Thanks for the reply. But are u saying u never went into remission.
My Wife, My Best Friend, My Super Advocatee, All my wife.
I don't need much support now but when I was diagnosed 10 years ago, I had a lot of family and friends to help if needed.
You are very welcome.
I am on MediCaid ("MediCal" in California where I live) because I am also disabled. But, man, it's really hard to find an oncologist, much less a myeloma specialist, who accepts it. Right now I'm… read more
Don't sweat the small stuff!! I rest when my body tells me to. I try to control my stress level. I take magnesium in higher quantities (restless legs) vitamin D & K faithfully. I try to move daily… read more
I wont do stem cell or carT...but wonder if switching to meds other than revlimid and velcade has helped others...??
thank you....helpful, thorough info....will discuss with doc next week
Just started my treatment today on KRD. I have 8 cycles to complete. I am hoping to continue to work. I know everyone has different side effects. Just trying to see everyone's experiance with working and dealing with m.m
I couldn’t work because my leg was broke and it wouldn’t heal for 13 months So I went on disability. I also had issues with side effects. I had a lot of issues with fatigue. So I don’t know if I could… read more
I know I’m silly doing it but I just can’t help it. I worry everyday about dying from this cancer. I finish my first line of treatment on Thursday. I’ve had 6 months of dvtd and a stem cell transplant. Family say, be positive, don’t think about what and when, but I’m finding it difficult.
We are all going to die, part of life. I just do what I can to deal with life as it comes my wsy.
tedious
Thank you so much for responding.