year Clinical Study in process.
I'm using their test as a Early Warning System. If I'm 10 -6 Negative, No MM Meds. If Positive, a PET/CT to locate the issue and a short term dose of Revlimid and Dex with Full Weekly Labs to monitor my progress.
My Revlimid will start at 25mg every other day (all I can tolerate) and Dex at 20mg once a week (all I can definitely tolerate). Watch my Labs and phase them out if I respond quickly and be done in 2 to 3 months and back on-the-shelf to have them In-Reserve for a Future Need.
Rather than live on these MM Meds until I fail them as they make me miserable, I use them sparingly, as I need them.
This worked extremely well during my recent bone lesion MM cancer event. I'm back to Monitoring with No MM Meds within 3 months of starting treatment for it.
My Onc is totally okay with my method of managing my MM. I produced results he and every other Onc/Doc that I've shown my Report (at my Story - @A MyMyelomaTeam Member) has never seen. My local Onc has over 30 years in Oncology.
My Quarterly clonoSEQ blood sample Testing makes this viable now. We'll see that freight-train of MM headed my way, long before it's any big deal - months before I exhibit a MSpike, we'll have any future MM event knocked out.
I read the article for MinimuMM-seq. It looks like great tech and I'll use it too when it's available and if its covered by Medicare. There's another blood sample testing for Residual MM, from Dr Berenson called BCMA, but currently it's only available for his patients and not FDA Approved yet, so I expect not covered by Insurance.
I read the study results and it looks promising. It would be nice not to have a bone marrow biopsy done. I hope my BMT doctor starts using this method. Iām due another biopsy in May.
wendellstevens what kind is that injection, if u don't mind what's his name