I was wondering if you could share with me what pain pill some are taking. Narcotics all the way to natural
I take 1 morphinene ir (immediate release) and a half percoset per day. But when I was first diagnosed I took 2 - 12 hour morphine per day for some serious back pain.
Hi John, I wish I could take naproxen or ibuprofen but can't because of kidney damage from MM. I can take acetaminophen and if that doesn't work, I have 'scripts for morphine and oxycodone.
I was told it might be bowel pain, but even after I have bowel movements, I still have the pain. Any ideas? I have what I consider normal Myeloma pain (from compression fractures in my back), and other pain throughout my torso, but this pain is resolved by my Fentanyl and Dilaudid. However, this pain isn't resolved by either opioid.
Ahoy, shipmates. I’m having another bone marrow biopsy on Tuesday in the doctors office. No hospital setting..
I believe. It’s 6 months since my SCT. I would like to know what medication should I ask for so that the biopsy is not so painful. My bones are very soft. Usually, they need to work very hard to get samples. My left side is the only side they can receive the necessary samples. Thank you all for your help. Wishing you a blessed weekend with smooth sailings.
I would not do a biopsy without iv sedation, you r comfortable
I am glad they figured it out Christine. You are right, people with poor kidney function should not take morphine😉
I've been working down all of my neuropathy pain meds during the last nine months. I was on 1800mg gabapentin daily (600x3) plus 5mg ir-oxy 4x daily. Phased down Gaby to 900, then 300 and then to Lyrica. Phased out Lyrica as well.
I'm trying to phase out the ir-oxy - taking 5mg at 5:30am, the second at 2 - 3pm and the final at 9pm. It gets quite painful and the next dose takes about an hour to quite things down. This is a recent reduction from 4x daily. I expect some of the pain is withdrawal… read more
You're only going to be able to transition with THC if you can handle being high. I was using 300mg immediate release morphine every day for years. Tried to get off it many times with no luck. Only… read more
I had my SCT July 14, 2022 and thanks be to God I’m in remission. I started my maintenance chemo and Zometa on November 28. I had 9 compression fractures repaired with kyphoplasty. I’m now having more back pain, especially when standing and sitting. I went to see my spine doctor yesterday. He recommended another MRI. I hope it’s not another compression fracture. I was thinking could it be a side effect of the Zometa? Does anyone have any thoughts on this? Thank you, my shipmates.
Yes I have back pain. I haven't had any back procedures. Praise God I am also in remission and looking forward to a cure.
Hey everyone. I will be starting Neupogen soon. Does anyone have recommendations for addressing the bone pain that comes with it in addition to taking Claritin? Thank you
I take oxycodone that helps occasionally. Lots of time it doesn't help at all.
How much Lyrica are people using per day to help with Neuropathy?
What side effects?
What other Meds are you taking with Lyrica to also reduce Neuropathy?
Are you experiencing swelling of your hands and fingers due to Lyrica - if so how do you deal with it?
For a few months, I’ve been on 75mg of Lyrica, twice daily. I’ve been okay’d by my GP to increase my Dose to 4 times daily but reading about Lyrica’s side effects, swelling of the hands and feet is a listed issue.
For at least two months… read more
What about quality of life? I just had another BMB and it was just as painful as the first. The only good thing is that it latest for a few minutes instead of an hour. It seems that there is no norm when getting pain medicine for it.
Stay strong and confident Donna. So far I’ve had 8-Bone Marrow Biopsies from 8 different doctors. Almost all of them I felt level 10 on pain scale but only for approximately 4-seconds. A level 10 to… read more