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I just wanna share with you that's carfilzomib after 2years cause me hemolysis and I was life threatening for 8 days at hospital, they open my neck put tube and do for me plasma exchange for 6 days on a row . is anyone experience hemolysis before? thanks
Yes so sorry they put you through that I’ll say prayers for your quick recovery!!!
My son had transplant 8/29/2022. Now getting Maintenance Treatment once a month. And getting immune shots that he had as a child. He works full time.
my CSF protein total is high after a lumbar function procedure ,is anybody has that before,thanks
Greetings from Alaska Samar I’m just checking on you. how are you doing? Have you met with the doctors and you guys have come up with a plan of action please share how you’re doing and your course of… read more
doctor will change my treatment to : cyclophospgamide(cytoxan) pomalyst , darzalex and dexamethasone . any of you took cytoxan and pomalyst? those are new for me,is there any side effects?thanks
Yes, multiple myeloma (MM) and AL amyloidosis can sometimes occur at the same time in the same person. Both conditions arise from plasma cells, and while they are distinct diseases, they share some… read more
Yes, multiple myeloma (MM) and AL amyloidosis are related conditions, both involving plasma cells. In AL amyloidosis, abnormal plasma cells produce misshapen light chain proteins that form amyloid… read more
It’s not Multiple Melanoma, it is Multiple Myeloma
Melanoma occurs when the pigment-producing cells that give color to the skin become cancerous
Multiple Myeloma is a cancer of plasma cells.
The… read more
As a MM patient you truly will find this info USEFUL!
https://www.painnewsnetwork.org/stories/2023/6/...
It's a succinct and brief read!
Broken link in above link corrected on 8/17/23
I actually went to the ER for abdominal pain when I was first diagnosed. I could barely move without being in tremendous pain. The doctor told me my spleen was enlarged and if i coughed or sneezed too hard that it would rupture and I would be dead in minutes because they had no surgical team there. Also my hemoglobin was at a 4. Doctor also told me if I hadn't came in I would've probably went to sleep that night and just never woke up. After 13 hours of trying my best to sit still finally my… read more
Yes. On Dec. 6, 2023 my doctor told me and my wife that 95% of my bone marrow was abnormal (myeloma). I was in rough shape! They began treatment immediately.
I was MGUS, now I am Smoldering. I became Smoldering when my plasma cell involvement became 10%.
