When I Was Diagnosed I Was Told 90% Of My Bone Marrow Was The Myeloma, Has Anyone Else Been Told Anything Like That? | MyMyelomaTeam

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When I Was Diagnosed I Was Told 90% Of My Bone Marrow Was The Myeloma, Has Anyone Else Been Told Anything Like That?
A MyMyelomaTeam Member asked a question 💭

I actually went to the ER for abdominal pain when I was first diagnosed. I could barely move without being in tremendous pain. The doctor told me my spleen was enlarged and if i coughed or sneezed too hard that it would rupture and I would be dead in minutes because they had no surgical team there. Also my hemoglobin was at a 4. Doctor also told me if I hadn't came in I would've probably went to sleep that night and just never woke up. After 13 hours of trying my best to sit still finally my… read more

posted April 23
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A MyMyelomaTeam Member

Pretty scary, so glad you are doing well now

posted April 24
A MyMyelomaTeam Member

It's not uncommon for individuals diagnosed with multiple myeloma to have a high percentage of abnormal plasma cells in their bone marrow. In the context provided, it mentions that doctors will diagnose multiple myeloma if tests show that a person has 60 percent or more of the cells in the bone marrow as abnormal plasma ... read more

It's not uncommon for individuals diagnosed with multiple myeloma to have a high percentage of abnormal plasma cells in their bone marrow. In the context provided, it mentions that doctors will diagnose multiple myeloma if tests show that a person has 60 percent or more of the cells in the bone marrow as abnormal plasma cells. Having 90% would indeed be considered a significant involvement, which is consistent with the diagnosis criteria. It's important to have open discussions with your healthcare provider about your specific condition and treatment options.

 This AI-generated response comes from MyMyelomaTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Multiple Myeloma – The Path to Diagnosis | MyMyelomaTeam
Multiple Myeloma (Plasma Cell Myeloma) – An Overview | MyMyelomaTeam
posted April 23
A MyMyelomaTeam Member

Yes. On Dec. 6, 2023 my doctor told me and my wife that 95% of my bone marrow was abnormal (myeloma). I was in rough shape! They began treatment immediately.

posted April 25
A MyMyelomaTeam Member

Thank you!

posted April 25

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