Dilaudid and myeloma | MyMyelomaTeam

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Does Anyone Have Any Good Ideas For Lower Back Pain?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Thank you😁

I Would Like To Know About Pain Medication
A MyMyelomaTeam Member asked a question 💭

I was wondering if you could share with me what pain pill some are taking. Narcotics all the way to natural

A MyMyelomaTeam Member

I take 1 morphinene ir (immediate release) and a half percoset per day. But when I was first diagnosed I took 2 - 12 hour morphine per day for some serious back pain.

Does Anyone Have Pain In Their Lower Left Flank (between Their Hip And Ribs).
A MyMyelomaTeam Member asked a question 💭

I was told it might be bowel pain, but even after I have bowel movements, I still have the pain. Any ideas? I have what I consider normal Myeloma pain (from compression fractures in my back), and other pain throughout my torso, but this pain is resolved by my Fentanyl and Dilaudid. However, this pain isn't resolved by either opioid.

A MyMyelomaTeam Member

I've also have the pain, and I have been blessed that it's not constant but daily. Does anyone know what is causing this? My doctor's say it's not the cancer, so what is it. If I knew maybe I could… read more

I'm Not Exactly Sure How Or Where To Start But I Will
A MyMyelomaTeam Member asked a question 💭

I was diagnosed this year and to this day I've seen one image and it's been multiple images taken. My cancer was found via biopsy in my sacrem but the pain is radiating from my left hip to my ankle, I had radiation on my sacrem and more recently my femur. I've went from slow release morphine to Fentanyl patches and oxycodone for break through but now on fentanyl patches and Dilaudid. Just started Dilaudid today and pain in left hip Is horrible. My question is does this pain subside once in… read more

A MyMyelomaTeam Member

Are you seeing a Multiple Myeloma Specialist? If not I’d highly recommend it.

What Intrathecal Drugs Are Best For Treating MGUS Peripheral Neuropathy
A MyMyelomaTeam Member asked a question 💭

Have tried all oral meds, TENS, Spinal Cord Stimulators plus failed back surgery (L5-S1). Only thing that has helped at all was oral oxycodone. Had a pain pump implanted 3+ weeks ago, now receiving .72mg/day of morphine with no relief, maybe actually worsening. Am curious about other intrathecal drugs such as dilauded and, particularly, bupivacaine for treating the neuropathy. Thanks.

Does Anyone Know Otc Pain Med That Is Effective With Regard To Pain. I’m Alittle Tiered Of The Morphine 15 Mg 3 Times A Day. Thanks John
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Hi John, I wish I could take naproxen or ibuprofen but can't because of kidney damage from MM. I can take acetaminophen and if that doesn't work, I have 'scripts for morphine and oxycodone.
David

Which Medication Should I Ask For My Bone Marrow Biopsy?
A MyMyelomaTeam Member asked a question 💭

Ahoy, shipmates. I’m having another bone marrow biopsy on Tuesday in the doctors office. No hospital setting..
I believe. It’s 6 months since my SCT. I would like to know what medication should I ask for so that the biopsy is not so painful. My bones are very soft. Usually, they need to work very hard to get samples. My left side is the only side they can receive the necessary samples. Thank you all for your help. Wishing you a blessed weekend with smooth sailings.

A MyMyelomaTeam Member

Greetings from Alaska it has been my experience when they do the bone marrow biopsy in the doctors office. The only thing they give you is lidocaine to numb the area. After the doctors office failed… read more

Astramorph. How Is Morphine Filtered Out Of The Body?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I am glad they figured it out Christine. You are right, people with poor kidney function should not take morphine😉

Bone Pain
A MyMyelomaTeam Member asked a question 💭

Hey everyone. I will be starting Neupogen soon. Does anyone have recommendations for addressing the bone pain that comes with it in addition to taking Claritin? Thank you

A MyMyelomaTeam Member

I take oxycodone that helps occasionally. Lots of time it doesn't help at all.

Any Suggestions On How To Phase Out 5mg - 4x Daily, Immediate Release Oxycodone (ir-oxy)?
A MyMyelomaTeam Member asked a question 💭

I've been working down all of my neuropathy pain meds during the last nine months. I was on 1800mg gabapentin daily (600x3) plus 5mg ir-oxy 4x daily. Phased down Gaby to 900, then 300 and then to Lyrica. Phased out Lyrica as well.

I'm trying to phase out the ir-oxy - taking 5mg at 5:30am, the second at 2 - 3pm and the final at 9pm. It gets quite painful and the next dose takes about an hour to quite things down. This is a recent reduction from 4x daily. I expect some of the pain is withdrawal… read more

A MyMyelomaTeam Member

You're only going to be able to transition with THC if you can handle being high. I was using 300mg immediate release morphine every day for years. Tried to get off it many times with no luck. Only… read more