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Cytoxan
A MyMyelomaTeam Member asked a question 💭

doctor will change my treatment to : cyclophospgamide(cytoxan) pomalyst , darzalex and dexamethasone . any of you took cytoxan and pomalyst? those are new for me,is there any side effects?thanks

posted March 6
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A MyMyelomaTeam Member

Samar my husband had cyclophosphamide for 5 or 6 rounds. He had no problems

posted March 6
A MyMyelomaTeam Member

Cynthia i am 9 month post sct,, I cant use velcade or kyprolis anymore , velcade give me eyes problem, kyprolis I used it almost for 2 years was fine,after that it make my blood break down ( hemolysis) hospitalized for 10 days, they do plasma exchange for me every day and thanks god ❤️ I am still here

posted March 6
A MyMyelomaTeam Member

Samar is I have taken Darzalex and Dexamethasone and the Darzalex side effects were flu like symptoms and fatigue and the Dexamethasone the only side effect I had was insomnia the night of the day I took it.

posted March 6
A MyMyelomaTeam Member

Hi Samar. I've been on these drugs. I've only had high dose Cytoxan. I understand the lower dose is much easier to tolerate. I'm still on Darzalex and Pomalyst. I've done well on them. I hope you get great control with this protocol. Make sure they give you something for shingles prevention while on these drugs. I take Valtrex. Sending big hugs 💕🙏

posted March 8
A MyMyelomaTeam Member

Samar my husband has not been on it since May 2018. I do not remember the dosage.
Sorry I cannot help you🙏

posted March 7
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