I feel fine, but I know my ANC is dangerously low. My doctor will probably have me start injections of neupogen.
Thanks,
Kara
I have a gain of 1q. which puts me at high risk.
After induction therapy I was in remission for only 13 months. My doctor is putting me on a new triplet therapy dara revlimid and Dex till progression. Should be starting this second line treatment next week.
Mark I Decided not to have an ASCT so my doctor gave me 2 options… Dara/Revlimid/Dex or Isatuximab/ or Carfilzomib / Dex until progression …I chose Dara/revlimid /Dex as my next line of treatment. I… read more
Extreme pain in chest after IV treatment.
Do you get treat through a port in your chest? Do you also get dexamethasone through your port? If so, tell your oncologist about this and ask about a referral to a cardiologist. Chest pain is not… read more
Has anyone been treated with the above combo doctor is putting me on this starting tomorrow. It was either that or the Car T treatment. I’m so not ready for.
Thanks Everyone!
Susan
You are amazing. They keep changing treatment on you and you continue to March on. I hope this one sticks for a while.
My husband was diagnosed in January and began a triple drug treatment of Dexamethosone, Revlimid and Isatuximab infusion in February.We are at the end of cycle 3, but his M protein decrease is slowing. Oncologist team has suggested adding weekly valcade shot to his treatment plan to get his number down to the threshold that they'd like for him to have a Stem Cell Transplant. Has anyone else had a similar experience?
Dana
Alpha Lipoic acid was recommended by my Oncologist for neuropathy. My mom took lots of Nutritional Yeast (B vitamins)(Bob’s Red Mill) and never got neuropathy after 30 chemo treatments for… read more
Unfortunately, after my SCT in Dec 2022, the MM has relapsed. It only took 10 months before it started to show up in blood tests. I had a bone marrow biopsy and the plasma cell percentage has now doubled from the value when I was initially diagnosed. So I'm curious to know if others have relapsed after a SCT and what was the next method of treatment used
We are looking to get me on Car-T cell therapy, but I do not yet qualify based on the number of refractory treatments (drugs that did not… read more
Thanks Larry. This us something I need to research before I decide to get tested
I'm starting to think that cancer/myeloma are mutations that just like every living being do everything they can to… read more
Just want to know how long your number stay down without SCT. Is it months or years?
Sorry to say but I can’t remember what I was thinking of - that was in July. I might have been thinking about the article- “What is Minimum Residual Disease Testing”. It covers the history and the… read more
I suffer from sciatic badly, i also have myasthenia gravis, and walking exacerbates this illness. It is so easy for someone to give advise, when they are not suffering, The dex can definitely cause… read more