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My doctor is trying to find something that will help my pain from spinal stenosis and nothing seems to help. If you can remember the name of the drug or who mentioned it, I would be most appreciative. Thank you.
My husband took them as mm progresses to the point where he had been on Morphine fir 12 1/2 years and City of Hope took him off of it because it was bad for his Kidneys and put him on the Fentyl… read more
I was taken off ninlaro 2 yrs ago. This week I had my first M spike since transplant (2015). Is it likely that I will be put back on ninlaro?
That’s a good question for your doctor. You have to get control of your myeloma so there’s going to be an answer for sure. Best of wishes you get in remission again soon!
Hi Myrho,
I posted the two articles for your information from Google searches using your question. Hope this helps.
Hello....My husband will soon be hospitalized for about a week to begin a dosing ramp up of Tecvayli injections, one of the new biospecific antibodies approved by the FDA in the past couple of years. Has anyone else tried this drug that would be willing to share their experience?
Thanks so much!
Regina our support and our prayers to you and your family. May Jim rest in peace 🙏🙏
https://medicalxpress.com/news/2022-12-experime...
Seems to be very promising.
Peter
MGlive, how many doses did you take? So it sounds like you are having a pretty durable response.
I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.
I take Dara, revlimed, and dexamethasone for smm
Due to a recurring itchy body rash developing when using Revlimid, I’ll be switching over pomalidomide with velcade and dex. POMALYST is 10 times more potent than that of lenalidomide. But what I’m reading, people seem to have less side effects although it’s in the same drug class. For those who are on POMALYST, what has been your experience?
Thanks !
That sounds like a good thing to me. Side effects can be worse than the disease.
If you are using your own stem cells (auto), it is safer than chemo. Of course you can refuse any treatment.
I am not in remission anymore and have been put on Vanclexa. This is the 3rd drug that Ihave relapsed on. The doctor suggested car-T-Cell treatment but everything I read about it,it scars me! Does any one have any positive outcome from the procedure? Do you recommend it or not? Please let me know!
CAR t therapy.Auti correct is insane!!!
