I do not about cart but I do know it is hard to gett
I have Stage 1 multiple myeloma. I started treatment in January because of proteins in my urine. I am on Velcade, Revlimid and dexamethasone. I am on my 4th cycle. My understanding is that Revlimid will suppress stem cell production. So if down the road I may want a stem cell transplant my maintenance program would be the Velcade. I think the Revlimid might be a better option to for remission. I am wondering what others have found with your treatments.
@A MyMyelomaTeam Member sorry for the delayed response I’ve been doing 10mg about 6 months now and my numbers remain good. This is tough as we know we can relapse but everyone is different. Some folks… read more
how long u stay in remission after stem cell transplant
Wow Sally you sure have been through the gauntlet of heath issues. I’m glad that you are doing better. I know exactly how rough the heavy duty chemo makes you feel and it took me almost a year to… read more
When do you generally begin maintenence therapy after a SCT?
I had sct April 5th and started maintenance in august
Hi
I am on Daralex and dexamethasone for maintenance therapy. I ask my doctor about getting the Covid 19 vaccine and was told it may not be as effective because of the maintenance therapy. They did not say I could not get the vaccine, but I should check to see what the CDC guidelines were.
Thanks
Wordpass22
I was advised by my Specialist to get the new booster, so I did. I had sore arm for a few days, but that is all. I was sick after the third shot, so was expecting the worse. I was very surprised… read more
My car t lasted for a year and a half. I was very happy! Now I’m on a new drug that I’m happy with. It’s been over a year.
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more
I was diagnosed with multiple Myeloma in April of 2021 after several spinal fractures were found. I had a stem cell transplant in Nov 2021. I was on Darzalex and Revlimid, but recently went off the Darzalex. I also no longer take dexamethasone or Acyclovir. I am in very good partial remission. I get a Zometa infusion every 3 months .
Bev , my husband has had two teeth pulled by an oral surgeon. We felt very comfortable with his knowledge of bone strengthening drugs and myeloma. My husband has not inquired about an implant. They… read more
Curious to know more about CAR T Cell Therapy for Multiple Myeloma
Millie, this is so good to hear. How is he doing now in Oct 23?
I am not in remission anymore and have been put on Vanclexa. This is the 3rd drug that Ihave relapsed on. The doctor suggested car-T-Cell treatment but everything I read about it,it scars me! Does any one have any positive outcome from the procedure? Do you recommend it or not? Please let me know!
CAR t therapy.Auti correct is insane!!!