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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "say no by saying yes to something else"

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Top 5 searches:
Clinical Trials
A MyMyelomaTeam Member asked a question đź’­

I,m very interested in clinical trials as Car-T cell immunotherapy for MM patients and also for Dendritic cell Therapy

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A MyMyelomaTeam Member

I am currently in clinical trial S1803 and just started cycle 4. the study is for Post SCT maintenance therapy using the gold standard Lenalidomide vs Lenalidomide and Daratumumab/rHuPH20. It just… read more

What Determines Whether A Person Has A Stem Cell Transplant? From All The Info On This Site, Is Age Or How Sick You Are Determine This?
A MyMyelomaTeam Member asked a question đź’­
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A MyMyelomaTeam Member

Yes! Most get infection during Scot recovery, my doc told me 10 % die. Don't know if its true but several ended up in icy I do know

My Husband, Pop Stone, Is Having Severe Hand And Foot Cramps!! Suggestions For Relief????
A MyMyelomaTeam Member asked a question đź’­
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A MyMyelomaTeam Member

I know this will sound silly, but my husband also gets foot, leg cramps. A dill pickle, or the juice of a dill pickle eases his cramps in seconds. I don't know why. Definitely won't hurt to try.

ClonoSEQ Blood Sample MRD Testing - Now Approved By John Hopkins For MRD Negative Tracking When There's No MSpike.
A MyMyelomaTeam Member asked a question đź’­

I’d like to propose a Test for the members of this Forum that would be able to participate

The idea is to compare your MSpike Results to a Blood Sample (Labs) clonoSEQ Test Results

I’ve recently discussed Labs - Blood Sample clonoSEQ Testing with my Onc at Johns Hopkins (JH). When a person is Negative, JH now accept a Blood Sample clonoSEQ test as a Valid Method to Track a person's MRD Status

Unfortunately, JH feels there's no value in getting a clonoSEQ test (even from a simple blood sample)… read more

Physician Finder | clonoSEQ® MRD Test for Patients
Physician Finder | clonoSEQ® MRD Test for Patients
https://www.clonoseq.com/patients/physician-finder/
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A MyMyelomaTeam Member

Congrats on being Negative
Search for Dr Costa Master Trial

He did a Clinical Trial and concluded if you’re clonoSEQ MRD Negative and two or less high risk factors, that after staying Negative for… read more

Does MM Or The Meds Cause Short Term Memory Problems? One Day I Forgot My Best Friend’s Name! 🤦‍♂️
A MyMyelomaTeam Member asked a question đź’­
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A MyMyelomaTeam Member

Brain Fog...

Did Anyone Get A Follow Up PET Scan After Remission?
A MyMyelomaTeam Member asked a question đź’­
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A MyMyelomaTeam Member

I apologize for responding so late but I really thank you all for taking time to respond. KarenRaganFurlong I am sorry to hear that you are on the battlefield again but I’m praying for you and all… read more

Chronic Nausea - Anyone Suffer From This Prior To Diagnosis Of MGUS Or MM? I Am Wondering If It Is MGUS/MM Related.
A MyMyelomaTeam Member asked a question đź’­

I have suffered from this for around 7 years, gastroparesis makes it worse, PCP prescribed Zofran after OTC meds stopped working, doctors say MGUS doesn't cause this. I'm confused and tired of the nausea.

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A MyMyelomaTeam Member

Thank you @A MyMyelomaTeam Member, I appreciate your reply! I hope your nausea gets better! 🤗🙏

I Am 72 And Was Diagnosed With Stage 2A MM In 6/19. Had RVD Chemo For 4 Mos. Which Brought Canc Cells From 70 To 30% In My Bone Marrow.
A MyMyelomaTeam Member asked a question đź’­

Last 9 mos. treatments have been weekly with Velcade and steroids and Darzalex every 3rd week. My M-1 Spike protein has been pretty steady at 1.1 to 1.3. Still have some fatigue, weakness and get out of breath easily. I get XGEVA shots monthly. Bones (except lower back mainly from golf) are in good shape. Same as with kidneys. I’m not eligible for bone marrow transplant due to age
My 2 oncologist. Will soon discuss a possible different drug regimen and frequency change. But I get the… read more

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A MyMyelomaTeam Member

I was 72 when I had my stem cell done. Everything went great. Ask your doctor again.
Carole

Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
A MyMyelomaTeam Member asked a question đź’­
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A MyMyelomaTeam Member

I do not about cart but I do know it is hard to gett

What MM Symptom Do You Have That You Didn't Expect?
A MyMyelomaTeam Member asked a question đź’­
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A MyMyelomaTeam Member

DouglasBergemann The steroids are the worst. Was like you I wouldn’t sleep for three days. I never was so great full for TV in my life. Steroids have always affected me the same. I use to have a lot… read more