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Radiation may be used to treat areas of bone damaged by myeloma that have not responded to chemotherapy and/or other drugs. I have had several rounds of radiation as none of the drugs really worked… read more
Yes plasmacytomas are known to be painful unfortunately
How was it diagnosed and did you have treatment.
@A MyMyelomaTeam Member
Thank you for sharing your experiences with MM. I will keep your story in mind. I’m feeling a little breakable lately. I’m not sure if patients put together a team before the… read more
Andrea248, I was misdiagnosed with a spinal hemangioma which turned out to be a plasmacytoma that ate through my spine to the spinal cord in the lumbar region. I had to have spine surgery because my… read more
my CSF protein total is high after a lumbar function procedure ,is anybody has that before,thanks
Greetings from Alaska Samar I’m just checking on you. how are you doing? Have you met with the doctors and you guys have come up with a plan of action please share how you’re doing and your course of… read more
Should I exercise while having plasmacytoma.
Yeah bone biopsies are not fun.
7 Months ago...
My husband is being seen by a blood cancer oncologist. He has been diagnosed with MGUS. His Kappa # is 38. Notes in his blood tests say possibly SMM. Many blood numbers/results are not normal. He is currently suffering with major headaches and bone pain in his head. He has little energy. He has neuropathy in both legs/feet. He can't walk a mile without being out of breath. This is so not normal for him.
I am extremely frustrated with his doctor. We go in and the doc says " how are you". My… read more
Thank you so much for the information.
did any of u have oral plasmacytoma?what is it?what is the treatment?
Thank you. Stay in touch.
Thank you Thank you Donna Andrew
