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Hi Karen.. Yes, two or three times. Lucky for all of us, new drug discoveries and advancements in all areas of treatment have resulted in stunningly positive results. I am not spiritual, though I do… read more
I was diagnosed with multiple Myeloma in April of 2021 after several spinal fractures were found. I had a stem cell transplant in Nov 2021. I was on Darzalex and Revlimid, but recently went off the Darzalex. I also no longer take dexamethasone or Acyclovir. I am in very good partial remission. I get a Zometa infusion every 3 months .
Bev , my husband has had two teeth pulled by an oral surgeon. We felt very comfortable with his knowledge of bone strengthening drugs and myeloma. My husband has not inquired about an implant. They… read more
quality of life. I am alone no caregiver.What do other folks in similar situation do?
My husband and I wear masks in indoor settings , unless in our home or children’s homes.
I was wondering how people have found being on steroids? I understand that they can cause problems
I am diabetic and they can increase your blood sugars
They can also cause weight gain and I have recently been on a diet and lost 4 stone.
They can also affect your mental health and I have mental health problems.
They can also cause insomnia.
Does anyone have problems with these side effects or know of other side effects?
Are there any ways you have found to minimize the side effects?
I hope… read more
Thanks Barry
I am seeing my diabetic nurse soon as well.
I have had quite a few replies saying that they raise your blood sugars.
At least I will be prepared.
Thanks
Has anyone declined to add darzolax to the therapy they are already On? I received my clonol seq results. 2 cells per million. Hope everyone is well. Have an active weekend.
Now I want a banana and peanut butter sandwich 🥰
I just started treatment on Tuesday
It's important to discuss any changes in the effectiveness of your antidepressants with your healthcare provider, especially if you're also being treated for multiple myeloma. The interaction between… read more
Ask your MD.
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more
So far I was the youngest at diagnosis, but longest living post-diagnosis. My brother was diagnosed almost a year after me, but died less than 2 months after his SCT. I will be 4years post SCT May 21… read more
This is a great international online forum we have here but do you belong to any others?
Smart Patients.com. We learned more from than our doctors, initially. They have many medical sections, not just Myeloma. And they are very SMART people!
