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Man in the Arena is the story of Jim Bond a patient that lived until recently since 1992. Most current treatments were new and others unavailable. His case was so severe that he was given a short… read more
Hi Myrho,
I posted the two articles for your information from Google searches using your question. Hope this helps.
https://meetings.asco.org/abstracts-presentatio...
oh, than, never mind. I have some vision problems and not so sure if having more is worth it; other side effects too. About traveling; the more side effects the more apprehension of traveling far.
Nancy
Why not try something natural? I just started reading Dr Brandy's book, "Beat Back Cancer naturally". It's an easy read and gives you a list of supplements that may help and a diet that may… read more
Unfortunately, after my SCT in Dec 2022, the MM has relapsed. It only took 10 months before it started to show up in blood tests. I had a bone marrow biopsy and the plasma cell percentage has now doubled from the value when I was initially diagnosed. So I'm curious to know if others have relapsed after a SCT and what was the next method of treatment used
We are looking to get me on Car-T cell therapy, but I do not yet qualify based on the number of refractory treatments (drugs that did not… read more
Thanks Larry. This us something I need to research before I decide to get tested
I'm starting to think that cancer/myeloma are mutations that just like every living being do everything they can to… read more
i just received my ct scan for mouth and jaw ,my oncologist nurse call me after that and told me we need to do biopsy from ur mouth , doctor Cowen suspect it's the myeloma that do that in ur mouse, even my cbc came today very good , m spike 0.1, she told me he is not sure, , any help with reading my ct scan,, and if its myeloma in my mouth my question:is at can be treated?and if somebody experience like my situation I would appreciate if he can tell me his story thanks
Karen my MM was aggressive so that is why SCT was suggested and I went for it.
Greetings from Alaska I am so grateful that God has bless you and you continue to be in remission. Have a great day and God bless you and your family.
I have IgG Kappa MM, and I just finished cycle 1 in a clinical study using carfilzomib, dex, and lenalidamide. My IgG dropped from 4,300+ to less than 1,800, and M-Spike went fro 3.1 to 1.5, both of which is about where I had been when I was first diagnosed with MGUS in 2016. However, IgA also dropped, and I am slightly anemic, which I hadn't been. I know that this is only one month, but it would seem to be a good start. What are other people's experiences?
I asked my doctor through MyChart… read more
Wow! Marcia thats great news! I just finished cycle 1 and my numbers have dropped also. Hopefully we are on a roll to remission. I wish you the best.
With 6 new Car-T Cell Therapy's now approved by the FDA since 2017, how do we know which one works best?
Hey Ricky, there are only 2 FDA approved CAR T available now for myeloma. More in the pipeline. They are only doing CAR T for relapsed and refractory myeloma after several treatments have failed. The… read more
