My husband was diagnosed after Covid pandemic.
Shipmates
I was in perfect health, well maybe a few pounds overweight. I never took any pills except for my migraines. No high blood pressure no high cholesterol, no history of cancer in my family. I’m the first. I had my blood tests done at my physical in November 2020. Everything was fine, no problem. March and April 2021, I received my Covid vaccines and in November, 2021, I was told I had way to much protein in my blood. I needed to go to an oncologist and was diagnosed with… read more
My first COVID vaccine caused a spike in my light chains, but it was temporary. I don't remember if my protein pattern was effected..
Ask your MD.
Because there are so many side effects with the various medications and also the symptoms of MM create similar problems it’s difficult to figure what you should ignore and what it’s possible your doctor can help with.
I just was extremely exhausted and spent most my time in bed for 5 months a lot like really bad flu symptoms except no fever.
I was diagnosed with multiple Myeloma in April of 2021 after several spinal fractures were found. I had a stem cell transplant in Nov 2021. I was on Darzalex and Revlimid, but recently went off the Darzalex. I also no longer take dexamethasone or Acyclovir. I am in very good partial remission. I get a Zometa infusion every 3 months .
Bev , my husband has had two teeth pulled by an oral surgeon. We felt very comfortable with his knowledge of bone strengthening drugs and myeloma. My husband has not inquired about an implant. They… read more
I will have my blood tested to determine if I have Covid antibodies. My doc provided a script.
I had a really severe reaction too my last Covid vaccine and ended up sick in bed for 5.5 months and that was the second time I had a reaction too the Covid vaccine so no more Covid vaccines for me… read more
We 100+ post transplant
My doctor told me I was high risk. It's also stated on my medical records in my bone marrow biopsy results. It really helped me to get access to my medical records. I read everything. Doctor notes and… read more
It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more
I see this going up.
I have a hard time getting any information out of my Oncologist.
Any suggestions on how to get information out of her.
All
She says is we are monitoring at times she says I don’t have Multiple Myeloma, and other times she does say I have Multiple Myeloma. So confusing.
I am taking Revelmid 15mg.
Hi Vince, are you able to get access to your patient portal? It helped me to look up my labs so I could understand why they were too low or too high.
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more