creating a positive outlook while living with myeloma and myeloma | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "creating a positive outlook while living with myeloma"

reset
How Many Of You Know That Viagra & Other Male Enhancement Are Known To Be The Cause Of Multiple Mylomia?
A MyMyelomaTeam Member asked a question đź’­

Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings

•
View reactions
A MyMyelomaTeam Member

Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more

Looking To Connect With Other Teclistamab Patients
A MyMyelomaTeam Member asked a question đź’­
A MyMyelomaTeam Member

To connect with other patients who are using Teclistamab (Tecvayli) for myeloma, you can sign up at MyMyelomaTeam. This platform is specifically designed for individuals living with myeloma, allowing… read more

Does Anyone Have An Autoimmune Disorder As Well As MM?
A MyMyelomaTeam Member asked a question đź’­

I am now in Active MM and it is escalating at an alarming rate. My light chain ratio went from 80% to 182% in 4 weeks. All the other numbers are also going crazy. I start chemo Tuesday. I will be on the following:
Daratumad, Velcade, and Cyclophosphamide. Any advice would be greatly appreciated.

•
View reactions
A MyMyelomaTeam Member

Laurie,
People confuse “Never, ever give up, with Never lose faith.” I like to think that as each day starts, I’m one step closer to Paradise, so I better start tidying up.

Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

I do not about cart but I do know it is hard to gett

Has Anyone Been Diagnosed With Another Cancer While Having MM?
A MyMyelomaTeam Member asked a question đź’­
A MyMyelomaTeam Member

It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more

What Does It Mean When Your Labs Results Come Back Saying Your Kappa Lambda Light Chain Is High
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

Thank you for that very informative explanation @A MyMyelomaTeam Member !

Can Multiple Myeloma Treatment Cause CMML
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

What is CCML

Bone Marrow Transplants
A MyMyelomaTeam Member asked a question đź’­

My doc is encouraging a transplant and not giving me much info about where to do it. Should I get a second opinion as to whether I need one

•
View reactions
A MyMyelomaTeam Member

My oncologist in Lake Charles always said I needed sct but never said I had achieved remission so after learning more sct and getting over the fear of it after 1 year of induction therapy 4 drugs dexy… read more

Has Anyone Gone From Stable To Unstable With MM And Was The Experience Horrible? I've Been Told It Will Happen And When It Does Its Worse
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

Hi Karen.. Yes, two or three times. Lucky for all of us, new drug discoveries and advancements in all areas of treatment have resulted in stunningly positive results. I am not spiritual, though I do… read more

Remission After Stem Cell Transplant
A MyMyelomaTeam Member asked a question đź’­

how long u stay in remission after stem cell transplant

•
View reactions
A MyMyelomaTeam Member

Wow Sally you sure have been through the gauntlet of heath issues. I’m glad that you are doing better. I know exactly how rough the heavy duty chemo makes you feel and it took me almost a year to… read more