Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more
How many of us think about the root cause of this worldwide disease? Is it caused by environmental factors, or viruses, or diet, DNA mutations or stress? Although experts say that genetic MM mutations are acquired and not inherited, family history is a known risk as we’ve read from many stories from our teammate’s family members also having MM. Genderwise: Men are slightly more likely to develop myeloma than women. Racewise: Black people are twice as likely to develop myeloma than white people… read more
I often wonder how long I had MM before it was find. I was always very healthy only went to the doctor for Pap test and mammogram . Sometimes I had issues with sciatica and would have to go to the… read more
Thanks for sharing!
Karla
I'm experiencing 90% loss of taste from daratumumab (Darzalex) and talquetamab (Talvey). This is not an unusual after effect of both infusions, but I'm wondering if the taste fully returns after a defined period of time or are there remedial steps I can take (e.g., acupuncture) that help help make eating more enjoyable?
I have constant metallic taste in my mouth. I have been eating more spicy foods BUT I have a stomach problem now and it feels like I am developing an ulcer. Just had an endoscopy and I have an… read more
Thank you for that very informative explanation @A MyMyelomaTeam Member !
And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests
Netta, please ask for a printout of your lab work that is ordered by your oncologist every time they do your monthly doctor's labs. Keep them together in a loose-leaf binder organized by date. This… read more
I do not about cart but I do know it is hard to gett
PAML, you cry if you want/need to. It helps relieve stress. 🌻💕
I see this going up.
I have a hard time getting any information out of my Oncologist.
Any suggestions on how to get information out of her.
All
She says is we are monitoring at times she says I don’t have Multiple Myeloma, and other times she does say I have Multiple Myeloma. So confusing.
I am taking Revelmid 15mg.
Hi Vince, are you able to get access to your patient portal? It helped me to look up my labs so I could understand why they were too low or too high.
I was diagnosed on 5th February with Myeloma I’m waiting to hear what my treatment will be but the oncologist just mentioned that my Free Light Chain Lambda was 2010 Can anyone tell me is that dangerously high?
Yes we learned a lot from our friend was what we needed to do to save our spouse a lot of grief when one of us passes. One thing we learned from her was to make sure everything is jointly organized so… read more