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Daratumumab+Dexamethasone For Smoldering Myloma And Al Amyloidosis
A MyMyelomaTeam Member asked a question 💭

I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.

posted May 3, 2020
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A MyMyelomaTeam Member

I do have smoldering myeloma also. had a transplant in 2013. currently on pomolyst daily and weekly dexamathasone. more complications with the pomolyst: aches, pains, fatigue,neuropathy.
feel well and i hope the combo works for you.

posted May 4, 2020
A MyMyelomaTeam Member

John Daratumumab was as of May 1st approved by the FDA to be given by subcutaneous injection instead of by infusion. Ask your doctor about it. Dara is often given as a single agent. All Myeloma medications are given with a steroid, Dexamethasone. Dara is also given in a combo with other Myeloma drugs. Many patients have done well on Dara. Hope it works well for you. Love, Marcia🌸

posted May 3, 2020
A MyMyelomaTeam Member

I take Daratumumab,Dexamethasone once a month and Acyclovir and Montelukast. I take Monte 3 days per. month,Acycovir twice a day and the other two on chemo day. That combo was working great up until April 19/21 and have been on it for many years so don’t know what changed.

posted May 4, 2020 (edited)
A MyMyelomaTeam Member

Betsy that combo has worked since 2019 with minimum side effects but the fatigue is the one I have the biggest problem with because I don’t get much done in a day.

posted May 19, 2021
A MyMyelomaTeam Member

I take Daralex Fast Pro with Dex and Pomalyst. my side effects are sweats, itching, constipation, mouth sores and back ache.

posted August 11, 2022

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