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Man in the Arena is the story of Jim Bond a patient that lived until recently since 1992. Most current treatments were new and others unavailable. His case was so severe that he was given a short… read more
https://meetings.asco.org/abstracts-presentatio...
oh, than, never mind. I have some vision problems and not so sure if having more is worth it; other side effects too. About traveling; the more side effects the more apprehension of traveling far.
Hi Myrho,
I posted the two articles for your information from Google searches using your question. Hope this helps.
Nancy
Why not try something natural? I just started reading Dr Brandy's book, "Beat Back Cancer naturally". It's an easy read and gives you a list of supplements that may help and a diet that may… read more
i just received my ct scan for mouth and jaw ,my oncologist nurse call me after that and told me we need to do biopsy from ur mouth , doctor Cowen suspect it's the myeloma that do that in ur mouse, even my cbc came today very good , m spike 0.1, she told me he is not sure, , any help with reading my ct scan,, and if its myeloma in my mouth my question:is at can be treated?and if somebody experience like my situation I would appreciate if he can tell me his story thanks
Karen my MM was aggressive so that is why SCT was suggested and I went for it.
I have IgG Kappa MM, and I just finished cycle 1 in a clinical study using carfilzomib, dex, and lenalidamide. My IgG dropped from 4,300+ to less than 1,800, and M-Spike went fro 3.1 to 1.5, both of which is about where I had been when I was first diagnosed with MGUS in 2016. However, IgA also dropped, and I am slightly anemic, which I hadn't been. I know that this is only one month, but it would seem to be a good start. What are other people's experiences?
I asked my doctor through MyChart… read more
Wow! Marcia thats great news! I just finished cycle 1 and my numbers have dropped also. Hopefully we are on a roll to remission. I wish you the best.
It is my understanding that remission is based on lab results and how many MM cells are found in your bone marrow biopsy (BMB). I had two BMBs before I was deemed "in remission" six months after my… read more
It's been lurking in your blood that long? I hope you didn't know it back then
Unfortunately, after my SCT in Dec 2022, the MM has relapsed. It only took 10 months before it started to show up in blood tests. I had a bone marrow biopsy and the plasma cell percentage has now doubled from the value when I was initially diagnosed. So I'm curious to know if others have relapsed after a SCT and what was the next method of treatment used
We are looking to get me on Car-T cell therapy, but I do not yet qualify based on the number of refractory treatments (drugs that did not… read more
Thanks Larry. This us something I need to research before I decide to get tested
I'm starting to think that cancer/myeloma are mutations that just like every living being do everything they can to… read more
